Seeking Advice: How to Discuss Possible POTS Diagnosis with Doctor

How do I tell my doctor I think I might have POTS. I've had ongoing issues with my heart for years and many symptoms of POTS but the doctors office refuses to take me seriously. I went and had a 48 hour ecg recently but I have yet to get the results. How can I make my life easier and less restrictive in what I do?

Can I lie down while taking midodrine during the day?

I've recently been started with 2.5 midodrine and it may sound silly but can I lie down at all with it during the day?

Quick and Salty Snack for Dizziness in Class

What is a salty/effective snack I could quickly grab and eat if I'm feeling dizzy in class?

Managing heds Diagnosis: What Should I Do?

I was just diagnosed with heds while I was at an appointment for my pots. The doctor didn't really explain much about it so I was wondering what I should be doing to manage it? thanks!

Best cane for hyperextending joints? Need advice!

hi! im wondering if anyone knows what type of cane is best for people whos joints hyper extend? (im not sure if i have eds i just know my joints hurt alot) cause i want to get a cane since i think it would help when my knees hurt too bad, my gi pain gets bad and i cant stand very well, and when im feeling faint but need to continue on with my day. im just worried that my wrists will hurt too bad from using a cane, any tips?

Struggling with Strattera and POTS flare, need advice

Started Strattera a little over a week ago and 2 days ago entered a bad POTS flare. Is it likely they’re related? I had some trouble sleeping from the Strattera up until a few days ago when it cleared up (about a day before the flare I’d say.) If this is related do you think it’ll get better as I adjust more too? I’m worried a stimulant would just do the same if I had to switch medicine but I really need something for energy and focus with school soon. :(

Advice on Flying with POTS: Need Help!

hi friends. I'm hoping for some advice about flying with POTS. I'm taking a flight tomorrow and im very nervous.

Seeking Advice on POTS Medication During Pregnancy

Does anyone have experience with taking POTS medication while pregnant? If so what have you all used that are safe, and experiences with that. I'm going to talk with my doctor, but wanted ask here as well.

Struggling with Brain Fog While Reading, Need Help!

Does anyone know how to get over brain fog while reading. I have such a hard time reading anything without pictures. Like I can read manga, but I can’t read recipes or books or medical papers or anything, and I used to be great at reading. I just literally can’t understand what I’m reading anymore and I don’t know how to fix that.

Struggling with Wearing Compression Socks in Public

I was recently diagnosed with POTS and struggle a lot with dizziness and fatigue. My doctor highly recommended that I wear compression socks especially because I work as a nanny so lots of up and down. I’ve started wearing them at home, but not for work or anything in public. Idk why I’m so embarrassed. Anyone else struggle with feeling like this or have tips to make me feel more confident in myself?

Opinions on Tilt Table Test?

I am having a tilt table test in a few weeks and have heard mixed thoughts. Some have said it was the most awful experience but others have said it was alright. Can I have some honest opinions please.

Advice for Dealing with a POTS Diagnosis

I was diagnosed with POTS this week, anyone have advice for me? Also how do I talk about it with my friends and family?

Looking for Information on POTS Symptoms

Someone told me I have symptoms of POTS but don't know an awful low about what it is, the major symptoms or what the diagnostic process is like. If anyone is willing to share some info that'd be so appreciated (:

Tips for Traveling with POTS, Fibromyalgia, and IBS

I am traveling all day tomorrow with POTS, fibromyalgia, and IBS. Any tips or tricks for surviving multiple plane rides and airports??

Explaining Coat Hanger Pain to My Husband

how do I explain coat hanger pain to my husband and why do we get it?

Low cost ways to manage POTS in the heat?

do people have tips for low cost ways to manage POTS, especially in the heat? supplement brands, methods of cooling, adapting activities so I can do them without getting up and down, anything along those lines!

Looking for Advice on Getting a Cane

hey! so I'm looking into getting a cane. does anyone have advice? I'm unsure of a lot of things. for example, how to deal with stigma surrounding it, knowing how to find a good cane, or even knowing if it'll really help a lot. I've been struggling a lot with chronic pain in my joints and also pots stuff and feeling faint all the time. I'm hoping a cane will work? but I don't really know where to start.

Dealing with Postural Tachycardia on High Dose Meds

anyone else randomly get postural tachycardia even though on a high dose of meds to prevent it. like it's not all the time just randomly

Struggling with Weight Gain Despite Healthy Habits

Ok so I’ve started eating more, trying to get even more exercise, and drinking LOADS of water. I’m still gaining weight. I have gained 20 pounds since September and I am so upset about it. Someone recommended Pilates but my doctor said I shouldn’t do it because it’s to much of a risk with my POTS. I’m still eating less than the recommended amount of calories but it’s because I don’t have an appetite.

POTs and Heart Attack Symptoms

Hey POTs friends. I have experienced this a few times and wanted to know if anyone else has as well. I have almost this squeeze sensation and arm pain that feels like it could be a heart attack but it never actually is?