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E_belli

573d

What prescription meds do you take for your HS? What works best for y’all? I used to take Humira many years ago and it helped but it was too hard to stab myself with it. I'm now on Azithromycin only 3x a week for prevention since I'm allergic to most classes of antibiotics. And now added clindamycin lotion. Anyone use these and had luck? Or luck with anything?

    • Soskae

      487d

      Spironolactone has been my absolute savior. It has seriously taken my flares from constant angry Yellowstone chambers to one or two individual boils a month. The caveat is you can only take it if you were AFAB and not trying to get pregnant.

      • E_belli

        486d

        @Soskae I did not know that would work for HS. A hella long time ago I took Spironolactone for my PCOS, which if I remember correctly helped I think with hair growth or acne or something to that effect. And that is a big difference in flares! Which would be so nice! I'm glad it is working for you! Do you get that from a dermatologist or endocrinologist? Or PCP?

    • spookyspoonie

      505d

      I cant do antibiotics frequently because of my crohns, but I take doxycycline if I'm in a massive flare. I wash with Hibiclens at least once a day as infection prevention. I do Clindamycin cream if it gets infected (usually doesn't because of the hibiclens). I do steroid injections into masses that don't heal on their own. And when I have the money for it, I have my chiropractor use his Grade 4 Medical Laser on areas of active inflammation. I've had golf ball sized cysts, that would normally take 6+ months to fully heal with steroids & antibiotics, treated with that laser and had them fully heal in 2 weeks. Its a freaking miracle light of something, I swear

      • E_belli

        487d

        @spookyspoonie my dermatologist didn't necessarily tell me not to do hibiclens but kind of said it wasn't necessary. But I always thought it was helpful! Especially to prevent it. I may go back go that cuz it was effective. Steroids are how my very first abscess was treated and when I was diagnosed. I had about a golf ball size too and couldn't put my arm down so the steroids were amazing and I wasn't in extreme pain. I never happen to go when I'm flaring that bad. I haven't heard of the grade 4 medical laser! I'll have to do some research! I'm all about the miracle treatments lol!

        • spookyspoonie

          484d

          @E_belli my dr didn't recommend the hibiclens- someone here on Alike did. And thank god for that because it's been the best thing for my skin. After a few months of using it on my own, my dermatologist prescribed it

      • spookyspoonie

        505d

        @spookyspoonie I am unable to do any biologic treatments because of the severity of my MECFS. But what I'm doing for my HS is working really well for now

    • glitterpears

      535d

      Hey, sorry that this is such a delayed response to your post - i started taking lymecycline and it’s really helped my flares. I was diagnosed with Hurley Stage 3 and although i do still flare the amount of spots i get are reduced by about 75%, hope this helps 😊

      • E_belli

        487d

        @glitterpears sokay! I am just logging back on 🙃 is that an antibiotic in the doxycycline family I would guess? I'm so glad it is helpful! Do you take it when you start flaring or do you take it as like a preventative measure?

    • Keweenawqueen

      537d

      My doctor told me if everything fails that Botox can help prevent them because it shuts down the sweat glands

      • E_belli

        487d

        @Keweenawqueen good to know! Thanks. Do you by chance know if it is commonly covered by insurance?

    • Nicolep22

      540d

      I’ve just started using clindamycin within the last two months and it helps a lot. I’ve been using a gel but I’m so glad I have it. I’m also on doxycycline which has helped tremendously.

      • E_belli

        487d

        @Nicolep22 I thought but doxy worked really well too, but I got hives so had to stop. At what stage do you put the clinda on? Like when it first starts or when it's an active flare?

      • msmimi

        505d

        @Nicolep22 did Doxycycline ever make you really sick like puking/nausea?

        • Nicolep22

          491d

          @msmimi no I haven’t had that issue.

    • BeeDandelion

      563d

      I use it for both prevention/to help hyperhidrosis and HS

    • BeeDandelion

      573d

      I get botox injected in my armpits ~2x a year and then if I have a flare I wash with benzoyl peroxide and apply clindamycin

      • E_belli

        573d

        @BeeDandelion the botox for overall prevention?

    • Meep_Meep

      573d

      Ask your doctor about stelara, I’ve been on it and it helps

      • E_belli

        573d

        @Meep_Meep I will. Is it also an injection? Thanks!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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