Dealing with Family Pressure When Unable to Work Due to Chronic Illness

My dad has a similar problem where his health and body make it to where he is at risk for another stroke if he works again. He stays home to take care of my little brother when he was better. It's a rough subject as it normally leads to meltdowns if I talk about. Welcome to talk to me if you want ,it might help.

People can be so mean I hope that there's enough people in your life that keep you positive I had to listen to people tell me I was lazy just didn't want to work I've given up on life and I kept telling them no something's wrong with me so I don't know if it's fortunate or unfortunate but now anyone that doubts my issues all they have to do is look at me and if they're blind to what they see I do not waste my time I hope your family and friends come around to having a little bit of compassion for you I do know that it can be lonely and very frustrating🙏

i tried several times with a disability lawyer and they said they were gonna take it federal to get it granted, nope not at all instead I got a packet in the mail that was my case file and haven't tried a 5th time now.

My lupus has progressed enough in the last two years that I need to consider a complete career change to keep working. I am/was a teacher, and my last two years in the classroom felt like one big flare. It is too physical a job for me to continue (childhood special Ed). In addition to feeling guilty for not bringing in a full time income for over a year now, I am devastated to leave that job. I truly loved the kids and loved my work - but I had repeated mornings that my principal had to cover my class while I was on the floor of the bathroom with a fever, vomiting, and with uncontrollable joint pain. I try to work online, but as all of us with Autoimmune diseases know, it’s impossible to know when you’ll feel good. I was tutoring online but had to move students around flare ups. It’s depressing. My husband started off supportive but now the questions from him (and other family) have started (maybe you can teach part time?, maybe there’s another grade to teach that would be less stressful?) I get it, they’re scared. I’m scared too.

I can relate to what your going through. It’s so hard and hurtful to be in this position. It has definitely caused my depression to get worse. I have had a craniotomy to remove a brain tumor and endometrial cancer in 2018 and now have other health issues which has caused me to not be able to work. This has caused me my marriage of 20 years and my 2 sons to have anxiety. My family has side jokes about how I think I’m a princess who doesn’t have to work. My friends pretty much gave up on me. I’m alone most of the time but it’s ok. I’ve learned to enjoy my alone time and work on myself and accepting the new normal. Yes you need to do what is best for you. Don’t feel bad about it. Only you know your body and what you can and can’t handle. Be kind and patient with yourself 🙏

