Tips for Preventing Burnout and Boosting Energy Levels

How do you help yourself not crash and how do you keep your energy up?

Seeking Treatment Options for POTS Diagnosis

my doctor has given me an informal diagnosis of POTS while awaiting confirmation from cardiology, but had told me there's no treatment other than increasing salt and fluid intake. is there really no medicines or other treatments I can try to make my symptoms manageable? I have multiple chronic illnesses so want to reduce the symptoms I can to help me cope with the ones I cannot

Seeking Diagnosis for POTS and EDS - Any Tips?

Hi POTS peoples! How many of you also have been diagnosed with EDS? And if you were, how did you get that diagnosed? I’m currently seeking a diagnosis, and I’ve found it’s very common to have both

Confused about POTS Diagnosis and Heart Rate Results

After diagnosing me with EDS my consultant said he thinks I have POTS. I had a 24hr ECG abd have just been told it was satisfactory despite my heart rate being 160 after standing. I'm confused... what does this actually mean?

Struggling with POTS Diagnosis: Will I Ever Feel Better?

I’ve recently been diagnosed with POTS and trying some lifestyle techniques to see if there’s any improvement. It feels like there is such a long journey ahead of me and it’s hard to keep positive. How likely is it that I will actually find a way to be okay again?

Seeking Relief for POTS Attacks While Traveling

What is the best way to help a pots attack. I’m out of town this weekend and have been having them a couple times a day for months now. But it’s really bothersome when I’m busy. How do you get them better/to stop?

Seeking Sedentary or Work from Home Job Recommendations with BA Degree

Any job recommendations? I'm hoping to find something that's very sedentary or work from home. I do have a BA.

Struggling with POTS and Dehydration Headaches

I can’t keep enough water down to manage my POTS and I keep getting dehydration headaches. Has anyone tried thick water? I want to see if it works before I resort to iv fluids

Struggling with Overdoing Workouts and Feeling Dizzy

How do you deal with getting dizzy at the gym and avoiding overdoing your workout? Sometimes I go in feeling superhuman and incredibly focused, but after I get done or close to the end of my cardio, I realize I've pushed myself way too hard and now I'm gonna feel bad for the rest of the day.

Seeking Advice on Using a Cane for Mobility

Any tips for someone just starting out using a cane? I'm new to mobility aids and any helpful advice is welcome. Using a cane has been great for my overall health and my legs, but my arms/ hands are suffering. Also, any cool queer, poc, and/or woman owned places to buy canes from?

Seeking Advice on Food Journal Apps for ADHD Management

Any good apps for food journal/ keeping track of symptoms? I've tried stuff like notion but I have ADHD and everything I've tried doesn't stick.

Recent Medical Diagnosis and Treatment

Where does this come from.? I was just recently diagnosed with this and I Thank the Lord I have a name for what's wrong with me. Which makes me feel better to at least have that answer. But now I have to wear compression socks which the Dr said would help the Blood flow. And of course, he went up in BP meds

Struggling to Stay Awake While Driving, Need Advice

I keep feeling like I’m going to fall asleep during the day to the point I can’t handle it anymore. It’s especially bad when I’m in the car, I can hardly keep my eyes open. (I don’t like to drive for long distances because of this) It’s almost like I’m awake but my body isn’t. Sometimes mom eyes are closed and I feel asleep but I hear the things around me- so I’m still conscious? What is this (is it normal?) and should I see a doctor of some sort?

How Does POTS Impact Your Moods?

Does POTS affect your moods?

Struggling with POTS and ADHD, Need Advice

Hello! I am new to this app and I am struggling. I was diagnosed with POTS in June 2022, cause they said unknown, possibly trauma. I was diagnosed with ADHD in January 2023. Now that I think about it, I have had both since at least High School (28 years old now) but chalked it up to anxiety. I'm currently taking prozac 40 mg, adderall XR 5mg and propranolol 60 mg daily in the morning. I am struggling mentally constantly with the ADHD and desperately need an effective dosage/medication. Upping my adderall increases my heart rate which exacerbates my POTS symptoms. The propranolol helps lower overall heart rate and POTS symptoms that come with high heart rate, but all symptoms remain otherwise. I have tried making life style changes but I cannot maintain any routine with the state my ADHD is in. Long story short, what I'm doing isn't working and my current POTS doctor isn't helping. Going to a new one in a few weeks, so I would like to go as prepared as possible with ideas. For those with POTS and ADHD: what works for you? what doesn't? any tips?

Hair Falling Out with Lupus or PCOS

Has anyone else with lupus or pcos started facing their hair fall out? It’s only a little but every time I touch my hair pieces fall out

Recommendations for Heart Rate Monitor Watch for POTS?

Does anyone use a heart rate monitor watch for POTS? If you do, which one would you recommend? Thanks 💕

Connecting with others experiencing similar health issues

Hi - I am looking to connect with people experiencing similar health issues and receiving similar treatments.

Diagnosed with Neurocardiogenic Syncope: Seeking Answers

i had my tilt table test yesterday and was diagnosed with neurocardiogenic syncope (vasovagal syncope). which, after 8-9 years of battling these symptoms and seeing doctors, i’m glad to finally have an answer, but it wasn’t the answer i was expecting and i have some questions i was hoping some of y’all might be able to answer. the diagnosis was vasovagal due to the presentation of hypotension during the tilt test, which from my understanding doesn’t occur in POTS (which is what i assumed i had before). but i’ve also read that POTS is daily and chronic whereas vasovagal is episodic, would someone be able to explain the difference? i guess i’m a little confused because my symptoms have been present every day since i was 13, and it’s had such a debilitating effect on my life so i’m wondering what the definition of “episodic” means in this context? if anyone has any insight into this diagnosis or what it may mean for the future, i’d love to hear it! it’s always helpful hearing from people going through or who have gone through similar things. thanks!

Do Compression Socks Help You Sleep Better?

Does anyone wear compression socks when they sleep, and have you noticed a benefit if you do?