Negative Sjogren's Antibody Test but Still Have Symptoms

Has anyone been diagnosed with Sjogren’s after getting a negative antibody blood test? My dr told me I don’t have it but I have many of the symptoms (dry eyes and mouth, always thirsty, shoulder pain, pain under the ear/jaw, severe fatigue). I’ve read that a stool test and lip biopsy and can also be used to diagnose it, so I don’t think it should be ruled out just because of a blood test.

Finding People to Relate To: Cane Use

Hi, nice to meet y'all. Sorry it might take me a bit to open up, but I'd like to try! I've been having a hard time finding people to relate to. So, icebreaker: If you use a cane, what kind? And if a a young cane user, do you often have to deal with bullsh*t questions/judgement about it?

Dealing with Sjogren's and Anklosing spondylitis

Since I first started showing symptoms for Sjogren’s about 9 years ago, turns out it’s secondary to Anklosing spondylitis. My SS started with VERY swollen glands, it has now escalated to much more painful symptoms in the throat and under my tongue. It feels like pins and needles along with a tightness and unless I take prednisone this is a daily occurrence for me and it can be quite painful. My glands still swell but not as severe as early on and stay swollen much of the time. I’m currently taking hydroxychloroquine and l lueflonomide, and Cimzia,for the SS but really the only thing that seems to help is prednisone. I recently fractured a few bones in my foot and dr believes prednisone is the culprit. Please, if anyone has any suggestions I would truly appreciate it. Does anyone experience similar symptoms?

Empowered by my Chronic Illness Diagnosis

i was just officially diagnosed today and i feel so empowered. I'm 20 and have had debilitating fatigue and unexplained fevers for years. i have hope now! (and i now understand why contact lenses suck for me! lol)

Nervous About Seeing a New Rheumatologist Tomorrow

Seeing a new rheumatologist tomorrow and I’m super nervous but excited (new doc = could be amazing or could be the opposite lol)! Any advice?

Diagnosed with Sjögren’s Syndrome at a Young Age

Has anyone gotten diagnosed with Sjögren’s Syndrome at a young age? I’m 22 years old and I also have Mixed Connective Tissue Disease. My maternal grandmother also has it. I just feel alone.

What are your Symptoms with Sjogren's Syndrome?

What are your syptoms with your Sjogren's? I have very dry eyes which I use Colidial Silver. I have a over production of saliva which makes me gag often. Any suggestions?

Struggling to Get Diagnosed with Autoimmune Disorder

I've hit a stall in getting diagnosed. I have Sjogrens which means I have another auto immune disorder but don't know which one. I also have a lot of neurological symptoms. Does anyone have any advice? We're really struggling.

Lost all my teeth due to SS, struggling with self-esteem

Has anyone else loss teeth because of SS? I am 45 and had to have all my teeth pulled. I have dentures right now and have a very low self esteem.

Sjorgens and Taste: Has Anyone Experienced This?

Has anyone had their taste/tastebuds completely changed by Sjorgens? I feel like my mouth is hyper sensitive to heat, spice, salt, sweet etc. it really makes eating anything with big flavor challenging.

Can a Gluten-Free Diet Help with Sjogrens Symptoms?

Since Sjogrens is an autoimmune disorder that causes inflammations i wondered if eating an anti inflamatory gluten free diet will help with the symptoms? Also any ideas for treating dry eye due to Sjogrens.

Eye Makeup and Sjogren Syndrome: Need Advice

Hi! Do you women with sjogren syndrome have problems using eye makeup, eye liner or eye lashes makeup? My eyes feel worst when i use makeup and I dont know if this happens because of the syndrome or is some allergic reaction to it…

Is Fatigue a Normal Part of Aging?

Being 72 I have much fatigue and wonder is it old age or SS?

Best Eye Drops for Sjogren Syndrome?

Hi everybody! I was recently diagnosed with sjogren syndrome and wanted to ask you which eye drops are helping you the most for your eyes? I use systane ultra but doesn’t seems to help me. Thank you!

Concerns about long-term use of hydroxychloroquine

Any about side effects of taking hydroxychloroquine for 14 years? I’d like to avoid retina problems if it’s possible so I take one pill, 200 mg daily, but was prescribed to take two pills per day. I’m thinking I’m doing OK but wonder if I’d have less severe dry eyes and mouth if I took two. Never have understood what potential problems of internal organs can come about because of Sjogrens.. Anyone knowledgeable about this?

Questions about Sjogren's Syndrome and Chronic Neck Pain

I have a few questions... 1 - what made your doctor diagnose you? (symptoms, blood work, etc) 2 - does anyone here have a sjogrens diagnoses WITHOUT another autoimmune issue (Lupus, RA, etc)? 3 - anyone have chronic neck pain specifically?

Limiting Dairy and Gluten: Positive Effects on Symptoms?

Has anyone tried limiting dairy and gluten in their diet and noticed any positive effects on symptoms?

Managing Joint Pain and Stiffness: Tips and Tricks

Other than meds, what are some steps I can take to manage my joint pain and stiffness?

Enlarged liver and spleen, possible RA or sarcoid related

Just found out my liver & spleen are enlarged & this could be RA or sarcoid related. Anyone have this happen too? Not sure yet what my treatment options are, I need to talk to my primary doctor.

Dealing with Sjorgens and RA Symptoms

Turns out I don’t have RA, but my Sjorgens is giving me RA symptoms. I guess its good I only have Sjorgens but still sucks to be going through this. Just wanted to share.