See Alike in...

Alike App

Browser

Roman00

763d

I was wondering dose anyone else fall to the ground and start shaking like you're having a grand maul seizures if so dose any one have tips for stopping them when you have multiple in a row

Top reply
    • PhoenixA

      464d

      @Bradfish off topic, but curious: is your handle a nod at the sublime song or their tribute cover band by chance? (I'm actually asking because I'm that dork type that is now looking up if Sublime's badfish was actually a cover because most of their best was. My favorites are when they take on Peter tosh and Billie Holiday. )

    • PhoenixA

      464d

      I've never had multiple in a row, but after the last major one, to keep my drivers livers (even though I've never had one while driving or even riding, but just the fact that in California a provider must report to the dmv if you have one) I had to see a neurologist and be medicated to get my license back. They put me on what they give many epileptics, Keppra, and the only side effect I noticed in the beginning was slightly less anxiety. And now if I feel possibly like I might be about to have one, I know to close my eyes so I don't see the aura, i grip something forcefully, focus on regular breathing, and tell myself with authority in my head that I am not having a seizure. And if I do, I get to tell doctors they were wrong about a medication helping. I grew to really love that with psychiatrists who kept throwing drugs at me that weren't even close to the disorders I do have. It's been almost ten years, and the only one I had since then was triggered by the fact I doused a blanket in bleach that my cat had urinated on. For some reason, my brain failed to make the connection that if there's ammonia in cat urine, bleach should not be used. Literally. Like, I knew both aspects of the rule but did not process that i was doing that very thing. Because in my head, it wasn't ammonia. It was cat pee, which is far worse. And know your triggers, know how your body feels before you have them, and avoid them. If you can't avoid it, let people around you know you may have seizures shortly. Taking the stress off yourself as the only one dealing with it can help a LOT. Again, I don't have multiples, just a very explosive one and done. But I think asking a neurologist about Keppra is a good place to start. I think the main lessening of anxiety was the fact that if the drug didn't work, I would have the satisfaction of saying stop throwing chemicals at me that don't work.

    • Roman00

      757d

      I was on clonazqpam when I was in the mental hospital but once I got out my doctor took me off it because addiction runs in my family but it did really help

    • Shenandoah

      759d

      I go unconscious and have multiple tonic clonic seizure like episodes before I come to. I don't get warnings and cant stop them. But if you get a warning, definitely get to a safe place and ask for help if you can. I have to lay down for a few hours or I'll just have more and I need 3 days to fully rest and recover. I found if I get lots of rest I could potentially go weeks or months without having another. What triggers them for you? Mine is stress, if my chronic pain is not managed well, and exhaustion.

    • PicklesTheCat

      762d

      Omg yes it happens to me too. I try to lay down if I feel one comming and get in bed or put something soft under my head to reduce risk of an injury.

    • Catia

      762d

      this is my suggestion. I don't have grand mal seizures but I would track how many you have. I have focal epilepsy and that's a huge struggle for me. so I track what I have and when I get them. I would write down how you're feeling just before a seizure hits, (once you regain consciousness) then when you start to recognize those symptoms I would sit down where you're at (public) or lay down on your side (at home or in private.) if they're lasting hours then I would recommend getting an EEG done in a hospital setting if you can't figure out what's causing them. I hope this helps

    • Bradfish

      763d

      I do but, depends on what is trigger them. My seizures usually last hours at a time.

      • PhoenixA

        464d

        @Bradfish off topic, but curious: is your handle a nod at the sublime song or their tribute cover band by chance? (I'm actually asking because I'm that dork type that is now looking up if Sublime's badfish was actually a cover because most of their best was. My favorites are when they take on Peter tosh and Billie Holiday. )

      • Roman00

        763d

        @Bradfish mostly my anxiety trigger them they'll last about a minute each but I'll get up and have another one I have up to about 20 under 30 minutes

        • Shenandoah

          759d

          @Roman00 does it help to just stay down for a while? If I get up too soon I'll have more episodes but if I lay there for a while I get better

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion