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sunshine4

381d

what has everybody been prescribed for pain ? i’ve been prescribed naproxen and cocodamol and don’t think it makes much difference x

Top reply
    • KnotTheEndoTheWhirl

      378d

      I think I was prescribed pretty much everything, from naprosin to Gabapentin to tramadol, IBS medications, etc… typical pharmaceuticals didn’t help me at all. I had previously been on birth control when my symptoms broke through, so that wasn’t going to work. Eventually, in prep for surgery, I was on a short round of Orlissa (2months). That did relieve much of the pain, but came with a lot of concerning side effects, some of which will be lasting. I’ve personally given up on the pharma-industry to help my Endo, so I wanted to share what worked on the non-pharmaceutical side: —- the first thing that ever seemed to make any difference was a TENS machine. It didn’t get rid of all the pain, but did ease it. —- excision surgery. My pain turned out to be endo and excising it really made the world of difference. Not 100%, and given it’s a chronic disease I may never feel 100% well 100% of the time, but my symptoms are vastly improved with near-zero symptoms most of the time. —pelvic floor Physical therapy. I started PT in the depths of my pain about 6 months out from surgery. There wasn’t a lot we could do because of my pain but we were able to narrow down how the pain was contributing to pelvic floor dysfunction and begin building strength and function back while improving tangential symptoms. Once surgery was over and I could actually breath without pain, we were able to make a lot of progress because of the foundation we laid. I now have a lot of tools to use when I do have the occasional flair up and find it manageable.

    • KnotTheEndoTheWhirl

      378d

      I think I was prescribed pretty much everything, from naprosin to Gabapentin to tramadol, IBS medications, etc… typical pharmaceuticals didn’t help me at all. I had previously been on birth control when my symptoms broke through, so that wasn’t going to work. Eventually, in prep for surgery, I was on a short round of Orlissa (2months). That did relieve much of the pain, but came with a lot of concerning side effects, some of which will be lasting. I’ve personally given up on the pharma-industry to help my Endo, so I wanted to share what worked on the non-pharmaceutical side: —- the first thing that ever seemed to make any difference was a TENS machine. It didn’t get rid of all the pain, but did ease it. —- excision surgery. My pain turned out to be endo and excising it really made the world of difference. Not 100%, and given it’s a chronic disease I may never feel 100% well 100% of the time, but my symptoms are vastly improved with near-zero symptoms most of the time. —pelvic floor Physical therapy. I started PT in the depths of my pain about 6 months out from surgery. There wasn’t a lot we could do because of my pain but we were able to narrow down how the pain was contributing to pelvic floor dysfunction and begin building strength and function back while improving tangential symptoms. Once surgery was over and I could actually breath without pain, we were able to make a lot of progress because of the foundation we laid. I now have a lot of tools to use when I do have the occasional flair up and find it manageable.

    • Juno2191

      380d

      For more day to day pain, diclofenac. If I have a spike but isn't extreme, toradol. If the pain is terrible, unfortunately T3 (tylenol-codeine) - it's one of the "tamer" opioids, but is an opioid and should be treated accordingly

    • 100Percent_K

      380d

      Gabapentin

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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