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LaurElizabeth

868d

How bad can your fatigue be with sjogren’s? I just got a formal dx and I am just not sure i am so so exhausted all the time. I also have bad muscle pain.. Does anyone else feel this way too with this dx? What has helped you?

Top reply
    • adixon

      615d

      My fatigue is debilitating. In fact, it's the symptom that affects me the worst. However, the pain is right up there too. I am on liquid Methadone (Methadose) that I go to a clinic daily for to be dosed. It's honestly been a saving grace for me. I went from barely being able to get out of bed in the morning to not even thinking about pain throughout the day. The only concern my doctor has is the possibility of it masking the development of any new complications. I was in such agony that I couldn't stand to wait around for several months until the Plaquenil kicked in though. So I chose the immediate relief

    • adixon

      615d

      My fatigue is debilitating. In fact, it's the symptom that affects me the worst. However, the pain is right up there too. I am on liquid Methadone (Methadose) that I go to a clinic daily for to be dosed. It's honestly been a saving grace for me. I went from barely being able to get out of bed in the morning to not even thinking about pain throughout the day. The only concern my doctor has is the possibility of it masking the development of any new complications. I was in such agony that I couldn't stand to wait around for several months until the Plaquenil kicked in though. So I chose the immediate relief

    • LaurElizabeth

      865d

      Yes! Wow thank you everyone - I am going to be on a prescription dose of vitamin D since I was very very low said the dr.. I also have a huge problem lately with brain fog thank you guys for making me feel less alone in this ❤️

    • IShouldBeDancingYeah

      866d

      I have those same symptoms you mentioned and should get my vit levels checks again soon, good reminder

    • Orange

      867d

      I’ve also had Sjogren’s for a long time and the fatigue is unreal. Checking your vitamin levels might be something to look at. Upping my vitamin D since I was very low seemed to give me the tiniest boost. I’ll take any kind of progress at this point. My other symptoms are mainly neuropathy, muscle & bone pain, dry throat, nose, eyes, and mouth, skin rashes, and brain fog.

    • IShouldBeDancingYeah

      867d

      Hi, I've had Sjogren's since early childhood. The fatigue began over ten years ago. I would say it has been a huge fight. It's beyond exhaustion after exerting one's self, its more a "medical fatigue," in another category altogether

    • LaurElizabeth

      868d

      Thank you so much ❤️

    • StarryDaze72

      868d

      My fatigue is horrible. I also have muscle and joint pain along with the dry eyes, nose, mouth and throat. I am on a strict diet, low sugar,sodium, and fat. I eat mostly fish and chicken but a lot of healthy greens and fruits. You can look up the AIP diet. Some say it helps and others not so much. I feel it helps somewhat. Nothing has taken mine completely away. I have to do things in moderation and take a nap daily. Listen to your body is the best advice I can give you. Don’t over do it or you will pay the next day. A little exercise helps. I walk when I can. Don’t be too hard on yourself because everyone’s journey with autoimmune disorders is different.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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