Is there anyone else out there that didnt chose biologics and ended up being ok? Are these treatments super necessary? I'm recently diagnosed and confused about how bad this will get if I dont get treatment..I'm scared of biologics.
How do you handle the everyday pain?
Hi everyone , wanted to see how everyone is doing? I have decided for myself at this time not to return to Rheumatologist. All the medications they have given me has had side effects. So just dealing with the pain and taking it one day at a time. Would love to hear from other’s.
Is there anyone who was diagnosed with ankylosing spondylitis who doesn’t have the HLA-B27 marker in bloodwork or substantial soft tissue damage in X-rays or MRI’s? I have the other symptoms and things associated with ankylosing spondylitis, and my paternal grandfather and uncle both have it. I’m trying to puzzle things out, though, and figure out the best course of action.
Does anyone with chronic pain and a fear of needles have tattoos? The nurse who did my labs today said I looked like a person who would have tattoos after I confirmed I didn't have any because I hate needles. I want them, but I'm nervous about getting them. Does chronic pain contribute to the discomfort of tattoos or make it easier because of a higher pain tolerance? The part of needles I hate most it's the pain, it's the foreign object in my muscle.
Hi, folks. So, two people on my dad’s side have ankylosing spondylitis. I really strongly think I might, too, but I don’t have the HLA B-27 gene associated with it so my rheumatologist didn’t think it was particularly likely. The only symptom that doesn’t match up 100% is pain being worse at the beginning of the day - sometimes it’s hard to tell when it’s worse because it’s so bad all day. Otherwise, I have the other frequently listed symptoms. Right now, I have been tentatively diagnosed with fibromyalgia, diabetes, de quervain’s tenosynovitis, and sciatica. It does feels like A. S. might be what a going on…. Is there anyone who was diagnosed with AS who doesn’t have the HLA B-27 gene? Any general thoughts and advice are welcome.
my mother has AS, and I'm pretty sure I do as well. I've got the symptoms but I need to know what's my first step to getting diagnosed with AS? any and all info will help me . thanks guys!
I have AS and am on immunosuppressive treatments. I’ve been having right upper quadrant pain for months and no one can tell me why. Been in and out of the hospital and had endoscopy and colonoscopy. Just wondering if anyone else has experienced this. They already checked my liver, gallbladder, and pancreas
I was diagnosed with Ankylosing Spondylitis in 2019 and it has been a roller coaster ever since. How do you cope with the knowledge that your body will continue to get worse over the course of your life?
Hi all. My name is Andrea. I was diagnosed with AS about a month ago. My doctor is going to put me on Humira and I'm waiting for insurance approval. I have really bad anxiety when it comes to starting new medications and their side effects. Please tell me Humira is okay. As far as I know I will be doing the injections.
How do you manage AS? Do you also have teeth problems in regards to the illness?
My spine constantly feels like it needs to be cracked. I do yoga and crack what I can on my own but its not enough. has anyone had experience with chiropractors? I have heard so many horror storys but idk if theyre accurate?
Hi, does anyone have a pain between the spine and shoulder blade that never quits?
I am getting ready to start Humira and I'm really nervous, any advise on what to expect?
When I first got Sick in September I did not eat for 2 weeks lost 20 pounds. Since then I eat one meal a day pretty much , I get full and don’t really have an appetite. Does anyone else have the same issue?
i am not diagnosed with AS however have been experiencing similar symptoms for over two years now. i want to see a doctor about this concern but not sure how to go about bringing up possibilities of AS. how did you guys go about getting diagnosed? and what symptoms sparked concern? any tips?
Hi all😀how do you get relief from your back pain. I’m not on any TMF blockers, anyone on TNF blockers? If so which ones and did it help?
One of my biggest issues is finding a career my body can handle. I have ankylosing spondlyoarthritis so my fingers swell up and hurt bad sometimes I can’t even move them. So a desk job doesn’t seem fitting cuz of all the typing. Also I hate just staring at a screen all day. But a physical on my feet job hurts too and I get so tired so fast and come home and just lay down cuz of how my body hurts. Any suggestions???
hi! I wanted to try and connect with other folks with AS, especially younger folks. I'm 27 and this is a tough condition to find younger people with which makes it tougher to chat. other than having AS, I'm a librarian and I live with my 3 cats and my tortoise. I like to hike, bake, go to museums, and take lots of naps. excited to meet you all!
I’m Brenna and I’m juggling my life as a 24 year old disabled woman. Would love to know I’m not alone in this journey and want to hear your story and how you find joy while living with chronic illness/pain? Sending hugs!!
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)