82d
0
Need help fixing sleep issue! This is a bit long, so sorry. We need help if anyone can, please. We live in a state that's known for being really hot all the time and have been struggling to stay awake. Now normally this wouldn't be an issue but we live with roommates now and not our family anymore (moved out last summer, but our roommates had less of an issue with it then since we had just moved in). Our roommates are frustrated with the way we just randomly fall asleep and that we have such little control in our sleep schedule. Any tips on how to fix our sleep schedule? For more info: Our main issue is that the heat starts heavily affecting us at around 14:00 (2pm) and even when we push it off for as long as possible, we end up falling asleep by at least 16:00 (4pm). Any help is appreciated, we're living rent-free with them and we know they're annoyed with it and we owe it to them to at least fix this. I'm adding depression as a tag on this post because our depression definitely has an effect with this too, we often fall back asleep on our worst days because we don't have the energy to get up at all due to our depression and narcolepsy.
101d
0
Has anyone with narcolepsy tried modafinil? Does it work for you?
261d
1
My doctor thinks I have narcolepsy with cataplexy and I think she is right about the narcolepsy but looking up they symptoms of cataplexy it dosn't feel like my experience. What I experience that my doctor said is probably cataplexy feels like an electric shock inside my body like when I move sometimes it's just in my arm and sometimes it's my entire body but it is very uncomfortable and hard to stay balanced while it's happening. I guess that does kinda track with the loss of muscle tone but idk. I was wondering if anyone has experience with this.
273d
0
does anyone else take sunosi? it keeps me awake but as soon as I take it in the morning I start having uncontrollable diarrhea boughts on and off that lasts until like late afternoon. does anyone else experience this and if so, how do you cope?? I take a pre + probiotic every morning and that helps but the diarrhea episodes are getting more severe the longer I'm on sunosi. all advice welcome
360d
0
Vyvanse crash. I'm taking 10mg, but I feel like I hit the crash too soon in my day and it's too hard of a crash for me to be productive during/after the crash. But when I initially started taking Vyvanse the crash wasn't this bad and occurred later in the day. Is my body just getting used to it? Would the next dosage be helpful, or can I help myself somehow?
374d
0
Cataplexy & Narcolepsy
Hernia Diaphragmatic
Fibromyalgia (FM)
Esophagitis-Gastroesophageal Reflux Disease (GERD)
hi everyone, iv just turned 46 and really struggling with my health, I guess I ignore it so I fit in work, my kids (health issues too), life and am starting to really worry about getting worse. I'm after advice I guess or supplements I could be taking. I currently take pills to help me sleep, for pain and digestion. Thankyou for reading
389d
1
Does anyone have dreams where they know they are asleep and are desperately trying to wake themselves up by pinching, yelling, willing, etc. and sometimes have dreams that last such a long time u begin to think u will never wake up and just pray that someone comes and shakes you awake
448d
5
Been asking for years for them to focus on my fatigue because I swore it wasn’t just normal fatigue years later finally got a sleep test and …Just got diagnosed with narcolepsy. Is it weird I wanna cry because I finally have answers for some of the stuff that’s been happing to me for years…
502d
1
My doctor is trying to get me on Xyrem because every stimulant I've tried has no effect. I have type 2 narcolepsy so my insurance keeps denying the medication because I don't have cataplexy. Does anyone have any recommendations on what I should do?
511d
8
I feel like I'm struggling more now with narcolepsy than I ever have. I can hardly wake up and it's eating up most of my day. I take medication but it's hard for me to remember to take it while I am awake. does anyone have advice on how to get up and moving?
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
What is it?
Cataplexy is a sudden and transient episode of muscle weakness accompanied by full conscious awareness, typically triggered by emotions such as laughing, crying, or terror.
Learn moreAlike Wisdom
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
593 Alikes with Cataplexy & Narcolepsy
Learn from others
who are experiencing
Cataplexy & Narcolepsy.
4.7 Ratings