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Hello, I have just been diagnosed with hypermobile Ehlers danlos syndrome, and my doctor suggested I download this app. Does anyone have any good resources or tips on how to start managing this? Thank you š„°
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Ehlers-Danlos Syndrome (EDS)
Hypermobility Syndromes
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479d
The Ehlers-Danlos society has a ton of good resources for Ehlers Danlos Syndrome. Best of luck to you!
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@hues thank you very much!
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482d
Find a specialist eds physio and ot you can work with. also get referrals to relevant professionals.
Figuring out my worst joints and using braces for them is a life saver.
I would begin to find things that work well to help your pain. I am a lover of fingerless compression gloves for my hands going numb, definitely something I wish I knew sooner. But also donāt push yourself too hard, if you are having a bad pain day then do not do things that will agitate your body it will only make things worse for you that day.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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