Finally Got a Diagnosis for My Chronic Symptoms!

After 8 years of bad symptoms and 21 years (my lifespan) of symptoms in general, I have finally got a diagnosis. Hypermobile Ehlers-Danlos Syndrome! Treating myself to a glass of prosecco!

Your answer

A_Delicate_Flower

1y ago

Congratulations! I still can't seem to get one! Several "suspect" but no one wants to diagnose it. I'm on a wait list for a Dr who only works with EDS/HSD in my area so hopefully one day I'll have a celebratory prosecco too!

CuppaTea

1y ago

when you go for the appointment, if you can, bring a relative if one has similar symptoms, I took my mum and that's how the Dr decided it was EDS not just hypermobility as EDS is hereditary.

CuppaTea

1y ago

Thank you, I'm so excited just to have a diagnosis after all this time. I skipped out of the appointment xx

Vievie

1y ago

Ayeee! Definitely deserve that prosecco !

sandboxjoints

1y ago

hooray! glad you finally got it!

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