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wyvernprince

678d

I know this is likely just a shout into the void but... can someone- anyone with nonepileptic seizures reach out or comment..? I found out via and EEG that my seizure fits aren't epileptic, but I'm now trying to gather as much data as I can. from what conditions it could be that's been plaguing me for years, to symptoms I have that could be linked to it, I'm writing down AS MUCH AS I CAN for my meeting with the neurologists PA in a month and a half... but I need help me there's only so much I can do on my own

Top reply
    • RyanThePineapple

      548d

      @wyvernprince if you ever need help with anything my dms are open

    • teeclark

      552d

      hi! i have FND and non epileptic attack disorder, basically when my ptsd is triggered (which is often lol) i have quite serious seizures, there’s no meds i can take other than antidepressants for it but my citalopram and making sure to prioritise rest and cut out things/people that stress me out have seemed to help for now! still very early on in my journey, wishing you all the very best on yours!

    • RyanThePineapple

      561d

      Hey there! I have what are called Stressed induced sezuires. The are non-epleptic sezuires I've been dealing with most my life. I personally use cannabis for all my mental and medical and its done wonders. But I know everyone is different

      • wyvernprince

        548d

        @RyanThePineapple I actually just got approved for cannabis treatment for it!! I'm hoping to start the next time I get paid!! I've smoked before and it did help a lot

        • RyanThePineapple

          548d

          @wyvernprince if you ever need help with anything my dms are open

    • willowlake

      583d

      I also found out by eeg that mine are non epileptic, I still have them and they get worse due to smoking cannabis. I don't know what they are and the ER told me they think they're pnes but I'll hopefully find out in January from my first neurology appointment.

      • wyvernprince

        581d

        @willowlake yeah I'm now diagnosed with FND... Though they didn't really look in any other direction so like... That's not very encouraging

    • h0ney

      664d

      i struggled with these as well until i found the right medication to reduce my SEVERE anxiety (after over 15 years of trying) now, i still struggle with neurological symptoms when under stress (such as ticing, loss of balance, clamping down on my tongue, or experiencing a nearly locked jaw) but my last seizure was in late January of this year :) right before i started the meds. i have absolutely no idea if me saying any of this helps at all, but figured i'd give it a shot

      • wyvernprince

        664d

        @h0ney anything at all is helpful thank you so much!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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