The Alike Team

270d

What don't they get?

Chronic Generalized pain

Generalized pain

Depression

Abdominal Distention

Paresthesia of skin

Lethargy

Anxiety (Including GAD)

acute lethargy

Feeling of choking

Dyspnea

Headache

Drowsiness

Anemia

Migraine

Spasms of muscles

Chronic Yawning

Insulin Glargine

Chronic Restlessness and Agitation

View all
  • Torriblaidd

    270d

    How much it hurts and how hard I work to just exist

    • Zaebug

      270d

      same 😄

    • Telescopial

      268d

      Oof. This is it.

    • trocket13

      268d

      that part !!

    • IcecreamMoon

      267d

      same!! 😄

    • Bludesign4

      267d

      šŸ™

    • Jgar

      265d

      right šŸ‘

    • HorrorMaster88S

      261d

      yess

    • KimmyQuakes

      261d

      SamešŸ¤—

    • D4s

      258d

      Life is constant process. It often feels like ā€œtoo muchā€

      10

    • honeydulce

      252d

      I don’t want to die, I just want to take a break from living and being exhausted 24/7

      43

      • sydygorl

        244d

        LITERALLY

      • Trudie_tootie

        185d

        when I realized that it was a game changer.

      • Trudie_tootie

        182d

        i hear this. Since middle school or b4 I've felt just that. Asking the world to put me in a coma in 7th grade. 34 now. I finally have some peace with an amazing partner. I hope you find some peace yourself.

      • Meeeeeeeeeeeeeee

        83d

        YES

      • Alistrange

        80d

        amen to this šŸ™Œ.

      • Jaxsmum

        53d

        exactly and getting told I have pain from nerve pathesyd(Hyperalgesia) when I have legit reasons for pain, the Drs won't look at medical records from last country Iived in,I have pain alot,told oh it's from taking pain relief,live in my body Dr,I know it better than your guesses..I live with it 24/7 😭

    • Adventuremom

      244d

      exactly!!

    • SommerSDR

      240d

      This is perfectly said! Sometimes I'm glad they don't know what it's like because I don't wish even a fraction of what I feel on them. Plus, I don't want to hurt or worry them by revealing how hard it truly is. You can even potentially face harsh judgement if you tell someone how hard it is because they don't fully believe..BUT then other times..I wish they could just get a small glimpse to see...so they could really understand..then they wouldn't ever question my pain or my actions...or lack thereof of actions I should say. It's a hard spot to be in. You want them to know you're strong and fighting every day to live..as it makes them feel better if they think you're ok...but..that has consequences. Like when they question why you can't do something when you just did it yesterday or something. Most of the time I try to put all my energy into taking care of my family..which leaves little energy for myself and others. You want them to understand so you have a safe space to lean..but at the same time...you would be hurting, worrying, or potentially facing judgement from some of you reveal how hard it really is. A vicious circle...and we're stuck in the middle. I wish there was a solution.

      16

      • Trudie_tootie

        182d

        yessss.

      • Laurelpeabody

        64d

        this hit home, everyone just tells me try harder stop giving up and I am trying every second of my life I’m giving it my all but I’m out of energy I have no way to stand back up I’m so tired. My friends are so done with me, I don’t like talking to my parents because they just worry and feel bad I just wish someone could understand I feel like I’m drowning and barely stay a float each day

    • shortlife

      238d

      same honestly and I told my brother I loved him in public but he said all I do is embarras him and ruin his life and then he and my grandma told me if I died tomorrow that no one would feel bad, I actually considered giving up my battle

      • CatCollector

        209d

        please don't ever give up, I'll be your support if you want/need.

      • ArkansasGirl

        209d

        family can be cruel. People never understand what they don't experience for themselves..thats y were on here for each other, we understand. For me that's a hard thing to even think about because I've fought everyday of this fight by myself. But we r here for u. Never give in to ur battle. It's a thought we have all had to be honest though for one reason or another. We will help in any way we can..u got this.

      • Lavs

        199d

        it is very normal to tell someone you love them in public. It makes me so angry to hear what he and your grandma said, they sound like manipulative assholes

      • DarkWhispers07

        168d

        Damn... I'm sorry to hear that, but if I were you I wouldn't bother being around those people if all they do is dis on you and make you feel like giving up. If I were in that situation and didn't stop talking to them I think I'd eventually commit.

    • calion

      226d

      PREACH

    • Neel

      216d

      This feeling is more relatable than I'd like to admit. Hang in there. It's worth it.

    • Lunako

      202d

      for real!!

    • StrawberryMilk

      196d

      Yeah ā¤ļø

    • Bella.ella

      189d

      I feel this so much and it is absolutely heart breaking. Although I’m starting to think me trying isnt good enough anymore.

