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Musiclover22

694d

I got diagnosed with Narcolepsy back when I was taking Paxil, which can be used to treat cataplexy symptoms. I was told I would probably be experiencing cataplexy if I wasn’t on it. I still don’t know for sure if I do experience cataplexy, if I do it is very mild in comparison. Would anyone be willing to share what their cataplexy experience is like?

Top reply
    • OllieGreen

      634d

      @Musiclover22 omg I have the same thing but I wasn’t sure if it was a sleep attack or cataplexy

    • spycychkyn

      668d

      Mine is super mild. It only happens when I'm seriously startled or laugh too hard for too long. My legs collapse and feel weird for awhile afterwards, my head sometimes falls forward but mostly it's the legs. It's also worse the more tired I am.

    • Forever_Exhausted

      690d

      With my cataplexy there are days I can’t speak properly or eat cause “my mouth doesn’t want to work”!! Does that make sense? Or my legs won’t move when I stand up and I have to stand there looking stupid til I can get moving and my hands get “stuck” for lack of a better term when I go from a fist and then straighten it out. It’s not all the time but my legs are the worst

    • Lizastrickerink

      694d

      I don’t notice my cataplexy unless it’s very extreme. It can be as simple as your face weakening or twitching in your eye or mouth that you may never notice. But some people fall down after strong emotions like laughing or crying or even stress. The most extreme way cataplexy presents can prevent you from moving your body for several hours but I wouldn’t worry as that is very rare but I have unfortunately experienced it.

      • Musiclover22

        694d

        @Lizastrickerink thank you for the response. I’m sorry for your experience with the extreme cataplexy. What I notice that I consider as a potential is I get into this stone-like state in my arms and my face, I can move if I want to but it’s like for an extended period of time I just don’t think about it and realize I haven’t moved in a while. If that makes sense. I find it hard to explain haha

        • OllieGreen

          634d

          @Musiclover22 omg I have the same thing but I wasn’t sure if it was a sleep attack or cataplexy

        • Lizastrickerink

          694d

          @Musiclover22 that sounds a lot like how my mild cataplexy presents itself. My expression gets frozen on my face and or it just gets hard to move instead of like falling or something.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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