I used to take Humira many years ago and it helped but it was too hard to stab myself with it. I'm now on Azithromycin only 3x a week for prevention since I'm allergic to most classes of antibiotics. And now added clindamycin lotion. Anyone use these and had luck? Or luck with anything?
I’ve just started using clindamycin within the last two months and it helps a lot. I’ve been using a gel but I’m so glad I have it. I’m also on doxycycline which has helped tremendously.
I thought but doxy worked really well too, but I got hives so had to stop. At what stage do you put the clinda on? Like when it first starts or when it's an active flare?
Hey, sorry that this is such a delayed response to your post - i started taking lymecycline and it’s really helped my flares. I was diagnosed with Hurley Stage 3 and although i do still flare the amount of spots i get are reduced by about 75%, hope this helps 😊
sokay! I am just logging back on 🙃 is that an antibiotic in the doxycycline family I would guess? I'm so glad it is helpful! Do you take it when you start flaring or do you take it as like a preventative measure?
I cant do antibiotics frequently because of my crohns, but I take doxycycline if I'm in a massive flare. I wash with Hibiclens at least once a day as infection prevention. I do Clindamycin cream if it gets infected (usually doesn't because of the hibiclens). I do steroid injections into masses that don't heal on their own. And when I have the money for it, I have my chiropractor use his Grade 4 Medical Laser on areas of active inflammation. I've had golf ball sized cysts, that would normally take 6+ months to fully heal with steroids & antibiotics, treated with that laser and had them fully heal in 2 weeks. Its a freaking miracle light of something, I swear
my dermatologist didn't necessarily tell me not to do hibiclens but kind of said it wasn't necessary. But I always thought it was helpful! Especially to prevent it. I may go back go that cuz it was effective. Steroids are how my very first abscess was treated and when I was diagnosed. I had about a golf ball size too and couldn't put my arm down so the steroids were amazing and I wasn't in extreme pain. I never happen to go when I'm flaring that bad. I haven't heard of the grade 4 medical laser! I'll have to do some research! I'm all about the miracle treatments lol!
my dr didn't recommend the hibiclens- someone here on Alike did. And thank god for that because it's been the best thing for my skin. After a few months of using it on my own, my dermatologist prescribed it
Spironolactone has been my absolute savior. It has seriously taken my flares from constant angry Yellowstone chambers to one or two individual boils a month. The caveat is you can only take it if you were AFAB and not trying to get pregnant.
I did not know that would work for HS. A hella long time ago I took Spironolactone for my PCOS, which if I remember correctly helped I think with hair growth or acne or something to that effect. And that is a big difference in flares! Which would be so nice! I'm glad it is working for you! Do you get that from a dermatologist or endocrinologist? Or PCP?
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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E_belli
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What prescription meds do you take for your HS?
What works best for y’all?
I used to take Humira many years ago and it helped but it was too hard to stab myself with it. I'm now on Azithromycin only 3x a week for prevention since I'm allergic to most classes of antibiotics. And now added clindamycin lotion. Anyone use these and had luck? Or luck with anything?
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Adalimumab
Clindamycin
Nausea and Vomiting
Zithromax • Type: Oral
Doxycycline
Azithromycin
Hidradenitis Suppurativa (HS)
Spironolactone
Chronic Nausea and Vomiting
Hyperhidrosis
Chronic Restlessness and Agitation
Humira • Type: Injectable
Clindamax • Type: Topical
Meep_Meep
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision