Hey guys, my sister found out she had fibromyalgia and I'm going to talk to my doctor about it as I have been seeing a doctor for years trying to figure out what's wrong with me. My question is, what is your experience with doctors and Fibromyalgia? I know some don't even believe in it.
can you have a fibro flare up with out actual pain ? we had a TERRIBLE thunderstorm last night had no power all night long. I didn't sleep well I was anxiety ridden still am. and I woke up this morning with almost like " flu like " symptoms nauseous stomachache headache extreme brain fog fatigue feeling weak feeling sad/depressed anxouis pressure feeling in my head just not feeling right or good.
My doctor has suggested using medicinal cannabis for my chronic pain and fibromylagia. Has it helped for others? and any major side effects I should know about?
How do I get more energy to do things? I'm so tired all the time or lack motivation.
I applied for a national disability card today and got it. It was quite stressful to apply for though. I don’t really understand the benefits of the card as in discounts/skipping queues. Does it mean whoever is with me can skip the queue too or do they need a carer card. I can’t keep researching it because it’s so stressful so if anyone understands the benefits then please explain it to me, thanks 😊 I also applied for a blue badge for disabled parking for my physical disabilities so hopefully I get that because it would really help to not have to park far away and walk ages 🤞🏼 but I’m also quite anxious about if I do get that because I’ve heard stories of random people confronting disabled people and saying horrible things for them parking in the disabled bay because their disability isn’t visible.
How much memory loss/ forgetfulness is normal for Fibromyalgia? I know brain fog is a symptom, but it feels like I'm forgetting more and more longer term memories AND shorter term memories. I look at pictures I've taken and either can't remember at all, it's foggy, or I only remember pieces. There's very few memories I can remember pretty clearly. I have a doctor appointment in about a week to talk about it, but I was wondering how much is normal?
what medication are you taking, what have you tried and what works well in your opinion?
Am in a shop. No where to sit and with no mobility aids available for use. Not sure what to do. My pain is killing. Any tips?
Does anyone experience their legs going purple and discoloured when they sit no matter what positions they try? It's just really annoying. I find that when it happens I generally feel a little light headed when I do stand up. Not a clue what's causing it. Doctor said could just be how I sit so I've tried multiple positions and the same thing happens. The same thing also happens if I stand too long my lower legs and feet go purple and I get dizzy.
does anyone have chronic pain that they had before the fibro started that got worse with the fibro? i've had pain in both my hips, knees, and wrists since at least high school and they all got worse when my fibro started but i know the fibro didn't cause them.
Does anyone have any tips for dealing with feet burning at night? I use a cooling spray on them when I go to bed but the effects don't last for long.
I've been having an issue where every morning about an hour after I wake up I start having pretty extreme pain that lasts all day. I was wondering if anybody else experiences this and if there's a good scientific explanation as to why even if I wake up and no pain without fail an hour later I'm in pain?
Does anyone have any tips for dizziness? I'm literally in college right now and feel so dizzy but have next to nothing on me. I'm sitting down but there's not much else I can do. Any ideas?
Can anyone recommend any medications to ask my doctor about? Paracetamol rarely ever even touches my chronic pain so I have codeine for when it gets extremely bad but I have nothing for those middle ground days where I'm definitely in tons of pain but it's not enough to take the codeine.
I am traveling all day tomorrow with POTS, fibromyalgia, and IBS. Any tips or tricks for surviving multiple plane rides and airports??
Do you guys have any tips for when you feel faint and very fatigued when standing is your only option?
does anyone else procrastinate doing chores because of chronic pain?
How did you find out you had fibromyalgia?
I am seeing a new doctor on Tuesday (a new primary care). Seems like a good time reassess how I’m managing my health. I want to stop taking lyrica, but that combined with naltrexone is the only thing that has come remotely close to managing my fibro pain. Are there any vitamins or supplements or natural/homeopathic things that have helped y’all in place of lyrica that I can talk to the doc about? Or any lifestyle changes (diet, specific types of PT, etc.). I can’t afford acupuncture right now, but do see a chiropractor regularly.
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Anxiety (Including GAD)