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Babegirl2012

348d

How did you find out you had fibromyalgia?

Top reply
    • faerywyrm

      40d

      Once I could barely get around, I was subjected to the pressure test. I scored 10 out of 10. Then, I was sent to a rheumatologist who ran many more tests. Once he was done, he diagnosed me with advanced and severe fibromyalgia. He said I'm a little old lady in a middle-aged body

    • faerywyrm

      40d

      Once I could barely get around, I was subjected to the pressure test. I scored 10 out of 10. Then, I was sent to a rheumatologist who ran many more tests. Once he was done, he diagnosed me with advanced and severe fibromyalgia. He said I'm a little old lady in a middle-aged body

    • MsDaisyMae

      43d

      When I was 23, I was officially diagnosed by a rheumatologist that helped ppl with fibro. He did the trigger point test. It was a relief to finally get answers after years of searching.

    • Purplerose

      45d

      It took a long time of ruling everything else out with many tests

    • Maviis

      46d

      I went through a serious of labs and visits with specialists before I was finally diagnosed. Luckily for me though I was diagnosed fairly quickly.

    • RayofSunflower

      51d

      Took years to get diagnosed after multiple Ct scans, MRI’s, multiple specialist, pain relievers etc. I wish I would have known about managing trigger points when I was younger, not 25 years later.

    • mamabast

      62d

      My primary from several years ago said just loose weight the fibromylia pain will go away. So I did still have it. I don't have that primary Dr. Anymore. Went to a Dr who specialized in thyroid and diabetes pain. He knew by examining me, I had fibromylia after some blood tests were done. Then I went to another Dr who specialized in pain management for 2nd opinion. She knew right away too. I have had it since 2013. But they think I have had it longer than that.

    • Mikayla1995

      231d

      I kept seeing doctors and then I got carpal tunnel surgery which helped a little but I still had pain so my pcp referred me to rheumatology and my rheumatologist did every single blood test under the sun to rule out everything else and because I had pain in a lot of the pain points that fibromyalgia causes she started treating me for that with a medicine called celebrex and it seems to be helping but the pain is starting to come back so next time I see my pcp I have to mention it to her about the celebrex doesn't seem to be helping anymore.

    • Babegirl2012

      303d

      I never went to a specialist just my regular dr and put me on gabapentin for years and then it started not working and thy changed it to lyrica and pregabalin

    • FatHammie

      303d

      Went to a few drs for different opinions. Finally found one that listened. Sent me for tests through a rheumatologist. Confirmed.

    • Babegirl2012

      303d

      I just went to my primary dr

    • Babegirl2012

      303d

      I just went to my primary dr and she touched my shoulders and my legs and it hurt and she said I had it put me on gabapentin and just now changed me to lyrica and it is helping a lot better

    • idk_182

      332d

      I had joint and abdominal pain combined with other symptoms for over 5 months with the abdominal pain and for about 4-5 years with the joint pain. I was in hospital for the abdominal pain multiple times a week for months and eventually on 10mg of morphine. I was discharged on codeine to keep me going whilst out of hospital. I had multiple ultrasounds and CTs and MRIs that found nothing until I eventually got so sick of all this I called my gp explaining my frustration with the pain and being unable to do what other teens can. That was when he brought up the possibility of fibromyalgia and reffered me go a rhumotologist

    • Zoroaster

      347d

      It got harder to lift things at work. Then, it got harder to walk up and down stairs. It got harder to lift myself and everything I needed for the day. Then I felt the constant pain. I was diagnosed two weeks after my 21st birthday.

    • Chronicdecay

      348d

      My regular doctor wasn't available for whatever it was (maybe sinus issues) so I saw another doc in the office, who happened to be a DO and specialized in fibro. She recognized the possibility of it, did the test and diagnosed me. Really it was just luck seeing her. Had the diagnosis confirmed by neurology a bit later (their idea. Guess they wanted to make sure for themselves).

      • LoveStory

        334d

        @Chronicdecay so you mind telling me where you live? I moved to North Carolina a little over a year ago, and it’s been awful trying to find doctors to help me. I literally waited months to see an RA and he told me I had fibromyalgia and then left. I asked what we can do and he offered gabba which I have tried before and didn’t work and then he just shrugged his shoulders and left. He had a medical student with him who looked at me in shock and I just started bawling in the office. To make matters worse he advertises specializing in fibromyalgia

        • Chronicdecay

          70d

          @LoveStory I'm so sorry my response has taken so long. I live in Vermont, and all my healthcare people are in the Burlington area. I'm lucky that medicaid covers everything for me, I just have to find docs that take it. If I had no insurance, or private insurance, I highly doubt I would've been able to see so many specialists.

