See Alike in...

Alike App

Browser

HSCookie

708d

hello, I was wondering what stages you all might be in with hidradenitis supperativa. I am going to a specialist for the first time this week. I am both excited and terrified. my surgeon diagnosed me last year, but I have suffered since 2006.

Top reply
    • midgirl

      302d

      I have stage 3 as well and have also suffered since 2006. I just realized not too long ago that I've been dealing with this for over half my life...damn! It has been intense, lonely, and paralyzing at times. I was put through the ringer trying to get diagnosed, my mom took me to like 3 physicians, 2 obgyns, 3 dermatologists and the last time I saw a dermatologist was many years ago because he told me to " ride out the pain" when I went in to lance a cyst because it was located on my tail end and I couldn't do anything without severe pain. So I'm glad you found a specialist. How did it work out for you.

    • midgirl

      302d

      I have stage 3 as well and have also suffered since 2006. I just realized not too long ago that I've been dealing with this for over half my life...damn! It has been intense, lonely, and paralyzing at times. I was put through the ringer trying to get diagnosed, my mom took me to like 3 physicians, 2 obgyns, 3 dermatologists and the last time I saw a dermatologist was many years ago because he told me to " ride out the pain" when I went in to lance a cyst because it was located on my tail end and I couldn't do anything without severe pain. So I'm glad you found a specialist. How did it work out for you.

    • ET104

      589d

      Stage 3, also. Currently hoping Remicade and lifestyle changes can keep it in remission enough so I can raise my children and continue working.

    • chowdahead23

      593d

      I didn't know there were stages. I will research... I'm newly diagnosed.... The first doctor gave me differin. The second doc said I had dry skin and use coconut oil. I asked for a dermatologist referral and he said HS and I can manage it! I am only a few weeks in the medicine and it'll take a bit they say for good results. I am hopeful.

    • GoldTransMan

      643d

      I have been in hurley 3 for about 8 years, now. I'm glad you found a specialist! It took me a LOOONG time to fi d a dr who was even a *little* knowledgeable on HS. I'm glad I found my Dermatologist, she also specializes in HS (specifically, atypical presentations). If I had one more medical professional tell me I had "the worst case of folliculitis" they'd ever seen, I was gonna start drop kicking people. 🤣

    • JennySue

      696d

      Stage 3 / it has been so hard - my skin is incredibly painful but humira does help and my physician has been wonderful.

      • Ashley92

        696d

        @JennySue Does the humira have sife effects?

        • JennySue

          696d

          @Ashley92 so the only side effect I see is I can tell my immunity is down. When I am near my nieces I will catch any cold they have. I supplement with immune boosters. I mask (a lot).

    • GaymerGirl96

      701d

      Stage 3 baby, it isn’t fun

      • HSCookie

        701d

        @GaymerGirl96 oh my. I am sorry to hear that. I am stage 2 currently, but It has been progressing lately. I wish there was something that really worked for us.

        • GaymerGirl96

          700d

          @HSCookie Humira seems to be working for me as of now!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion