66d
0
Best ways to help with the daily leg pain? Most stretches hurt and I have IST/POTS as well. Looking for exercises or vitamins! I'm already in physical therapy.
134d
0
Any recommendations to prevent knee hyperextension in someone constantly on their feet at work?
182d
2
When dealing with chronic pain and fatigue, how do you find the motivation/energy to clean? I need to clean urgently and between life and college, I never have the energy and am in pain constantly. Transitioning from being in bed to moving around is an impossible chore, how do you personally deal/move past this?
222d
1
I was diagnosed with hypermobility after 5 years of arguing with Dr's who ignored me, but I've been told that can't possibly explain all my symptoms. I've asked for a second opinion, and want to raise the possibility of hEDS. what research or evidence should I take with me to get them to pay attention?
495d
0
To hypermoible people out there, have you had severe pain cutting steak and eating it? I found out this isn’t normal recently. I was wondering about finger and wrist braces or supports to get to help me with things like that. Does anyone have any suggestions?
496d
1
What are peoples thoughts on Pilates? My physio is super proud of my improvements and wants me to start Pilates. I have managed to commit to daily physio (takes about 5 minuets my routine) and hula hooping daily for 35 minuets (started at 30, increasing by 5 minuets every month until I get to an hour). There is a gym a 10 minuet walk away from me that does it twice a week, but I’ve read stuff online that the benefit for hyper mobile folk heavily falls on the trainer and their understanding of HSD/hEDS. However I did find a 20 minuet YouTube video on Pilates made for hyper mobile folk - so might up my hoop to 40 minuets and then add that 20 minuets of Pilates to it too to make an hour of exercise every day. What do people think? What do you guys do?
504d
2
does hypermobility have any connection to Pots or not because When I'm carrying something uphill, I always get really out of breath but have had tests, but it came back negative, so I was wondering if I need to go back to the drs but the wait will be way to long to get seen or hear anything back
504d
2
Esophagitis-Gastroesophageal Reflux Disease (GERD)
Fibromyalgia (FM)
Hernia Diaphragmatic
Hypermobility Syndromes
I had quite a hard thought just now - it made me feel sad but I’m being mindful of it. I’m seeing it, giving it space, but don’t want to dwell. I thought, at some point I’m going to forget what it was like to not be in pain. My symptoms flared up and diagnosis came when I was 27, so I’ve been managing for about a year now (nearly 29). Although this was a sad thought, I just think I need to get to know the new me. Get to know how to thrive despite it - as I’m blessed to have an amazing job and support network. Anyone else ever have these thoughts?
515d
0
my hip has been in so much pain for a few days and I don't know how to help
516d
1
im on my journey of being diagnosed with an autoimmune disease and feeling frustrated :(. ive been tested for all the common ones, + thyroid and rheumatoid test that came back negative. my only outstanding symptoms are hypermobility and joint pain, plus the normal keynotes of an autoimmune disease. is there anything specifically i should ask to test for? (i am a teenager, been testing since summer 2022)
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Learn moreHypermobility syndrome is a condition in which the joints are easily moved beyond the normal range that is expected from each specific joint.
Alike Wisdom
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
1707 Alikes with Hypermobility Syndromes
Learn from others
who are experiencing
Hypermobility Syndromes.
4.7 Ratings