Frustrated with Undiagnosed Autoimmune Disease Symptoms

im on my journey of being diagnosed with an autoimmune disease and feeling frustrated :(. ive been tested for all the common ones, + thyroid and rheumatoid test that came back negative. my only outstanding symptoms are hypermobility and joint pain, plus the normal keynotes of an autoimmune disease. is there anything specifically i should ask to test for? (i am a teenager, been testing since summer 2022)

Your answer

Officialishness

1y ago

I would look into EDS (not just hypermobility, there are many many forms of EDS) and look into answers that may not be autoimmune. Lots of autoimmune symptoms are also associated with other illnesses, genetic disorders, and diseases - it’s important to look everywhere and exhaust all options from autoimmune to genetic and even less common causes such as environmental factors for symptoms. I hope you find answers 😢💕

Leeeee

1y ago

Try searching about Ehlers-Danlos Syndrome, specifically the Hypermobility type. H-EDS is what I have and those are some of the things I experience too! It might not be that but it is worth a shot

starryinkynight

1y ago

tysm!! ill ask my rheumatologist abt it next time i have an appointment

pianolover314

1y ago

I was pretty much this but I just got diagnosed with chronic pain syndrome and lipomas

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