Has anyone had any luck with numbing cream or topical pain relief on HS flares?
What kind of antibiotics are you prescribed when you have a flare? Are there any other meds you take at those times? Are they effective? Not including biologics. I did a trial run of Humira many years ago. I've tried a couple and then end up developing allergies to some. I currently take Azithromycin 250mg. It seems to only be mildly effective. I also have Clindamycin topical, but I don't think I've used it so I don't know if it is effective or not.
HS & PCOS- I know they are comorbid in many cases. They are for me. Anyone else have these two? How do they work in your body? Does one trigger the other? Are they related? I find I get some of my worse HS flares around my period. Which is never at a good time or a regular time. How do yours interact and how do you deal?
What prescription meds do you take for your HS? What works best for y’all? I used to take Humira many years ago and it helped but it was too hard to stab myself with it. I'm now on Azithromycin only 3x a week for prevention since I'm allergic to most classes of antibiotics. And now added clindamycin lotion. Anyone use these and had luck? Or luck with anything?
Hi all. I just officially got my hidradenitis suppurativa diagnosis about a week ago, although I’ve suspected it for a while and think I’ve had it since I was 12. I’m 30 now. Does anyone have any tips for someone recently diagnosed? I’m currently looking for good skin care products, especially a deodorant or another way to keep my underarms, where my flareups are worst, from stinking. I have odd sores all over my body, not just my underarms and other common HS places, but the doctor said something about a follicular occlusion tetras of conditions that includes HS and could explain those.
What do you use for bandaging when it comes to your thighs? How do you get something to drain when it is being hella stubborn? Flaring to the max, out of options/not sure how to proceed.
What do you consider to be a “flare” with your HS? Is it in one spot, or in a few spots? Or is it based on how bad or painful they are? When you’re not in a “flare” do you still have some spots or are they completely gone? For me even when I’m not having a flare, I still have at least one or two at all times somewhere on my body, they’re just less inflamed than others. Just curious about other people’s experiences.
I was just wondering how y'all were explained what HS is cuz I still really don't understand it. I was told that the HS causes yeast, which cause boils & when they burst it causes yeast, so to me that sounds like a never ending cycle. I have been living with (or at least diagnosed with) HS for a couple of years now. I have breakouts quite frequently & use Nystatin powder but I still don't really understand it plz help.
So I just found out HS (hidredenitis suppurativa) is caused by inflammation. And I probably can't take humira however I am watching videos on YouTube about meal prep for anti-inflammatory foods. I may have to give up a lot but it would be worth not having to live with this pain anymore. Lacey Baier with a 5 day anti-inflammatory diet meal plan is what I'm watching now. I'm hoping this helps me and maybe some of you. Gonna talk with my doctor about it too as should you. much love! may the Lord be with you <3
Those that get HS in groin/thighs area: how do you deal with chafing, sweating in the summer, etc? I wear spandex under dresses and skirts and don’t wear shorts with super short inseams. But the spandex also makes me warmer and sweatier?? Not sure what to do. I’d like to like “air it out” more because I’m a sweaty person in general bc of medication I’m on, but then my thighs rub together which was already painful and irritating before HS started.
Hi could anyone share some tips on how to dress area that are difficult to do so(which are affected by your HS)? context: I'm afab and I have an affected area on my chest in between my breasts and the adhesive of bandaids gets worn down by the pus/drainage and probably sweat does this as well. It's been frustrating me. I'd appreciate any advice ☺️
What are you currently using for pain, for new flares? And how was your day today?!
hello, I was wondering what stages you all might be in with hidradenitis supperativa. I am going to a specialist for the first time this week. I am both excited and terrified. my surgeon diagnosed me last year, but I have suffered since 2006.
I’m really insecure about this and I need to know some ways to get rid of this I also want to know how did I get this a such a young age
so I had a boil in my groin area that I tried everything on but it never came to a head. it has since gotten smaller but I can still feel it underneath the skin. yesterday a new boil popped up in my groin area 🙄😔. it's not too far from the other one,but it's so painful today. a little drainage but nothing since 🥺🥺 help me
What body washes and natural supplements are there to help and prevent hs boils?
has anyone has luck getting disability? if so, what state? was it a difficult process? any advice for me? I'm in Indiana
I am trying to wrap my sore after triple antibiotic ointment and putting gauze. I'm not so good at it and it is in an awkward position on my thigh. anyone have any tips? should I seek a personal care assistant or a nurse that can visit me?
My HS rarely drains and usually stays under my skin when it gets super swollen. Are there any topical treatments you guys have tried for HS spots that don't drain?
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