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RainbowNarwhal

439d

Hi everyone! I've been dealing with pain and weird allergies for most of my life, but very recently discovered I have the EDS/POTS/MCAS trifecta. Basically just dealing with lots of pain, dizziness, and too many allergies! I'm hoping to find a community and maybe some advice. 😊

Top reply
    • Bijoux_bean22

      369d

      Welcome friends!

    • Bijoux_bean22

      369d

      Welcome friends!

    • lola_

      425d

      are you on allergy medication daily??

      • RainbowNarwhal

        425d

        @lola_ yeah, just Zyrtec (generic)

        • lola_

          424d

          @RainbowNarwhal oh for my pain im also taking low dose naltrexone and its been life changing for me. i've tried literally everything else for it and nothing else helped nearly as much as this. my pain doc said that people w eds respond well to LDN. but some doctors aren't educated on it and therefore wont prescribe it

        • lola_

          424d

          @RainbowNarwhal oh awesome me too. my allergist said up to 4 zyrtec a day is alright. just making sure it wasnt Benadryl or anything since it has risks and such

    • Zebragirl

      437d

      Hi, here for anything you need

    • Achilles22

      438d

      Is it okay if I also dm, as I have a lot of questiobs

      • Magpie42

        437d

        @Achilles22 sure!

    • Magpie42

      438d

      Welcome to the bendiest, itchiest, dizziest club you never wanted to be in. ❤️ My dms are always open for EDS questions.

    • Hamie

      438d

      Hello, feel free to message me anytime!

    • Alfubet

      439d

      Welcome! Feel free to message me anytime!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Many people with the EDS/POTS/MCAS trifecta have shared their experiences and found support in online communities. Some helpful tips include staying hydrated, using compression socks, managing allergies with antihistamines, and working with knowledgeable healthcare professionals. Connecting with others who share similar experiences can provide valuable insights and encouragement.

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