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E_belli

1y ago

HS & PCOS: How Do They Interact?

HS & PCOS- I know they are comorbid in many cases. They are for me. Anyone else have these two? How do they work in your body? Does one trigger the other? Are they related? I find I get some of my worse HS flares around my period. Which is never at a good time or a regular time. How do yours interact and how do you deal?

Your answer

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ChrissyPanda

1y ago

I have both and trying to figure out what trigger the HS 😭
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E_belli

1y ago

it is sooo very difficult bc triggers age different for everyone!
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Swagmantha

1y ago

I have both and I never knew they were connected! that is wild
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E_belli

1y ago

I only found out recently! And I really dug into research and there is a TON of overlap. Like a ton that I never would have thought about! But now makes a lot of sense bc hormones suckkkkkk. And I wonder how penis owners flare since no period/PCOS and totally diff hormones.
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Phy201

1y ago

I have both. HS is worse around my period (when I used to have one). I don't have periods anymore due to birth control and skipping the plesabo week. I also take spironolactone for the HS which has helped a huge amount. When I had covid my hs flared worse then ever in my life and has been a pretty big issue since. 🙃
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E_belli

1y ago

there were about 3 years where I collectively had like 4 periods in that time and they were not more than 3 days a long. My body almost would act like it was starting during this time but never actually bleeding. Just all the other symptoms. And I don't remember my HS any better. Or worse I suppose. Did your derm prescribe spiro? I did actually hear that about COVID! Mine did too! My flares something terrible for the 2 weeks I was sick but it went back to their normalness after I got better. At least.. If I remember correctly it was a year ago so I could be wrong. Without your period, does it flare less around the time it would usually come? Or just a different cycle?
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Samahe

1y ago

✋yes. I have both.
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E_belli

1y ago

do they fit together? Like one triggers the next? Or are they just random?
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ghostcake

1y ago

I’m wondering if the increased prostaglandin production (increased inflammation) during period could be an explanation for why periods trigger it for you
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E_belli

1y ago

I've heard something like that before about the hormones. Do you see a specific specialty of Dr for your HS/PCOS?
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ghostcake

1y ago

Elevated androgens contribute to HS. I also think my insulin resistance (now T2 diabetes) also heavily contributes because when I don’t manage it well I get flares (idk why exactly but inflammation is definitely an important factor)
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E_belli

1y ago

were you diagnosed with PCOS or diabetes first? I also have insulin resistance and now now prediabetes. I know my androgens were wayy out of whack when I was first diagnosed (13 years ago) but I haven't been to an endocrinologist since then. So idk. But back then I was on spironolactone which I've heard helps both HS and PCOS. But idk what doc to talk to about that. I am having a a terrible flare right now- I think I have 10 moderate to severe spots at this moment ranging from an inflamed quarter to an oversized golf ball. I just had to start my antibiotics that I keep around that I try not to use. I'm not scheduled to see my derm until June!
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Wild_Child

1y ago

I have both PCOS and HS
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E_belli

1y ago

do you take any meds for either? My derm mentioned putting me on birth control but I really don't want to put my body thru that. I just started taking azithromycin yesterday in hopes that it clears up bc I only have 15 pills haha.
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Wild_Child

1y ago

Get more flares of my HS around my period

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