Managing Endometriosis Flare Ups: Tips and Tricks

what do you usually do to help an endometriosis flare up I am currently using my heating pad and taking a hot bath

Struggling with Failed Treatments for PCOS and Endometriosis

For this with PCOS and endometriosis: - has anyone else failed multiple treatment (medical and surgical)? - Have you been told there is no other treatment available to you, and how have you dealt with this?

Seeking Advice on Hormonal Supplements and Medications

What is your experience with supplements to better metabolise estrogen while prescribed a combination hormonal pill? Would methylated B complex vitamins, for example, that improve estrogen metabolism, help even if you're taking hormonal medications? Have you had success with taking supplements only, without hormonal meds (the pill), and not have endo symptoms (cysts, lesions) come back?

Connecting with Others Diagnosed with Endometriosis & PCOS

Hi, I was just diagnosed with endometriosis and pcos. was hoping to connect with others with it to help see how you cope with it.

Fired for Health Issues: Has it Happened to You?

Has anyone else ever been fired for a job due to health issues? This could be mental and/or physical.

Managing Endometriosis with Gastroparesis and EDS

Any endo warriors with Gastroparesis and EDS? Most of my endo is on my bowels and I’m scared to let my endo grow too much because of the wear and tear GP and EDS can cause on their own. How did you approach the situation?

Using TENS Machines for Endometriosis Pain

Does anyone have experience using TENS machines with endometriosis pain? I own one but am yet to use it due to a minor fear of electrocuting myself with it (hah.).

Has Anyone Had Endometriosis Whilst Being Overweight and/or No Periods?

Has anyone had endometriosis whilst being overweight and/or no periods?

Prescribed Pain Meds Not Working, Any Suggestions?

what has everybody been prescribed for pain ? i’ve been prescribed naproxen and cocodamol and don’t think it makes much difference x

Is There Any Endometriosis Treatment That Can Improve Pain During Intercourse?

I’m on the endometriosis diagnosis journey right now and I’m wondering, is there any treatment that actually makes you feel better? For me, pain during intercourse is excruciating, and I’d love to know if this is just something I’ll have to live with or can it improve?

Struggling with Endometriosis Diagnosis

hello! i was officially diagnosed with endo in october and now I'm waiting for a surgical consult for excision surgery. lifes just been not great for a long time...and im very thankful for a diagnosis, but endometriosis is isolating :( im really struggling and would love to be able to meet people who can understand.

Is Slynd Birth Control Effective for Endometriosis Pain?

Hello! My doctor gave me a sample pack of Slynd birth control for endometriosis, but after the sample is up it will cost me $50 to get it refilled. Does it help with the pain? Is it worth it?

Struggling with Hormones After Endo Surgery

I had endo excision surgery about a year ago with a very skilled endo surgeon. Having trouble finding the right hormones to control my period 😔 still have GI symptoms, albeit those are better. Still feel like I’m nuts. Anyone have a similar experience? Anything else I should be doing post op?

Blood in stool with endo?

Does anyone else with endo have blood in their stool occasionally?

Laparoscopy Side Effects: Dizziness, Blurry Vision, and More

I had a laparoscopy on 28th of December. Ever since then I have been dizzy, blurry vision, my legs and hands will randomly shake, my handwriting is terrible, having memory problems, leg pain, and I can't close my hands. My doctor ordered a brain MRI to make sure I didn't have a stroke. I came back fine. It's just so frustrating. Has anyone else had anything like this happen?

Need Help Managing Pain Before Endometriosis Surgery

Hi all. Went to my doctor yesterday and they have scheduled the laparoscopic surgery to diagnose endometriosis. They scheduled because I have been bleeding for two months and am in a lot of pain. The bleeding I can handle but the pain is a struggle. The told me ibuprofen would help buts it's not. Surgery is over a month out, but I need something to help with pain till then. Any suggestions or Ideas would be appreciated!

Chronic Epigastric Pain with Endometriosis: Anyone Else?

Anyone else with endo have chronic right sided epigastric pain? Typically after eating? I get extreme pain in the RUQ of my abdomen (under my ribs) any time i eat anything, the pain lasts anywhere from 2-6 hours and then it's time to eat again. I also have POTS and when I have chest pain flares that flares up too. I've seen 2 GI doctors and an rheumatologist for it for 2 years and no one had answers or ideas. I recently started seeing an endometriosis specialist and have surgery upcoming, I mentioned the symptoms and the nurse told me they see that alot. Given that no one has found anything on scans she thinks it's endo related, but we'll know more when they take a look during the procedure. Just curious if this is a problem others have and if it was related to endometriosis?

Lactose intolerance after surgery?

Lactose intolerance after surgery? I’ve ever had a problem with dairy and still generally haven’t since my lap 3 months ago. Around Christmas I had whole milk with coffee and experienced some bloating symptoms. Today I had whole milk with my coffee again and had serious bloating and gas increasing through the day which turned into nausea and vomiting tonight. I had barely anything else and suspect milk may be a new trigger for me. Has anyone else developed a lactose intolerance post surgery?

Considering Orilissa for Endometriosis: Any Experiences?

I have endometriosis and am debating if I should start Orilissa or not. Has anyone had any experience with this medication?

Irregular periods with endometriosis?

I just had my initial consult with a Nancy's Nook specialist. He told me endo doesn't usually cause irregular periods and said it could be something else causing them. Does anyone else have irregular periods?