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CuppaTea

416d

After 8 years of bad symptoms and 21 years (my lifespan) of symptoms in general, I have finally got a diagnosis. Hypermobile Ehlers-Danlos Syndrome! Treating myself to a glass of prosecco!

Top reply
    • CuppaTea

      377d

      @A_Delicate_Flower when you go for the appointment, if you can, bring a relative if one has similar symptoms, I took my mum and that's how the Dr decided it was EDS not just hypermobility as EDS is hereditary.

    • Cloverleaf

      377d

      Amazing! I'm so happy for you – you deserve that bubbly 🍷🦓

    • A_Delicate_Flower

      414d

      Congratulations! I still can't seem to get one! Several "suspect" but no one wants to diagnose it. I'm on a wait list for a Dr who only works with EDS/HSD in my area so hopefully one day I'll have a celebratory prosecco too!

      • CuppaTea

        377d

        @A_Delicate_Flower when you go for the appointment, if you can, bring a relative if one has similar symptoms, I took my mum and that's how the Dr decided it was EDS not just hypermobility as EDS is hereditary.

    • CuppaTea

      416d

      Thank you, I'm so excited just to have a diagnosis after all this time. I skipped out of the appointment xx

    • Vievie

      416d

      Ayeee! Definitely deserve that prosecco !

    • sandboxjoints

      416d

      hooray! glad you finally got it!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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