See Alike in...

Alike App

Browser

qveenofthecastles

769d

I have a few questions... 1 - what made your doctor diagnose you? (symptoms, blood work, etc) 2 - does anyone here have a sjogrens diagnoses WITHOUT another autoimmune issue (Lupus, RA, etc)? 3 - anyone have chronic neck pain specifically?

Top reply
    • Aquamarine

      757d

      1) I had had symptoms for years but they were never recognized as Sjogrens. Finally, my parotid glands swelled up and that was my huge red flag that started serious testing. Ultimately was diagnosed via history of symptoms and bloodwork. 2) I do not have any other autoimmune diseases, just primary Sjogrens 3) have had chronic neck and back pain for many years since my diagnosis. Have been to chiropractor and PT. Best advice is to keep moving and stretching throughout the day, especially if you work on a computer! Get yourself a tens unit, some bio freeze, and a heated neck wrap!

    • Aquamarine

      757d

      1) I had had symptoms for years but they were never recognized as Sjogrens. Finally, my parotid glands swelled up and that was my huge red flag that started serious testing. Ultimately was diagnosed via history of symptoms and bloodwork. 2) I do not have any other autoimmune diseases, just primary Sjogrens 3) have had chronic neck and back pain for many years since my diagnosis. Have been to chiropractor and PT. Best advice is to keep moving and stretching throughout the day, especially if you work on a computer! Get yourself a tens unit, some bio freeze, and a heated neck wrap!

    • Bubba_Jones

      761d

      1- blood work and lip biopsy. Tests were done due to exaggerated fatigue and joint pain that moved around. 2- I currently do not have another autoimmune diagnosis but there are two others in my family’s history. 3- I do have chronic neck pain but it’s due to a congenital defect.

    • Kikwi

      762d

      1) blood work 2) yes Sjögren’s is my only one officially 3) mine just started a few months ago 😭

    • TrixNY

      767d

      1) monitoring blood work over time. My first tests came back ANA positive, and sedimentation rates gradually worsened. 2) no. I have sjogren’s and they still won’t say after 4 years if my other symptoms (joint pain, GI issues, hair loss, etc) are SLE or MCTD. I have all the lupus symptoms except the butterfly rash, but it often takes years for a diagnosis. 3) my worst joint pain is hips, wrists and elbows. No upper neck, but I’m sure it’s on its way!

    • Doglover25006

      767d

      1- bloodwork and symptoms my bloodwork came back negative but doc diagnosed me anyway based on symptoms not everyone’s bloodwork is positive it can rule sjogrens in if you test positive but bloodwork alone can’t rule it out. Some docs also want to do lip biopsy but mine decided it wasn’t necessary to do 2-yes sjogrens is my only autoimmune I do have a lot of other health conditions though including fibromyalgia and a dozen or so others 3- yes working with chiropractic acupuncture massage and physical therapy on this I’ve had it for decades even before I got sick

    • karinad

      769d

      Also, I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • karinad

      769d

      1) blood work and symptoms, 2) no, 3) yes, working with chiropractor and dietitian to address it

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion