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arevalentine

410d

hi newly diagnosed with pots, doctors told me basically nothing and gave me a pamphlet with basic information. I want to try keep my treatment drug free but I'm not sure what foods will help me maintain my condition as I also have prediabetes and a lot of food allergies/intolerances.

Top reply
    • Zemi

      410d

      People can different symptoms but for heat intolerance, avoid hot showers/baths or hotter weather if you can. For tachycardia, avoid caffeine. Sodas, energy drinks, and teas can have it. Meals rich in carbohydrates can be a trigger for some people. For low blood pressure, don't do a lot of standing. Sit somewhere, even if it's on the floor lol. I had to stand for an hour in line for urgent care and it was making me really symptomatic so I just said f*ck it I'll sit on the floor. Increasing fluid and salt intake can help but it doesn't for everyone. Salt helps you retain fluids. Like I said POTS symptoms can vary from person to person so it depends on what symptoms you have. Some of us had to be put on meds because diet and lifestyle changes just weren't enough.

    • JJULIET

      409d

      Drink water with ice in it, I always have a water bottle with ice water in it because it helps me cool off, and hydration is extremely important! Also, carrying around salty snacks. I don't have dietary restrictions, but lays potato chips always make me feel better during a POTS episode. Also, consider using mobility aids. I use a cane to get around big places and it helps a lot to have something to support myself with!

      • arevalentine

        409d

        @JJULIET i have a cane i use atm but the ice, is that to help the heat intolerance?

        • JJULIET

          409d

          @arevalentine for the most part yeah, i like to suck on ice cubes when I feel an episode coming on because it helps me cool off

    • kateafranklin

      409d

      a lo5 of people struggle with coffee, sodas, and energy drinks as it increases tachycardia. For me, I don’t notice much affect. However, focus on salty foods. Salt and vinegar chips, pickles, oh gosh I’m blanking but add salt to everything!!

      • arevalentine

        409d

        @kateafranklin what do pickles actually taste like? ive heard they were good but never had them

        • kateafranklin

          409d

          @arevalentine salt and sour. I’m personally not a fan of them but a lot of POTSIEs love them!

    • Loblolly

      410d

      I have POTS, I am not on any medication for it, and I am allergic/ sensitive to most everything! I am not prediabetic but my mother is with POTS and she has many options. I myself experience tons of nausea, so soda is an absolute must because of the carbonation. Obviously, there are other ways around that part with carbonated drinks without sugar. Lots of protein and green vegetables help and protein powder is my newly discovered super food that makes me feel like an almost human being again. As the other person said, salt is great. Literally amazing. I feel sick, salt tablets help, and so does a handful of popcorn (slightly healthier than potato chips in my mind). COMPRESSION SOCKS. I will always hype up compression socks, I am a third generation POTS and this is an absolute lifesaver. Obviously ask your doctor about the amount of pressure, but the higher the socks go (I recommend thigh), the better you will feel. It absolutely sucks in summer though since it’s hot with those socks, but that’s when POTS is the worst. Keeping your food consistent is a huge one with POTS. Routine is essential. Eat at the same time every day, keep it protein packed if you can. (I have a nut allergy so I struggle with getting enough protein.) And the most random advice: drink a glass of water before bed and one as soon as you wake up. I have absolutely no scientific backup on this but I swear it helps. Feel free to ask me any questions based off of food sensitivity/ allergies. I have gluten intolerance and nut, fruit, and half of vegetables allergies so I can almost guarantee I have some solutions!

      • arevalentine

        410d

        @Loblolly the soda for nausea i feel, especially when the emetophobia kicks in. Is there a specific protein powder you like or way of using it? I've never used it. Never knew about compression socks!! Gotta add them to my Amazon basket now. I hate how restricted diet is w so many intolerances and allergies, pretty sure the only fruit I can have is banana and kiwi as almost everything else is a no go.

        • kateafranklin

          409d

          @arevalentine Try Gatorade zero with protein! It takes awhile to dissolve but it works!

    • Zemi

      410d

      People can different symptoms but for heat intolerance, avoid hot showers/baths or hotter weather if you can. For tachycardia, avoid caffeine. Sodas, energy drinks, and teas can have it. Meals rich in carbohydrates can be a trigger for some people. For low blood pressure, don't do a lot of standing. Sit somewhere, even if it's on the floor lol. I had to stand for an hour in line for urgent care and it was making me really symptomatic so I just said f*ck it I'll sit on the floor. Increasing fluid and salt intake can help but it doesn't for everyone. Salt helps you retain fluids. Like I said POTS symptoms can vary from person to person so it depends on what symptoms you have. Some of us had to be put on meds because diet and lifestyle changes just weren't enough.

      • arevalentine

        410d

        @Zemi im w you on the heat intolerance, that is horrific cause sometimes I just wanna have a nice bath at night but have to keep the window open so it's freezing and not enjoyable. I really struggle with water intake but I'm trying the tamagotchi hack soon so hopefully it'll help. I never knew carbs could be a trigger that's defo smth to look for. ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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