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IcecreamMoon

843d

How do you personally cope with narcolepsy?

Top reply
    • WallyWasTaken2

      814d

      Give myself a break. It's hard to let myself say no and that I can't do something because I'm too tired, or ask for accommodations from friends when planning an event together, because I *want* to do it. Just giving myself a lot of understanding, that I can't do everything everyone else can and that's okay.

    • WallyWasTaken2

      814d

      Give myself a break. It's hard to let myself say no and that I can't do something because I'm too tired, or ask for accommodations from friends when planning an event together, because I *want* to do it. Just giving myself a lot of understanding, that I can't do everything everyone else can and that's okay.

    • kthedragon

      840d

      I’m not sure but I do think sticking to a consistent routine is key. I’ve learned that it’s ok if you break your routine sometimes due to sleeping in too late or taking too long of a nap- you just get up and continue like you normally would as if you didn’t sleep at all :)

    • Cedar

      843d

      I just try to give myself the most grace possible. I give myself breaks from my meds so I can rest if I really need to. I try to stick to routines as much as possible. Trying to build community with ppl who get it. I do a lot of affirmations and just try to meet myself where I am at. I know that’s probably not the answer you wanted. It’s been the most helpful for me thus far.

    • Scarlet9904

      843d

      Try to get a good nights sleep nap when I need to gave up my driving and stuff

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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