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Galadwhen

648d

The summer before my freshman year of college I had my first seizure caused by a reaction to a new med. A year later I started having more seizures and was diagnosed with psychogenic non-epileptic seizures. I have now been dealing with the seizures for a year and a half. They have gone down in number significantly but I am up against a new obstacle. My seizures and health troubles put strains on a lot of my relationships. My best friend who I was rooming with when they started doesn’t hang out with me much anymore because of the stress of my seizures. A lot of my family barely talks to me because they are scared of setting me off and causing one. Has anyone else had problems like this? How did you deal with it?

Top reply
    • wise

      640d

      Send them articles about your condition and explain to them that you know your triggers and how to deal with them. Explaining what to do when you have a seizure may help them feel more at ease. It helped my partner immensely when he had step-by-step instructions for what to do so he wouldn't panic when/if it happened. Worst case, if they forget what to do they can call 911 and the operator will tell them what to do

    • wise

      640d

      Send them articles about your condition and explain to them that you know your triggers and how to deal with them. Explaining what to do when you have a seizure may help them feel more at ease. It helped my partner immensely when he had step-by-step instructions for what to do so he wouldn't panic when/if it happened. Worst case, if they forget what to do they can call 911 and the operator will tell them what to do

    • PicklesTheCat

      640d

      It can be so isolating. I got a pet cat and he has helped immensely. Even when im having a bad seizure day and I can't go to work or hang out with friends I'll just talk to my cat haha. The online community of other people with the same conditions also helps me feel less alone.

    • poodlelover28

      647d

      Yes! I ended friendships with my only friends because they didn't understand my seizures and weren't willing to do simple things for me like drive me up the street so I could get something to eat when my seizures were at my peak.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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