Does anybody else pass out after eating a meal? It's like my body can only do one thing at a time, so when it's digesting, I'm just down for the count. Weirdly I also have severe sleep issues where I just never feel rested. Dunno if that's related though.
Does anyone else with M.E/any other conditions causing chronic fatigue, have times where your face and jaw just feel really weak? It makes me feel like I just can't talk and I start slurring my speech slightly. I don't know if it's just the autism though, that doesn't help with talking at all haha
Does anybody know any good ways to keep up with 3 meals a day with chronic fatigue? I need to keep my eating more regular, but it's difficult to do with so little energy and dizziness
i’m thinking of getting a wheelchair for very bad days to help me mobilise. should i?
Is anyone else's Overactive Bladder worse at night or while laying down? I pee gallons while asleep and can't keep anything dry. I don't think my doctors fully understand whats going on.
Postural Orthostatic Tachycardia Syndrome (POTS)
Malaise & Fatigue
does anyone know what would cause chronically high WBC? i have had high WBC for years consistently. i also tend to have high platelets. i don’t have any sort of autoimmune disease so i’m not sure what’s causing it. i recently got it done and it was extremely high but my doctor brushed it off saying if it’s a one time thing then it’s fine, but if it’s always that high, there’s a problem and i should see a hematologist. it’s always high so now i’m worried
Attention-Deficit Hyperactivity Disorder
Ehlers-Danlos Syndrome (EDS)
Anyone else struggle between ADHD/Depression differating and alongside that chronic fatigue? looking to improve my life but can't seem to get any energy.
just recently diagnosed with ME but suffering symptoms for years, has anyone else felt relief that they are actually diagnosed, and not just "lazy" like so many have assumed for so many years?
How do you deal with working through chronic fatigue. During this current time of economic hardship I need to work but my managers and staff really don't understand my needs. Any advice or documents you could recommend?
Has anyone had chronic fatigue from a very young age? I began suffering from it when I was around 10 years old and I have never met anyone else alike.
Hi 👋 I have M.E. and I think I have suffered my first relapse. I get confused with all the terminology, but basically, I am feeling more fatigued than usual, extreme pain in my joints....can't even lift a kettle. Have spent 3 days in bed resting. Does this sound familiar to anyone? Any ideas about what causes it? Thank you in advance x
I have CFS and because of that I spend 90% of my time wither asleep or in bed, unable to stand or do much. because of that I have a tin of simple hobbies. my most recent hyper focus has been Crochet. I'm making my Nana a blanket via crochet. what do you all do when stuck in bed?
Should I get a wheelchair? and do I need one? and am I aloud to use one? So I have Chronic fatigue really badly and regularly find a small trip to the shops 5 mins from my house for an hour knocks me out for three days and often in the way back i get supper dizzy and weal, i have collapsed because of this. Don't get me wrong I can stand and i can do everything but I can't do much. Should I use a wheelchair for bigger trips, like family holidays and large shopping trips? am I aloud? my dad doesn't think its necessary but my.mum is all for it, she thinks my dad just doesn't want to admit his 18 year old is chronically and ill and can't do much more than sleep for 12-24 hours, sit in bed and read or whatch TV/youtube and struggles to get downstairs.
Does anyone have experience seeing a Physiatrist for chronic pain?
I’m 19 and going to start using a cane soon. My chronic pain has been very quickly getting worse and worse and walking is very difficult lately. I have fibromyalgia, cfs/me and am hypermobile. I have really bad social anxiety because I am autistic and I’m very nervous about being young and using a cane in public. I’m worried about peoples’ judgements and questions and people staring. My mum is already saying that by getting a cane I’m “letting the disability win” and that people my age shouldn’t need to use a cane. It makes me feel so bad. Anyway, just wondering how others who use walking aids have dealt with these feelings.
If you are currently working: What is your severity level (mild/moderate/severe) & what is your job? 🌷💼
Visualization and guided imagery
Malaise & Fatigue
Disorder of Autonomic Nervous System
Just started daily guided imagery, paced breathing, and light stretching for my ME/CFS and can't tell if it's having good effects already or if I'm just having a really good symptom day lol, good days have been so few for me lately, feels nice Anyways definitely recommend these so far, calming the nervous system is a big part of symptom management for everyone with central sensitization 😊✨
I've been getting a lot of good help for my other conditions, but nothing specific for helping with ME. Does anyone have any treatments that have helped that I can recommend to my doctor? I haven't found any specialized help for this yet.
Anyone here from the UK and applied for a Blue Badge or PIP? If so, what were the assessments like? I have both coming up and don't know what to expect!
Irritable Bowel Syndrome with Constipation (IBS-C)
Hi all, this is my first post, though I've commented on a few, but just wanted to introduce myself. I have a lot of conditions including fibromyalgia, ME, depression & SAD, anxiety, severe sleep apnea, gynecologic issues including fibroids, adenomyosis and endometriosis and severe chronic constipation IBS. very few in my life understand so I'm hoping to find people to talk to who actually understand one or more of these conditions. so how *waves*
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)