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wacky

35d

How do you manage your Chronic Fatigue Syndrome? How long have you been dealing with it? Have you found anything that helps?

    • wacky

      35d

      I am new here & have been dealing with CFS since 2018. I have an internist that sees me every 3 months mainly for Diabetes 2 but will TRY to answer about CFS but mainly says work on what is most important at that given time. So mostly any MD's I have seen have no clue what to do for me. In reading everyone's posts I see depression is a big factor. I was never confirmed about that. Although in 2010 I remarried after 35 years on my own (I married right out of highschool to a verbally & physically abusive man). In 2012 I found that my husband was seeing other women. I was devastated,! So maybe I am in denial as far as depression goes. Regardless I am on a mild med. Mainly I have a routine with my meds and vitamins and supplements. I work hard to eat healthy but I am pretty sedentary. My chronic fatigue syndrome started out with me feeling unsteady and like I was losing the ability to walk. I am retired and live at home with my dog. My second husband and I are still married. He lives hundreds of miles away but comes to visit every other month. I haven't gotten divorced because it was hard enough for my first divorce! My second husband does help me a lot when he comes in. I need anyone's input as far as what I need to be doing because what I'm doing just isn't working. My quality of life really sucks right now. I'm sure that has to do with totally me.

      • wacky

        35d

        @wacky In reading my post I need to let you know I'm not asking for your help as far as my quality of life, no divorce, but what I do need is what has worked for you. What have your doctors tried with you that has worked? What have you tried for yourself that has worked? Up until now most people have no idea what CFS is! So I have been in the dark pretty much of the time! I would appreciate anything anything that you can advise me to do. Thanks so much! ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One person mentioned that they manage their Chronic Fatigue Syndrome (CFS) by being diligent about noticing where their energy goes and planning deliberate "downtime" regularly. They also have a list of things that help them feel as "rested" as possible, such as meditation, listening to binaural beats or ambient music, slow gentle stretching, or sitting outside in the sunshine. Another person suggested keeping fluids up, raising legs when chilling out for better circulation, keeping the mind active with games and movies, and resting until rehydrated. One person found relief through Transcranial Magnetic Stimulation, which helped with brain fog and motivation. They've been dealing with CFS for about ten years.

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