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Tibs

2y ago

Dealing with Pseudoseizures: Seeking Advice

Hi, this is a bit hard for me to reach out like this, but I experience psudoseizures and lose mobility because of it (my legs get weak and become hard to move). I've gone to doctors and they have said nothing is physically wrong with multiple tests. what should my next steps be?

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MandazInTC

2y ago

My first question is did something change in your life or your health recently? My second question is are you recording these episodes? Keep a journal and maybe record a video of some of these. For my non epileptic seizures, it was hard to explain to the doctors at first because I wasn't having them in office, so the videos helped.
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Tibs

2y ago

Mine aren't very paralytic though, which is more confusing. I tense up and stop breathing, usually lasts about 10 seconds, then once I breathe again my legs ache and then "go dead"
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saana

2y ago

I'm in the same boat. Currently looking at dysautonomia and periodic paralysis

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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