    • emlah

      348d

      Back pain for over a decade, from early teens. Went to the doctor's multiple times. In 2021 I had a blood test, all normal. Took my BP, all normal. Had another round of blood tests, had slightly elevated ANAs. Referred to rheumatology, mainly for exhaustion but in the past couple of years the pain had migrated everywhere. Rheumatologist spent 5 minutes with me, asked questions, prodded me and had me do movements, etc. Diagnosed me with fibro

    • LadyPasta1

      348d

      I was diagnosed by the third doctor that I went to, a primary care physician. I'm a retired RN but was actively working at the time. I was dissatisfied with the first two physicians (men) who basically just wrote me off. So I asked other nurses for the name of a good woman Primary doctor. It has been my professional and personal experience that male doctors do not listen as well to their female patients as women doctors do. I made a head to toe assessment on myself, described all my symptoms, and wrote it down. I shared that with my Primary and she immediately diagnosed me with fibromyalgia. No hesitation at all. I'm sure it helped that I was an RN and could provide a full medical assessment on myself. Without that, I probably would have seen many more doctors before being diagnosed. The male doctors didn't want my assessment. Their egos were offended. Since then, I have always had women doctors, unless my female doctor had to refer me to a male specialist or surgeon. It had to be her recommendation.

    • CatMamaForever

      348d

      I went through many years of GI Drs for nausea and abdominal pain. An allergist and nutritionist for herbal meds, food elimination diets, and candida therapies. Too many tests and procedures to even count, and a total hysterectomy surgery that left me with with terrible complications, instant menopause, and painful scar tissue issues. I am so grateful that I finally found a primary care Dr that listened to me and went over my whole medical history to come to the conclusion that I have fibromyalgia (which makes perfect sense now!). I have started a new Fibro medication and am researching my options and the experiences and therapies that other’s have tried. In the USA it is recommended that you see a Rheumatologist for a fibromyalgia diagnosis but the only Dr in my town that my insurance covers will not take me as a patient. I truly believe that the painful and frustrating symptoms of Fibro and the available treatments are very individual to each person. Finding the right combination of treatment variables is another difficult process for me so far, but finding a Dr that sees me as a person, listens to my concerns, educates me on my options, and let’s me be an active part in decisions on my treatments and medications has made all the difference in the world! I have hope that I will find a way to live a productive but different life that I imagined.

    • BJSTREEHOUSE

      348d

      I went to a Rheumatologist to find out what kind of arthritis I had. He didn't find any joint deformity and told me I probably had fibromyalgia. He said it was the "bucket" they put it in when they couldn't find any physical evidence. That was 1999. I was also diagnosed with sleep apnea at that same time.

    • MelissaLY

      348d

      I was diagnosed thru a doctor who specializes in it. I found him thru a ton of research and was lucky to have him. Best of luck!

    • Aimless

      348d

      About 15 specialists, emergency room visits every month for over a year, a ton of tests including a skin biopsy for the rashes, then a rheumatologist diagnosed me with it and prescribed lifestyle changes like fibromyalgia hadn't already changed my whole life anyway. So many complications from something so many doctors know so little about.

      • TigLyn

        348d

        @Aimless wow that's a lot to go through. So sorry it took you that long.

    • TigLyn

      348d

      My primary care doctor sent me to a rheumatoid arthritis doctor, and he ran a bunch of tests. He actually did a lot of studies, so he was very educated about fibromyalgia. I lived near Michigan State University, and they were always on top of health studies. I would start with your PCP and then find out if and of the arthritis doctors are doing studies. They will be the most educated. You will have to pull these doctors up and call their office and ask or check on-line.

    • CozyVibez

      348d

      It's a diagnosis of exclusion. A rheumatologist and pain management physician will exclude other diseases to conclude whether you have fibromyalgia.

    • faerywyrm

      348d

      Had a field test when it became severe. No one would say anything but arthritis until then

    • Babegirl2012

      348d

      🤗 ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user mentioned that it took them 16 specialists to finally diagnose them with fibromyalgia because there were many underlying problems that came with it. Another user said they did their own research and presented it to their physician, who then agreed with the diagnosis. Some users were diagnosed by rheumatologists after going through several tests and a process of elimination.

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