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Mayflower22

1y ago

Need Help Managing Pain Before Endometriosis Surgery

Hi all. Went to my doctor yesterday and they have scheduled the laparoscopic surgery to diagnose endometriosis. They scheduled because I have been bleeding for two months and am in a lot of pain. The bleeding I can handle but the pain is a struggle. The told me ibuprofen would help buts it's not. Surgery is over a month out, but I need something to help with pain till then. Any suggestions or Ideas would be appreciated!

Your answer

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Jacs08

1y ago

Having suffered from Endometriosis from the age of 17 to 50 yrs old all I can advise it keep on at your GP, keep on at your Gynecologist because when I was finally diagnosed at the age of 22 (5 yrs after it started) it was too late, the Endometriosis had spread to other organs and I was already infertile. I nearly lost my life to Endometriosis, if it wasn't for the fact that I was on a yearly check my Bladder, colon and bowel would have literally collapsed as there was a huge hole eaten away by the Endometriosis. So I can't stress enough about keeping onto your GP and Gynecologist and make sure they are keeping a close watch.
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avelvetcrowbar

1y ago

Fellow Endowarrior here. Glad to hear you're getting a diagnostic lap as they're the only way to confirm Endo & hopefully get you on a plan to help ease your symptoms whether that be ablation or excision (although excision is shown to be the best and limit reccurence) from what you've described it does sound like you're having some gynecological problems that could be Endo related. I had similar problems & still do despite 4 laps to remove Endo. I've found for me personally the thing that helps the most is heat (I have an electrical heatpad) that I have on the highest setting whenever I can. I found alot of painkillers don't really help but some can take the edge off. I wonder if you are able to ask for something stronger like pure codeine maybe? Some meds just don't help some people as much as others & it can take a bit of trial and error to find something that works. I really hope you're able to get some answers & that your surgery goes okay & your symptoms ease ❤️ Here if you ever need a chat or any advice ❤️
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spookyspoonie

1y ago

Lucky. I bled for almost 2 years straight (with only 1-3 days of not bleeding each month) and they wouldn't even consider doing surgery to diagnose me. My OBGYN literally just stuck an IUD in and said "good luck, see you in 5 yrs" 😥
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Mayflower22

1y ago

I'm sorry you have been going through this. While its been over two months of bleeding consistently, I have had abnormal periods, heavy bleeding, and pain for almost eight years. It unfortunate that my doctor is finally taking me seriously now since they have only done the birth control route in the past.
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Birdies

1y ago

The only OTC pain reliever that works for me is Naproxen, ibuprofen and Tylenol don't help with my pain so if you haven't maybe give that a try? Also, TENs unit, heating pad (I have a plug in, portable, and warmies), Bengay for leg and shoulder pain, ginger root and ale for nausea, you can always message me as well :)
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Mayflower22

1y ago

thanks so much for the advice, I messaged you another question.
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Belugabear

1y ago

I’m sorry you’re experiencing this! It’s so ignorant to tell you ibuprofen would help. Is this a Nook surgeon you are seeing? Where do you live, is getting medical marijuana possible? That really helped me. Other than that, alternating 4 ibrprofen and 2 extra strength rapid release Tylenol helped. I also take methocarbamol, a muscle relaxer, which helps a good bit. Do you have a tens machine? That helps me a lot too! Also are you in pelvic floor PT? That’s another thing that helps and is so important for surgery! I have lots and lots of suggestions haha so feel free to message me any time!!
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Mayflower22

1y ago

hey there thanks for the suggestions I messaged you
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Pain_Warrior89

1y ago

There's no wY u cud manage endo pain with paracetamol it can be cripiling
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Mayflower22

1y ago

it has been more intense than I thought especially since the pain hit me out of nowhere. A few days ago it was just like regular cramps.
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Pain_Warrior89

1y ago

Your lucky.i haven't bled in 15months n they keep saying one of those things but there doing a endo laproscopy cus of the pain. I was put on mefanamic acid
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Mayflower22

1y ago

thanks for the thoughts. It only been two consistent months bleeding but over a year of having two or three periods a month with only 5-6 days in-between.
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Belugabear

1y ago

I appreciate that what you’re going through is also awful, but please do not call someone lucky for experiencing menorrhagia. It minimizes their experiences. Both ends of the spectrum suck! Best of luck with your laparoscopy 💕

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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