See Alike in...

Alike App

Browser

A424

432d

Has anyone been diagnosed with Sjogren’s after getting a negative antibody blood test? My dr told me I don’t have it but I have many of the symptoms (dry eyes and mouth, always thirsty, shoulder pain, pain under the ear/jaw, severe fatigue). I’ve read that a stool test and lip biopsy and can also be used to diagnose it, so I don’t think it should be ruled out just because of a blood test.

Top reply
    • Jacket

      385d

      I have had pretty inconsistent blood work sometimes I get a positive sometimes I get a negative. Continue to monitor for changes. Unfortunately autoimmune can take a long time to gather the info to get a diagnosis.

    • Jacket

      385d

      I have had pretty inconsistent blood work sometimes I get a positive sometimes I get a negative. Continue to monitor for changes. Unfortunately autoimmune can take a long time to gather the info to get a diagnosis.

    • Marilynethel

      399d

      I have been diagnosed with Sjögren’s. I have all the same symptoms. I have had Lyme disease & I believe still having long term symptoms of that also. It all started 20 years ago when no one wanted to believe or test. I did have many problems & finally when my thumb and index finger quit working the University of Michigan rerouted my nerve and said I had lymes. I have had many joint problems & many surgeries. I wish you all the best and hope you get the help you need.

    • J4yJ4y

      431d

      I had a positive antibody test and my doctor said that he couldn't diagnose off of that since it isn't an approved form of diagnostic testing, so I'm finding a new doctor. If you're comfortable with it, give your doc a little pushback to dig deeper with the biopsy testing or find a second opinion. Wishing you the best of luck!

    • Nicole_J

      432d

      Keep bugging the doctor until u get answers or get a second opinion

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Yes, one user mentioned that their blood work came back negative, but their doctor diagnosed them with Sjogren's based on symptoms. They also mentioned that not everyone's blood work is positive and that some doctors may want to do a lip biopsy for further confirmation.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion