See Alike in...

Alike App

Browser

E_belli

473d

HS & PCOS- I know they are comorbid in many cases. They are for me. Anyone else have these two? How do they work in your body? Does one trigger the other? Are they related? I find I get some of my worse HS flares around my period. Which is never at a good time or a regular time. How do yours interact and how do you deal?

Top reply
    • E_belli

      400d

      @ChrissyPanda it is sooo very difficult bc triggers age different for everyone!

    • ChrissyPanda

      402d

      I have both and trying to figure out what trigger the HS 😭

      • E_belli

        400d

        @ChrissyPanda it is sooo very difficult bc triggers age different for everyone!

    • Swagmantha

      471d

      I have both and I never knew they were connected! that is wild

      • E_belli

        464d

        @Swagmantha I only found out recently! And I really dug into research and there is a TON of overlap. Like a ton that I never would have thought about! But now makes a lot of sense bc hormones suckkkkkk. And I wonder how penis owners flare since no period/PCOS and totally diff hormones.

    • Phy201

      472d

      I have both. HS is worse around my period (when I used to have one). I don't have periods anymore due to birth control and skipping the plesabo week. I also take spironolactone for the HS which has helped a huge amount. When I had covid my hs flared worse then ever in my life and has been a pretty big issue since. 🙃

      • E_belli

        464d

        @Phy201 there were about 3 years where I collectively had like 4 periods in that time and they were not more than 3 days a long. My body almost would act like it was starting during this time but never actually bleeding. Just all the other symptoms. And I don't remember my HS any better. Or worse I suppose. Did your derm prescribe spiro? I did actually hear that about COVID! Mine did too! My flares something terrible for the 2 weeks I was sick but it went back to their normalness after I got better. At least.. If I remember correctly it was a year ago so I could be wrong. Without your period, does it flare less around the time it would usually come? Or just a different cycle?

    • Samahe

      472d

      ✋yes. I have both.

      • E_belli

        464d

        @Samahe do they fit together? Like one triggers the next? Or are they just random?

    • ghostcake

      473d

      I’m wondering if the increased prostaglandin production (increased inflammation) during period could be an explanation for why periods trigger it for you

      • E_belli

        464d

        @ghostcake I've heard something like that before about the hormones. Do you see a specific specialty of Dr for your HS/PCOS?

    • ghostcake

      473d

      Elevated androgens contribute to HS. I also think my insulin resistance (now T2 diabetes) also heavily contributes because when I don’t manage it well I get flares (idk why exactly but inflammation is definitely an important factor)

      • E_belli

        470d

        @ghostcake were you diagnosed with PCOS or diabetes first? I also have insulin resistance and now now prediabetes. I know my androgens were wayy out of whack when I was first diagnosed (13 years ago) but I haven't been to an endocrinologist since then. So idk. But back then I was on spironolactone which I've heard helps both HS and PCOS. But idk what doc to talk to about that. I am having a a terrible flare right now- I think I have 10 moderate to severe spots at this moment ranging from an inflamed quarter to an oversized golf ball. I just had to start my antibiotics that I keep around that I try not to use. I'm not scheduled to see my derm until June!

    • Wild_Child

      473d

      I have both PCOS and HS

      • E_belli

        473d

        @Wild_Child do you take any meds for either? My derm mentioned putting me on birth control but I really don't want to put my body thru that. I just started taking azithromycin yesterday in hopes that it clears up bc I only have 15 pills haha.

      • Wild_Child

        473d

        @Wild_Child Get more flares of my HS around my period

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Some individuals with PCOS have mentioned experiencing HS flare-ups, particularly around their period. It has been observed that stress and anxiety can worsen both conditions. However, experiences may vary from person to person, and it is essential to consult a healthcare professional for personalized advice on managing these conditions.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion