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Karidas

819d

Any about side effects of taking hydroxychloroquine for 14 years? I’d like to avoid retina problems if it’s possible so I take one pill, 200 mg daily, but was prescribed to take two pills per day. I’m thinking I’m doing OK but wonder if I’d have less severe dry eyes and mouth if I took two. Never have understood what potential problems of internal organs can come about because of Sjogrens.. Anyone knowledgeable about this?

Top reply
    • TrixNY

      813d

      I have been on Plaquenil for a few years now and see a retina specialist annually for my screening. He has told me multiple times that, in his practice, he’s seen retina damage from hydroxychloroquine about 5 times in over 30 years and working with hundreds of patients. It is possible, but not likely.

    • TrixNY

      813d

      I have been on Plaquenil for a few years now and see a retina specialist annually for my screening. He has told me multiple times that, in his practice, he’s seen retina damage from hydroxychloroquine about 5 times in over 30 years and working with hundreds of patients. It is possible, but not likely.

    • Aquamarine

      814d

      I’ve been on 400 mg daily for about 12 years now. I’ve had two eye doctors tell me they’d like to see me get off of it to preserve my retinas since I’ve been on it so long but I have had no problems on my biannual testing thus far. My rheumatologist disagrees and thinks as long as my eye screenings remain normal this likely will be something I am on for life. This was the first Sjogrens med I was prescribed when diagnosed and I honestly don’t remember if I could say it helped back then. Now, it’s just part of my regimen. I don’t have any side effects from it so no reason to stop from my rheumie’s point of view. From my understanding, it’s purpose is to preserve our organs from damage caused by Sjogrens, it really shouldn’t cause any (the biggest concern with this med is the retinas, but if seen regularly by an ophthalmologist and with regular testing, rarely is this an issue).

    • TrixNY

      819d

      I have SLE and Sjogren’s and take 400mg a day. My dry eyes are an ongoing problem. My biggest benefit from Plaquenil is that my sedimentation rate, hair loss, and ANA levels have stabilized for four years now, but I still have most of my symptoms.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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