Struggling with Anxiety Due to Uncontrolled Epilepsy Seizures

My epilepsy used to be well controlled with meds but over the past 6 months I've had 12 seizures with a much less obvious warning aura. Now I'm scared to go out and feel very low. I've been told by my consultant that this can happen sometimes with epilepsy but I don't like not knowing the reason for it. I'm a doctor myself so always jump to the worst case scenario! Can anyone share some tips for managing this anxiety? I'm on meds and tried CBT but very hard to dismiss the worry of having another seizure!

Pseudoseizures or Dissociation? Need Help Understanding My Symptoms

Hi, so bit of a long question. I was diagnosed by the GP with pseudoseizures, but a councillor told me it was dissociation. Basically i get extremely tired to the point i cant keep my eyes open, my body feels really heavy and i cant communicate verbally. It also comes with this feeling that is really hard to describe, almost like a pulse/wave through me or intense pins or needles? Its hard to explain sorry, almost like im falling alseep and my body is trying to jolt me awake. Nothing helps except sleeping until it goes away and occassionally ice on my body. I just wonder if anyone else feels like this or knows which one it might be.

Trying to Figure Out My Seizures

tw! I am describing my symptoms so I am trying to figure out my (maybe) seizures I've been talking to friends who are diagnosed with psychogenic seziures and explaining my symptoms pounding headache in the back of my skull before during and after (it almost feels like the shaking originates there), shaking legs hands and head, fuzzy or no memory of the event. I've only had a few that I can remember but I've been an extreme stress lately and haven't had any and I don't understand why. I am trying to see if I can get a diagnosis or at least some kind of testing.

Looking for triggers of non-epileptic seizures

anyone who also has non epileptic seizures, have you found a trigger/s? i can't find one, the only thing i can kind of find is if im feeling a lot of any emotion. whether i'm really happy or really angry or really excited. anybody else?

Stress Seizures from Smoking Cannabis

Does anyone else suffer stress seizures from smoking cannabis?

Experiencing Absence Symptoms - Seeking Advice

hi 💖💖 im curious does anyone experience symptoms like this before an absence? ive noticed these the most and im at roughly 3-5 a day 😭 • disorientation • being nonverbal • weird pit feeling in stomach?? kinda like after you eat too much • ear ringing 😩 • dizziness almost in a way that im going to fall over but i can’t • sounds around you being muffled • sudden tiredness i’m working on treatment with my neurologist currently and im being recommended a service dog by some of my friends who share similar issues who have one. it’ll also be for my anxiety disorders and whatnot. would this be beneficial? please let me know 🫶

Recognizing Seizure Symptoms: Help!

How do you tell when a seizure is about to happen? it seems to be different for me every time and i can never tell if i’m about to have a panic attack or a seizure.

Dealing with FND seizures: Need advice!

How do you deal with the seizures and stuff related to fnd? I was recently diagnosed and was told cognitive behavioral therapy was the only way to "manage" and there's no treatment, and it's been really hard on me.

Celebrating 3 Months Seizure-Free After PNES Diagnosis

I just wanted to post some excitement. After not driving for 10 months due to PNES, I finally drove. I'm 3 months seizure free!!! 🙌 Progress happens!!!

Looking for others with non-epileptic seizures

I know this is likely just a shout into the void but... can someone- anyone with nonepileptic seizures reach out or comment..? I found out via and EEG that my seizure fits aren't epileptic, but I'm now trying to gather as much data as I can. from what conditions it could be that's been plaguing me for years, to symptoms I have that could be linked to it, I'm writing down AS MUCH AS I CAN for my meeting with the neurologists PA in a month and a half... but I need help me there's only so much I can do on my own

Fainting Spells or Seizures? Need Advice

Feeling discouraged. I’m having episodes again and I can’t tell whether they’re fainting spells or seizures. I get dizzy and have a weird smell — then the next thing I know I’m on my floor and 20-30 minutes passed. I’m scared to go back to the doctors because we still haven’t pinpointed a diagnosis. Has anyone else experienced this?

Dealing with Pseudoseizures: Has Anyone Else Experienced This?

I was diagnosed with pseudoseizures in high school after having them almost everyday for a year out of no where. Did this happen to anyone else? There were no symptoms beforehand, it just happened and hasn't stopped since.

Preventing Seizures: Is it Possible?

when you feel a seizure coming on, is there a way to prevent it from happening? all I've gotten so far is a way to extend the time before it happens which causes me pain

Dealing with Pseudoseizures: Seeking Advice

Hi, this is a bit hard for me to reach out like this, but I experience psudoseizures and lose mobility because of it (my legs get weak and become hard to move). I've gone to doctors and they have said nothing is physically wrong with multiple tests. what should my next steps be?

Next steps for non-epileptic seizures?

I think I have non epileptic seizures...I went to my neurologist and did a eeg and a mri...Everything came back normal. what's the next step I should take?

How did you know that you had PNES?

How did you know that you had PNES?

Worried about Epilepsy's Impact on My Growth as an Adult

I'm worried that epilepsy is messing with my growth as an adult. I'm 23, and I was diagnosed when I was 15 or 16. I still live with my family, and I haven't learned how to drive as of yet because of that, and having to be dependent because of this has been interfering with my confidence as well. I feel like I can't go anywhere without my mom worrying if I'll have an episode especially at night, because in my sleep that's when it happens mostly. I also have anxiety, so that doesn't help either. I want to do so many things, but I'm trying to think positively about it.

Do You Experience Seizures? Tips for Stopping Them

I was wondering dose anyone else fall to the ground and start shaking like you're having a grand maul seizures if so dose any one have tips for stopping them when you have multiple in a row

Tips for Working with Severe PNES?

hey, does anyone have any tips for how to work with severe PNES? I'm really struggling to find a job that I can work while having multiple seizures daily.

Dealing with Seizures and Strained Relationships

The summer before my freshman year of college I had my first seizure caused by a reaction to a new med. A year later I started having more seizures and was diagnosed with psychogenic non-epileptic seizures. I have now been dealing with the seizures for a year and a half. They have gone down in number significantly but I am up against a new obstacle. My seizures and health troubles put strains on a lot of my relationships. My best friend who I was rooming with when they started doesn’t hang out with me much anymore because of the stress of my seizures. A lot of my family barely talks to me because they are scared of setting me off and causing one. Has anyone else had problems like this? How did you deal with it?