Seeking advice on Hidradenitis Supperativa

I have stage 3 as well and have also suffered since 2006. I just realized not too long ago that I've been dealing with this for over half my life...damn! It has been intense, lonely, and paralyzing at times. I was put through the ringer trying to get diagnosed, my mom took me to like 3 physicians, 2 obgyns, 3 dermatologists and the last time I saw a dermatologist was many years ago because he told me to " ride out the pain" when I went in to lance a cyst because it was located on my tail end and I couldn't do anything without severe pain. So I'm glad you found a specialist. How did it work out for you.

Stage 3, also. Currently hoping Remicade and lifestyle changes can keep it in remission enough so I can raise my children and continue working.

I didn't know there were stages. I will research... I'm newly diagnosed.... The first doctor gave me differin. The second doc said I had dry skin and use coconut oil. I asked for a dermatologist referral and he said HS and I can manage it! I am only a few weeks in the medicine and it'll take a bit they say for good results. I am hopeful.

I have been in hurley 3 for about 8 years, now. I'm glad you found a specialist! It took me a LOOONG time to fi d a dr who was even a *little* knowledgeable on HS. I'm glad I found my Dermatologist, she also specializes in HS (specifically, atypical presentations). If I had one more medical professional tell me I had "the worst case of folliculitis" they'd ever seen, I was gonna start drop kicking people. 🤣