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A424's Post
A424
1y ago
Negative Sjogren's Antibody Test but Still Have Symptoms
Has anyone been diagnosed with Sjogren’s after getting a negative antibody blood test? My dr told me I don’t have it but I have many of the symptoms (dry eyes and mouth, always thirsty, shoulder pain, pain under the ear/jaw, severe fatigue). I’ve read that a stool test and lip biopsy and can also be used to diagnose it, so I don’t think it should be ruled out just because of a blood test.
Your answer
Jacket
1y ago
I have had pretty inconsistent blood work sometimes I get a positive sometimes I get a negative. Continue to monitor for changes. Unfortunately autoimmune can take a long time to gather the info to get a diagnosis.
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Marilynethel
1y ago
I have been diagnosed with Sjögren’s. I have all the same symptoms. I have had Lyme disease & I believe still having long term symptoms of that also. It all started 20 years ago when no one wanted to believe or test. I did have many problems & finally when my thumb and index finger quit working the University of Michigan rerouted my nerve and said I had lymes. I have had many joint problems & many surgeries. I wish you all the best and hope you get the help you need.
J4yJ4y
1y ago
I had a positive antibody test and my doctor said that he couldn't diagnose off of that since it isn't an approved form of diagnostic testing, so I'm finding a new doctor. If you're comfortable with it, give your doc a little pushback to dig deeper with the biopsy testing or find a second opinion. Wishing you the best of luck!
Nicole_J
1y ago
Keep bugging the doctor until u get answers or get a second opinion
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