Does anyone else feel like their brain is cramping/burning after taking Sumatriptan?
How do I prevent migraines brought on by bad weather? I feel like most migraines can be somewhat prevented by avoiding triggers, but I can’t exactly avoid the weather and I don’t want to have to wait until I get an attack before I can do something about it. Sometimes the forecast will say no rain but it’ll be wrong so I can’t rely on that.
I am traveling all day tomorrow with POTS, fibromyalgia, and IBS. Any tips or tricks for surviving multiple plane rides and airports??
Does anyone else experience nausea every morning and waves of it throughout the day? Most days, I don't eat anything until maybe snacks at 3, then a meal at 10; either because i just havent been hungry, or because I've been too nauseous to force myself to eat. Am I alone?
Rheumatoid arthritis without rheumatoid factor
Ehlers-Danlos Syndrome (EDS)
Postural Orthostatic Tachycardia Syndrome (POTS)
Hi - I am looking to connect with people experiencing similar health issues and receiving similar treatments.
does anyone have a similar problem with them. my doctor says there migraines but I don't have headaches with them. I have staring spells to point I jus stare at the lights nd ceiling. even when I walk. I roll my eyes to back of my head nd that's what hurts me. I've Had a CT scan done of my head. I've also got an appointment for neurologist in May. but I'm wondering if anyone has any tips to stop them. my migraine meds I was given don't work. I wear a beanie hat to try nd stop the staring a little bit. nd I often stay in my room completely dark except for my TV being on. idk what it is or what more to do. any help would be much appreciated.
What are your best tips for getting through really high pain days?
Hi all not sure where to start, just reaching out for people in similar circumstances than me, in constant pain with very little support or help on how to manage and improve your life conditions ? Not sure if this is the right platform for this ?
one of the two conditions i was diagnosed with this week is hemiplegic migraines. i have chronic migraines and cluster headaches on a regular basis unfortunately, but this felt very different and honesty quite unnerving when it happened. and due to how scary the attack that i had recently was, and how it didn't feel like my normal migraines at all, i've started to form quite a bit of anxiety over having another attack. my doctor believes this is the second attack i've had in two months of this particular type of migraine, due to the stroke-like symptoms i had in december and again before i was admitted to hospital earlier this week. i don't really know what i'm asking in this post but i guess are there any good ways of staying calm when a hemiplegic migraine occurs? i think losing feeling in the right side of my body and not being able to talk or see anything properly, but without the usual migraine pain, really unnerved me. i've had aura without pain in the past but this felt different and i didn't feel in control of my body. and i think not being able to control my face and arm alarmed me. my doctor says hemiplegic migraines can present more intensely when you're ill and i've been severely anaemic and had a viral infection recently, but she said that it's likely i will continue to have these attacks but couldn't specify the frequency. i think that's what worries me.. i could be fine one second and then have an attack the next, especially if i'm at work where this would be a major issue. i'm sure i'll adapt like i have with other issues, i'm probably just worrying about it because it's different to every other migraine and headache i've had in the past.
Ive been dealing with migraines ever since i was young snd they have been getting worse. I havent found the cause of them yet and have been on beta blockers and preventative medication which have not worked and take sumatriptan during bad migraines which also doesnt not work. I have a very bad fear of veins and anything that is intravenous so i havent been able to get my blood drawn to test for anything. Is anybody else in this situation? My doctor says my current medication is the last resort for my age but it still isnt working.
Has anyone here been told that the neurology department no longer see anyone with chronic migraines? I was told 5 months ago I was being referred to neurology for mine, it never happened and today have been told that neurology no longer take referrals for people with migraines. The NHS website says otherwise though. Any help/advice would be much appreciated.
Has anyone noticed a mental health difference since taking topirimate? My general anxiety levels feel like they've gotten worse but this may be unrelated? Not too sure... just curious
hi! I'm new here. I was wondering if anyone has been on Amovig? my insurance finally let me see a neurologist and he put me on Amovig. I'm struggling with it. I was moved from the 70 to the 140 but I'm still getting migraines it's been about 7 months. I feel like I'm just being impatient but I'm also worried I'm not.
I noticed every time I get Botox I get migraines that same day and it lasts for 3 days. This is only my 2nd round…. Should I just stop taking botox for migraine? I’m currently on emgality too which helps a lot … any suggestions?
so im worried. got prescribed a sub-q med for chronic migraines, but what if it has adverse effects? one shot lasts a month
anyone take a autoinjector medication, and how do you get rid of the anxiety of taking it?
Hi all! I'm new to this app and I'm looking for some support; especially with chronic migraines and anxiety. How long have you guys been dealing with it?
Anybody got any hacks for daily migraines, I try to stay away from caffeine because of POTS, and I’ve tried the headache hats, I have an emergency med combination for bad ones since the tend to raise my BP to scary number but I don’t wanna use it if I don’t have too.
Anyone else feel like garbages after the pain of your migraine passes? I struggle with both silent and painful migraines, today I woke up in a lot of pain so I took ibuprofen and slept from the morning til six, the pain is gone but now I’m dealing with the yucky feeling of not eating all day, oversleeping, not drink any water all day.
Has botox injections helped any one? I have been on all kinds of medications with no relief. I have horrible migraines that last for days. I generally have to go to to my primary care physician for a tordol infection or to the er for what they call a migraine cocktail. Botox was the Dr's next suggestion so I'm just curious if it has helped anyone.
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)