😥🙏AVIAN, I <<>>IN ONE OF HIS """ UNCOUNTABLE & UNCONTROLLABLE ALCOHOLIC RAGES--- WHEN """ I WAS--- JUST 8 YRS OLD & HER VIOLENTLY TORTURED ME """ DURING THE <<<1ST 15 YRS--- OF MY LIFE>>>>THEN I WENT THROUGH """ SEXUAL ABUSE FROM 3 """ OTHER ADULT FAMILY---- MEMBERS"""FOSTER GRANDFATHER SEXUALLY ABUSED ME FROM 3-8 & """ 1 OUT OF MY MOM'S OLDER BROTHERS--- WHO SEXUALLY ABUSED HER>>>AS A CHILD--- ALONG>>>WITH HER """ OWN---- HYPOCRITE FATHER>>> ANYWAY, HE RAPED ME>>>WHEN """ I WAS--- A MEASLY 9 YRS OLD---- SO ALONG WITH """ THE SEIZURES>>>I STRUGGLE THROUGH--- EVERY HOUR>>>OF EVERY DAY--- TO """ STAY ALIVE THROUGH--- I ALSO HAVE--- HAD & STILL HAVE """ SEVERE P.T.S.D/P.T.S.I--- LIKE THE '"""MEN & WOMEN--- WHO COME BACK>>>FROM '"""WAR DO--- ONLY MY WARS>>>WERE--- AT HOME¡¡¡""" THEN I DREW 4 ABUSIVE MEN>>>TO ME & 2 LEFT ME>>>WITH 2 """ NOW VERY IMMATURE GROWN-- SELF CENTERED, UNAPPRECIATIVE BOYS--- TO RAISE>>>>"""AS A SINGLE, DISABLED MOTHER--- BECAUSE--- I HAVE--- ALSO BEEN>>>IN 3 "" MAJOR CAR ACCIDENTS---1 ST I WAS--- 21 YRS--- OLD>>>I WAS GOING """ TO COLLEGE <<>>MAINLY--- IN MY SLEEP--- SO, I WAS--- ALLOWED """ TO HAVE A DRIVER'S LICENCE & DRIVE--- BUT """ I TAXED MYSELF--- & HAD A GRAND-MAL SEIZURE---2 WEEKS>>>BEFORE """ I WAS--- TO GRADUATE>>>FROM COLLEGE """ WITH >>>AN ASSOCIATES DEGREE--- IN OPTICAL SCIENCES--- ON THE "" DEAN'S LIST--- MIND U---& I TOOK THE """ OHIO STATE BOARD'S OPTICIAN'S EXAMINATION TO BECOME<<>>AS OPTICAL CLINICS--- SUCH AS """ LENS CRAFTER'S, SEARS OPTICAL, ROYAL OPTICAL, OPTICAL CLINICS, ETC . & I {{{COULD BE MAKING>>>$18-$24 AN HOUR--- RIGHT NOW>>>AS A LICENSED OPTICIAN--- ONLY I'M HAVING """ TO BEGRUDGINGLY EXCEPT>>>{{{{A MEASLY $695 IN SOCIAL SECURITY DISABILITY INCOME THAT """ IS DOWN FROM A """ ALSO MEASLY----$806--- THAT IT STARTED OUT>>>IN 1995 <<>>6 TIMES--- TO BE """ APPROVED FOR&-- TURNED DOWN """ 3 TIMES--- FILING>>>ON MY OWN & THEN HAD """ TO GET A LAWYER>>>& WAS TURNED 3 TIMES--- & THEN HAD """ TO TAKE MY CASE>>>TO COURT--- TO GET MY """ SOCIAL DISABILITY INCOME APPROVED>>>BECAUSE--- BACK "" THEN--- THEY WERE SAYING """ EPILEPSY <<>>10-22 GRAND-MAL SEIZURES---A MONTH>>>SOMETIMES---10 GRAND-MAL SEIZURES & A FEW PETI-MAL SEIZURES--- IN JUST ONE DAY--- PLUS """ 4 HERNIATED DISCS IN THE LUMBAR SECTION OF MY BACK--- WHICH I'VE HAD 13 """ STEROID INJECTIONS IN MY SPINE>>>TO GET ME>>>"""OUT OF THE DAMNED """ WHEELCHAIR I WAS--- LEFT IN """ FOR 5 AGONIZING YEARS--- DUE TO THE """ 2ND>>>OUT OF 3 MAJOR CAR ACCIDENTS & I ALSO FOUND OUT <<>>& WAY """ I WAS BEING <<>>THAT DISABILITY--- SO U CAN>>>LAY UP--- ON UR """ FAT ASS>>>& DRAW """ THAT MEASLY DISABILITIES & MEDICARE---"""WHICH--- IN MY OPINION>>>{{{BOTH SUCK--- WHEN I """ COULD BE USING>>>MY DEGREE & MY OPTICIAN'S LICENSE & MAKING $$$18-$$$24 AN HOUR RIGHT NOW--- THEY CAN>>>HAVE THEM BOTH}}}. JUST REMEMBER---UNFORTUNATELY>>>PEOPLE>>>ARE IGNORANT & <<>>THEY SPEAK & REALIZE--- WORDS {{{DO HURT--- UNLIKE --- WE WERE RAISED TO BELIVE>>>THAT """ THEY DON'T ¡¡¡"""}}}. IF """ ANYONE--- I DON'T CARE>>>FAMILY OR NOT---{{{ IF THEY>>>HAVE--- """ NOT WALKED>>IN UR SHOES>>>ON THE HORRIBLE ROCKY ROADS>>>THAT U HAVE & <<>>THE ***HELL--- UP!!!***>>>BELIEVE ME--- I KNOW--- ABOUT """ THE BEING RUSHED>>>TO THE HOSPITAL>>>IN AN AMBULANCE """ WHILE I WAS--- OUT SHOPPING>>AT OUR LOCAL WALMART--- & WENT>>>INTO """ A GRAND-MAL SEIZURE---& I WAS--- ALONE--- I HAD """ TO EVEN BE<<>>IN A COMA--- FOR """ ALMOST A WEEK""" BECAUSE--- I DIDN'T COME OUT OF>>>THE """ 3 GRAND-MAL SEIZURES & SLIPPED INTO>>>A PETI-MAL SEIZURE & NEVER CAME OUT OF IT--- UNTIL 5 DAYS LATER¡¡¡""" OOOOOOOHHHH, BUT I'M FAKING IT ALL & <<<"""WANTING--- TO LAY UP--- ON MY """ FAT REAR & DRAW--- STUPID """THE MEASLY S.S.D INCOME & MEDICARE¿¿¿""">>>>""" YEAH¡¡¡ RIGHT>>>>{{{{ N*O*TTTTTTT¡¡¡}}}. SO, BELIEVE ME>>>WHEN I SAY """ OOOOOOOHHHH BOY, DO I BELIEVE & UNDERSTAND>>>WHERE """ UR COMING FROM, MY FRIEND!!!""". AGAIN--- GOD BLESS!!!""" LOVE, KAT ,👍🐈😉😘😸😊😍😺🤗🦄🐈👌"""YES--- WITH """ 9 LIVES--- OR <<>>MOST OF THEM--- OFF¡¡¡"""*** 👇🙀😱😲😼😹😪👎