Has anyone tried bladder installations?

Has anyone had bladder installations? My doctor suggested them once a week for 8 weeks. Sis it help you guys? I know everyone is different, but just curious. Also have the aloe Vera capsules and prelief helped you guys?

Has anyone tried Elmiron for IC?

Has anyone taken Elmiron for IC? I’m not going to try it at least with what I know now, I can’t have weight gain or definitely not the concerning blindness issue that comes with it, but I’m very very curious as to anyone’s experiences with it!

Starting an Elimination Diet: What Are Your Triggers?

I really want to make myself start an elimination diet. Or at least cut out the most known trigger foods. What do you know/think are your triggers? And what’s a widely known trigger that you think doesn’t affect you?

Dealing with Flares of Interstitial Cystitis

I’ve been having recent flares of interstitial cystitis that my doctor thinks are UTIs, even though I don’t test positive for them. I’ll be given antibiotics anyway. Can anyone relate? What do you typically do? Thank you!

Burning Sensation and Discomfort in Urethra: Need Help!

How do I alleviate the feeling of a burning urethra and having something stuck there like a bubble that makes sitting so uncomfortable? What supplements or meds help with this I’ve tried Utiva uquora and nothing…

Dealing with Urethra Pain and Burning After Peeing

What helps with urethra pain ana burning after I pee my urethra still feels like there’s pee there and it burns ant help or supplements that help with this thanks!

Uribel Saved Me from My Condition

Just wanted to say Uribel literally saved me from this condition. ❤

UTI or Something Else? Help!

How do you know the difference between a bladder infection, interstitial cystitis, a yeast infection, or bacterial vaginosis? So confusing so I always assume it’s a bladder infection. Sick of going to urgent care every time I feel pain.

Looking for an alternative to Elmiron

Is there an alternative to elmiron. I have cyclical vomiting from the medication

Starting Pelvic PT: What to Expect?

I'm starting pelvic PT next week. what do I need to expect from them?

Dealing with IC Flare Ups: Tips and Tricks

Other than meds ,what can help when I have bad ic flare ups?

Managing IC: Tips and Tricks

How have you been able to manage IC over time.

Frequent Urination and Pain: Seeking Relief

I went to the bathroom five times in three hours. It felt like back to back. The more I went, there was more pain. I do drink fluids and it is not always water. Any suggestions to have more relief and less urgency?

Coping with Overactive Bladder: Seeking Advice

Does anyone have an overactive bladder? (Frequency/urgency) If so, how do you cope? What do you take?

Do Others Feel Urethral Pain with Interstitial Cystitis?

I have never been officially diagnosed with IC but my mom was and we had a lot of the same symptoms only mine is only pain in my urethra. Just wondering if anyone else feels it there or only there?

Dealing with Chronic Pelvic Pain: Seeking Advice

Hi, I’m in the process of trying to get diagnosed, not sure if it’s IC or pelvic floor dysfunction. Either way, my main symptom is a horrible pain/burning in my urethra. Usually it will only last a few days at a time but it’s been weeks now. Every time this happens I get tested for a UTI and it’s always negative so I’ve stopped getting tested because it’s just not realistic at this point. I use AZO pain relief and it always helps but it’s expensive and it’s not good to for you to use every day. Does anyone have any supplements they use that help with this type of pain?

What Can I Take for Interstitial Cystitis Relief?

Hey, I was officially diagnosed with IC today after a 2-ish year battle with urinary urgency, frequency, and now urethral burning. Azo doesn’t work, amitriptyline made me gain constipated with weight gain, advil and Tylenol don’t do much, hydroxyzine works a tiny bit, pelvic PT is hit or miss, and I took urogesic blue today but I don’t think it did anything. What the heck do I take for relief? I’m trying alkaline water and an elimination diet as of today. The urgency is my worst symptom.

What Helps with Pain Management?

I'm just curious as to what best helps people when its not necessarily a flare up but just a little more uncomfortable the next day. I drink mint tea and I believe it helps. What about you??

Looking for alternative medication options

what medicines can be used for treatment? i’ve been taking pyridium (azo ingredient) but i know that’s not good for everyday use..

Managing Chronic Pain: Medication Tips

how do you handle the pain, what meds work for you?