E_belli

197d

What prescription meds do you take for your HS?

What works best for y’all?

I used to take Humira many years ago and it helped but it was too hard to stab myself with it. I'm now on Azithromycin only 3x a week for prevention since I'm allergic to most classes of antibiotics. And now added clindamycin lotion. Anyone use these and had luck? Or luck with anything?

Adalimumab

Clindamycin

Nausea and Vomiting

Zithromax • Type: Oral

Doxycycline

Azithromycin

Hidradenitis Suppurativa (HS)

Spironolactone

Chronic Nausea and Vomiting

Hyperhidrosis

Chronic Restlessness and Agitation

Humira • Type: Injectable

Clindamax • Type: Topical

View all
  • Meep_Meep

    197d

    Ask your doctor about stelara, I’ve been on it and it helps

    • E_belli

      196d

      I will. Is it also an injection? Thanks!

  • BeeDandelion

    197d

    I get botox injected in my armpits ~2x a year and then if I have a flare I wash with benzoyl peroxide and apply clindamycin

    • E_belli

      196d

      the botox for overall prevention?

  • BeeDandelion

    186d

    I use it for both prevention/to help hyperhidrosis and HS

  • Nicolep22

    163d

    I’ve just started using clindamycin within the last two months and it helps a lot. I’ve been using a gel but I’m so glad I have it. I’m also on doxycycline which has helped tremendously.

    • msmimi

      128d

      did Doxycycline ever make you really sick like puking/nausea?

      • Nicolep22

        114d

        no I haven’t had that issue.

    • E_belli

      110d

      I thought but doxy worked really well too, but I got hives so had to stop. At what stage do you put the clinda on? Like when it first starts or when it's an active flare?

  • Keweenawqueen

    161d

    My doctor told me if everything fails that Botox can help prevent them because it shuts down the sweat glands

    • E_belli

      110d

      good to know! Thanks. Do you by chance know if it is commonly covered by insurance?

  • glitterpears

    158d

    Hey, sorry that this is such a delayed response to your post - i started taking lymecycline and it’s really helped my flares. I was diagnosed with Hurley Stage 3 and although i do still flare the amount of spots i get are reduced by about 75%, hope this helps 😊

    • E_belli

      110d

      sokay! I am just logging back on 🙃 is that an antibiotic in the doxycycline family I would guess? I'm so glad it is helpful! Do you take it when you start flaring or do you take it as like a preventative measure?

  • spookyspoonie

    128d

    I cant do antibiotics frequently because of my crohns, but I take doxycycline if I'm in a massive flare. I wash with Hibiclens at least once a day as infection prevention. I do Clindamycin cream if it gets infected (usually doesn't because of the hibiclens). I do steroid injections into masses that don't heal on their own. And when I have the money for it, I have my chiropractor use his Grade 4 Medical Laser on areas of active inflammation. I've had golf ball sized cysts, that would normally take 6+ months to fully heal with steroids & antibiotics, treated with that laser and had them fully heal in 2 weeks. Its a freaking miracle light of something, I swear

    • spookyspoonie

      128d

      I am unable to do any biologic treatments because of the severity of my MECFS. But what I'm doing for my HS is working really well for now

    • E_belli

      110d

      my dermatologist didn't necessarily tell me not to do hibiclens but kind of said it wasn't necessary. But I always thought it was helpful! Especially to prevent it. I may go back go that cuz it was effective. Steroids are how my very first abscess was treated and when I was diagnosed. I had about a golf ball size too and couldn't put my arm down so the steroids were amazing and I wasn't in extreme pain. I never happen to go when I'm flaring that bad. I haven't heard of the grade 4 medical laser! I'll have to do some research! I'm all about the miracle treatments lol!

      • spookyspoonie

        107d

        my dr didn't recommend the hibiclens- someone here on Alike did. And thank god for that because it's been the best thing for my skin. After a few months of using it on my own, my dermatologist prescribed it

  • Soskae

    110d

    Spironolactone has been my absolute savior. It has seriously taken my flares from constant angry Yellowstone chambers to one or two individual boils a month. The caveat is you can only take it if you were AFAB and not trying to get pregnant.

    • E_belli

      110d

      I did not know that would work for HS. A hella long time ago I took Spironolactone for my PCOS, which if I remember correctly helped I think with hair growth or acne or something to that effect. And that is a big difference in flares! Which would be so nice! I'm glad it is working for you! Do you get that from a dermatologist or endocrinologist? Or PCP?

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