Need help fixing sleep issue! This is a bit long, so sorry. We need help if anyone can, please. We live in a state that's known for being really hot all the time and have been struggling to stay awake. Now normally this wouldn't be an issue but we live with roommates now and not our family anymore (moved out last summer, but our roommates had less of an issue with it then since we had just moved in). Our roommates are frustrated with the way we just randomly fall asleep and that we have such little control in our sleep schedule. Any tips on how to fix our sleep schedule? For more info: Our main issue is that the heat starts heavily affecting us at around 14:00 (2pm) and even when we push it off for as long as possible, we end up falling asleep by at least 16:00 (4pm). Any help is appreciated, we're living rent-free with them and we know they're annoyed with it and we owe it to them to at least fix this. I'm adding depression as a tag on this post because our depression definitely has an effect with this too, we often fall back asleep on our worst days because we don't have the energy to get up at all due to our depression and narcolepsy.
Has anyone with narcolepsy tried modafinil? Does it work for you?
My doctor thinks I have narcolepsy with cataplexy and I think she is right about the narcolepsy but looking up they symptoms of cataplexy it dosn't feel like my experience. What I experience that my doctor said is probably cataplexy feels like an electric shock inside my body like when I move sometimes it's just in my arm and sometimes it's my entire body but it is very uncomfortable and hard to stay balanced while it's happening. I guess that does kinda track with the loss of muscle tone but idk. I was wondering if anyone has experience with this.
does anyone else take sunosi? it keeps me awake but as soon as I take it in the morning I start having uncontrollable diarrhea boughts on and off that lasts until like late afternoon. does anyone else experience this and if so, how do you cope?? I take a pre + probiotic every morning and that helps but the diarrhea episodes are getting more severe the longer I'm on sunosi. all advice welcome
Vyvanse crash. I'm taking 10mg, but I feel like I hit the crash too soon in my day and it's too hard of a crash for me to be productive during/after the crash. But when I initially started taking Vyvanse the crash wasn't this bad and occurred later in the day. Is my body just getting used to it? Would the next dosage be helpful, or can I help myself somehow?
Cataplexy & Narcolepsy
Esophagitis-Gastroesophageal Reflux Disease (GERD)
hi everyone, iv just turned 46 and really struggling with my health, I guess I ignore it so I fit in work, my kids (health issues too), life and am starting to really worry about getting worse. I'm after advice I guess or supplements I could be taking. I currently take pills to help me sleep, for pain and digestion. Thankyou for reading
Does anyone have dreams where they know they are asleep and are desperately trying to wake themselves up by pinching, yelling, willing, etc. and sometimes have dreams that last such a long time u begin to think u will never wake up and just pray that someone comes and shakes you awake
Been asking for years for them to focus on my fatigue because I swore it wasn’t just normal fatigue years later finally got a sleep test and …Just got diagnosed with narcolepsy. Is it weird I wanna cry because I finally have answers for some of the stuff that’s been happing to me for years…
My doctor is trying to get me on Xyrem because every stimulant I've tried has no effect. I have type 2 narcolepsy so my insurance keeps denying the medication because I don't have cataplexy. Does anyone have any recommendations on what I should do?
I feel like I'm struggling more now with narcolepsy than I ever have. I can hardly wake up and it's eating up most of my day. I take medication but it's hard for me to remember to take it while I am awake. does anyone have advice on how to get up and moving?
hey! i have yet to be diagnosed (working on it) but i suspect i may be suffering from narcolepsy. i have had multiple instances of my legs just spontaneously collapsing or dropping things for no reason, as well as having a slack jaw and drooling randomly. it doesnt seem to happen exclusively when im experiencing strong emotions so im not sure its cataplexy? it also doesnt usually happen on both sides at once. i also am constantly tired, takes hour(s) to fall asleep and i wake up every few mins during the night. during the day i can fall asleep like its no ones business, and have been known to nap at work and have had to supress being so exhausted in the car that i physically couldnt keep my eyes open is this narcolepsy? or am i dealing with something else entirely?
Does anyone get disorientation or disassociation with the world in shorts term segments? It feels like a state of half awakeness, I’m nice the verge of falling asleep and then I jolt back awake. It lasts seconds to hours.
hi! I'm a type 1 narcoleptic sophomore in college 🏳️🌈 to my fellow narcoleptics: whats the craziest place you've ever fallen asleep?
How is it possible that I have both cataplexy w/narcolepsy AND suffer with insomnia simultaneously?
I got diagnosed with Narcolepsy back when I was taking Paxil, which can be used to treat cataplexy symptoms. I was told I would probably be experiencing cataplexy if I wasn’t on it. I still don’t know for sure if I do experience cataplexy, if I do it is very mild in comparison. Would anyone be willing to share what their cataplexy experience is like?
Does anyone experience extremely real dreams or dreams in which you feel actual physical or deep emotional pain? I’ve always been someone who remembers their dreams and they sometimes dictate how I feel throughout the day emotionally. They also drain me physically; I struggle with EDS more on these days. Dreaming isn’t really talked about much with N besides the hallucinations, so I wanted to reach out and see if anyone deals with this too. I experience it more in times of stress but it can be random as well. It’s so hard to explain!
anyone else sometimes feel weird when they try to sleep. like when I'm super tired but can't stay asleep and decide to close my eyes my body feels like it does when I'm cataplexying. or I feel like my chest is sinking and can't move my body cause It feels too heavy.
I need help trying to find a sleep doctor or neurologist and I’m finding it difficult in my area, any suggestions?
i keep turning my alarms off in my sleep, do you have any good alarm suggestions?
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Anxiety (Including GAD)