Negative Sjogren's Antibody Test but Still Have Symptoms

A424

195d

Has anyone been diagnosed with Sjogren’s after getting a negative antibody blood test? My dr told me I don’t have it but I have many of the symptoms (dry eyes and mouth, always thirsty, shoulder pain, pain under the ear/jaw, severe fatigue). I’ve read that a stool test and lip biopsy and can also be used to diagnose it, so I don’t think it should be ruled out just because of a blood test.

Sjogren's syndrome (SjS, SS)

Dry mouth

Dry eyes

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Alike health

Yes, one user mentioned that their blood work came back negative, but their doctor diagnosed them with Sjogren's based on symptoms. They also mentioned that not everyone's blood work is positive and that some doctors may want to do a lip biopsy for further confirmation.

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Top reply

Jacket

148d

I have had pretty inconsistent blood work sometimes I get a positive sometimes I get a negative. Continue to monitor for changes. Unfortunately autoimmune can take a long time to gather the info to get a diagnosis.

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Nicole_J

195d

Keep bugging the doctor until u get answers or get a second opinion

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J4yJ4y

194d

I had a positive antibody test and my doctor said that he couldn't diagnose off of that since it isn't an approved form of diagnostic testing, so I'm finding a new doctor. If you're comfortable with it, give your doc a little pushback to dig deeper with the biopsy testing or find a second opinion. Wishing you the best of luck!

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Marilynethel

162d

I have been diagnosed with Sjögren’s. I have all the same symptoms. I have had Lyme disease & I believe still having long term symptoms of that also. It all started 20 years ago when no one wanted to believe or test. I did have many problems & finally when my thumb and index finger quit working the University of Michigan rerouted my nerve and said I had lymes. I have had many joint problems & many surgeries. I wish you all the best and hope you get the help you need.

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Jacket

148d

I have had pretty inconsistent blood work sometimes I get a positive sometimes I get a negative. Continue to monitor for changes. Unfortunately autoimmune can take a long time to gather the info to get a diagnosis.

2

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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