Struggling to Get Diagnosed with Autoimmune Disorder

I've hit a stall in getting diagnosed. I have Sjogrens which means I have another auto immune disorder but don't know which one. I also have a lot of neurological symptoms. Does anyone have any advice? We're really struggling.

Your answer

Keex

2y ago

Lupus

Rachelliz

2y ago

How were you diagnosed? Are you taking any medications specifically for Sjogren’s?

SparkleFlyer

2y ago

Those symptoms could be primary Sjogren’s. Neurological issues and brain fog are common.

TwinMommaBear

2y ago

Have they looked into POTS?? Could be why you are passing out but seems like everything else fits with what comes with the syndrome

McD43

1y ago

what is pots

Janella

2y ago

I was first diagnosed with MS then found out through testing that I have sjogren's

Hunnyb316

2y ago

It took over 4 years to find my secondary autoimmune diesease. Hang in there!

RainbowPearl

2y ago

what was the final piece or pieces for you getting diagnosed?

Cathyliz

2y ago

Sjögren’s can be primary, meaning it is possible to only have that. Are you seeing a rheumatologist?

RainbowPearl

2y ago

I had no idea Sjogrens could be primary. My rheumatologist said it always came with another auto immune disease

RainbowPearl

2y ago

yes but I'm at the point where I'm seeking a second opinion. I also have abnormal weight gain, abnormal stretch marks, may or may not have a pituitary miroadenoma, heat and cold intolerance. Fibromyalgia, polyarthritis...I just don't know what to do anymore. I can't work, can't drive, can't go places on my own.

Taurusgreen

2y ago

What neurological symptoms?

RainbowPearl

2y ago

short term memory loss, muscle spasms and hand tremors, nominal aphasia, (speech problems) random passing out followed by complete memory loss for the day, and worsening migrains.

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