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fndandme

484d

anyone who also has non epileptic seizures, have you found a trigger/s? i can't find one, the only thing i can kind of find is if im feeling a lot of any emotion. whether i'm really happy or really angry or really excited. anybody else?

Top reply
    • LadySquigglebones

      449d

      Physical activity, screens, harsh lighting, being tired, loud noises, sometimes eating, sometimes repetitive movements like foot tapping, and worrying about the seizures actually brings them on sometimes. Then doing anything but laying down watching tv makes them get worse once they’ve started

    • LadySquigglebones

      449d

      Physical activity, screens, harsh lighting, being tired, loud noises, sometimes eating, sometimes repetitive movements like foot tapping, and worrying about the seizures actually brings them on sometimes. Then doing anything but laying down watching tv makes them get worse once they’ve started

    • Shazzie

      472d

      Oh lots of triggers sudden loud noises being surrounded by lots of people unable to get pain under control, flashing lights and car horns shop alarms overstressed 😢

    • Evilregal

      472d

      Too much or not enough sugar, stress, fatigue, anxiety, crowds, and not enough to do

    • Ashtonn

      482d

      For me crowds and noise and stress/anxiety are my main triggers, as well as being tired from lack of sleep. Hope this helps!

      • fndandme

        477d

        @Ashtonn thank u!!!

    • ohswear

      483d

      i have this! no set triggers but too much of one emotion and im off. i view it as because our brain functions differently,, we feel too much of one emotion regardless of whether it’s positive or negative and our body cant cope. pacing yourself is key 🫶

      • fndandme

        477d

        @ohswear thank you so much!

    • Beckboop

      484d

      I’ve finally found someone else who has this though! I’ve never met anyone else like me before. How are you doing? I’ve only just been diagnosed and the doctor said he can’t guarantee I will ever be completely better I hate not knowing how I’m gonna be one day to the next :(

      • fndandme

        484d

        @Beckboop im doing okay thank you! my doctor said the same thing and it's really heartbreaking to hear things like that. but pls know im here if you ever wanna chat xxx

        • Beckboop

          484d

          @fndandme yeah it’s been horrible can’t lie. Can I direct message you? I feel like we might be able to relate 🙂

    • Beckboop

      484d

      I’ve found feeling this sort of zoned out feeling triggers it for me. I’m not sure if it’s anxiety, dissociation or fatigue

      • Beckboop

        484d

        @Beckboop Oh and also propranolol helps me with that because when I zone out my heart rate gets really high for some reason :/

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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