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fndandme

1y ago

Looking for triggers of non-epileptic seizures

anyone who also has non epileptic seizures, have you found a trigger/s? i can't find one, the only thing i can kind of find is if im feeling a lot of any emotion. whether i'm really happy or really angry or really excited. anybody else?

Your answer

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LadySquigglebones

1y ago

Physical activity, screens, harsh lighting, being tired, loud noises, sometimes eating, sometimes repetitive movements like foot tapping, and worrying about the seizures actually brings them on sometimes. Then doing anything but laying down watching tv makes them get worse once they’ve started
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Shazzie

1y ago

Oh lots of triggers sudden loud noises being surrounded by lots of people unable to get pain under control, flashing lights and car horns shop alarms overstressed 😢
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Evilregal

1y ago

Too much or not enough sugar, stress, fatigue, anxiety, crowds, and not enough to do
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Ashtonn

1y ago

For me crowds and noise and stress/anxiety are my main triggers, as well as being tired from lack of sleep. Hope this helps!
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fndandme

1y ago

thank u!!!
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ohswear

1y ago

i have this! no set triggers but too much of one emotion and im off. i view it as because our brain functions differently,, we feel too much of one emotion regardless of whether it’s positive or negative and our body cant cope. pacing yourself is key 🫶
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fndandme

1y ago

thank you so much!
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Beckboop

1y ago

I’ve finally found someone else who has this though! I’ve never met anyone else like me before. How are you doing? I’ve only just been diagnosed and the doctor said he can’t guarantee I will ever be completely better I hate not knowing how I’m gonna be one day to the next :(
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fndandme

1y ago

im doing okay thank you! my doctor said the same thing and it's really heartbreaking to hear things like that. but pls know im here if you ever wanna chat xxx
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Beckboop

1y ago

I’ve found feeling this sort of zoned out feeling triggers it for me. I’m not sure if it’s anxiety, dissociation or fatigue
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Beckboop

1y ago

Oh and also propranolol helps me with that because when I zone out my heart rate gets really high for some reason :/

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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