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Ouchlicia

372d

Hello, I have just been diagnosed with hypermobile Ehlers danlos syndrome, and my doctor suggested I download this app. Does anyone have any good resources or tips on how to start managing this? Thank you 🥰

Top reply
    • hues

      368d

      The Ehlers-Danlos society has a ton of good resources for Ehlers Danlos Syndrome. Best of luck to you!

    • hues

      368d

      The Ehlers-Danlos society has a ton of good resources for Ehlers Danlos Syndrome. Best of luck to you!

      • Ouchlicia

        368d

        @hues thank you very much!

    • Teal100

      371d

      Find a specialist eds physio and ot you can work with. also get referrals to relevant professionals.

    • Wednesday_7

      371d

      Figuring out my worst joints and using braces for them is a life saver.

    • Knees

      371d

      I would begin to find things that work well to help your pain. I am a lover of fingerless compression gloves for my hands going numb, definitely something I wish I knew sooner. But also don’t push yourself too hard, if you are having a bad pain day then do not do things that will agitate your body it will only make things worse for you that day.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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