    • Deep_Feelings

      185d

      Ugh, yes. This!! I feel it.

    • rubytuesday

      179d

      šŸ™Œ

    • Allisonn

      178d

      Oh yes Amen!

    • Trulyloved

      174d

      I understand this so deeply that it hurts

    • luce__

      161d

      yep!!!

    • MerlinTheWizard

      82d

      Why dose it feel like I'm fighting just to prove that I'm allowed to exist sometimes.

    • Mizzee

      77d

      I can so relate to this😄

    • beater.queen

      75d

      this hit hard. You're totally right. Neurotypicals and nondisabled people do not understand how much extra work we have to put in to just staying alive let alone staying functional.

    • RainCloud9

      52d

      100%

    • Bre19

      46d

      felt this

  • MSRITBEUTAMSCS

    270d

    Elaborate

  • smalltownkidneys

    270d

    How strong I have to be. So that my husband can cope and deal with my cancer. When I feel like I can't deal or cope for myself. When I'm the one going through it and in constant pain. And constant Drs appointments

    • binkyyy

      270d

      i wish u the best šŸ¤

    • AnniB

      270d

      I have stage 3 ckd and I’m so worried I know it’s nothing like your worries but I feel for you hope you can clear your thoughts and enjoy your life

    • Knotless1133

      269d

      if you ever need someone to talk to I’m here šŸ’žšŸ’ž. You don’t have to do this alone

    • Telescopial

      268d

      I’m so sorry and i’m sorry you’re forced to be strong on top of that. You deserve to focus on living right now and it’s unfair that you don’t get to do that. I know it’s not much, but i’m rooting for you so hard from my corner of the world, friend.

    • frausto86

      266d

      ā¤ļø sorry to hear how difficult it is for you yourself to grieve your own illness but being considerate of your loved ones at the same time

    • Sugoober

      244d

      I feel this in my soul. Battling brain cancer with 4 kids, a career and being a wife. It’s exhausting. And no one seems to get it because I look ok and push myself beyond my limits because if I don’t nothing gets done.

      • SommerSDR

        240d

        yes exactly. I'm so sorry you're going through that. Here for you if you need an ear! šŸ™ā¤ļøšŸ™

    • Bre19

      29d

      felt this

  • T_Bone

    270d

    Misophonia

  • BAKER

    270d

    The fact that taking medication- of any kind- longterm is not easy. Needing medicine can feel like a burden. There is a huge mental barrier that you have to get past in order to be able to take medicine everyday without resenting your body for needing it.

    • srea

      264d

      YES I have this fear of medications that has made me procrastinate accepting them… when I first had just two pills a day it made me feel old and I was 18… Some nights I fall asleep staring at the pills putting off taking them 🫣

      • Marjo

        80d

        you can look for Holistic remedies verses Western medicine. Consult with a DO or a Holistic Practitioner for alternatives. Can’t hurt to gain more knowledge of Nature around us!

    • Aperellime

      262d

      ā¤ļø there r alot of times that I don't take my meds bc it's so depressing

      • Nanavae

        259d

        I get your point of view. It can be more depressing without help. Make sure you are sharing your feelings with someone (medical professional out close friend) remember- you met every challenge so far, you are a warrior!

    • Bre19

      29d

      yes

  • Citla

    270d

    PCOS is not something to wish for just because I miss a couple of months from having a period. PCOS affects my overall health. I am not ā€œluckyā€.

    • kikihpfan

      227d

      this is so true

    • Lavs

      199d

      😠 you are so right

  • Viynyl

    270d

    Not being able to do their day to day without being in constant discomfort weather it be caused by internal or external situations. Some people in the world act as if dissability is some sort of "privilage" or "excuse" and that really bothers me because people take their good health for granted more often than not. I'd happily take what is concidered a minor inconvenience over constant pain/discomfort any day if I had the choice. I'm always jelouse of people who are able boddied/NT. They will never understand that ammount of envey.

    • darkstarrynight

      182d

      I get jealous of people that don't have my invisible illness (chronic pain) that I do 24/7. People that can run, and exercise and aren't limited by their bodies. I am so jealous of them sometimes.

  • BellzH

    270d

    I see when my friends/family/relationships get tired of having to take me to the ER or that I have a ton of doctors appointments. It makes me feel even worse than I already do.

  • faerywyrm

    270d

    Most people can't understand. That doesn't mean that we're abnormal, unlucky, or crazy. It's their problem. They are either narrow minded or clueless. Usually it's clueless. Remember that they are the ones with the shortcoming.

  • Nonamae

    270d

    How much pain I’m in and how exhausting it is just to do normal everyday stuff. I’m not faking being sick. I’m faking being well. And it’s getting harder to do.

    • Innerwork

      268d

      Yes..faking every moment is exhausting in itself. I am sorry to all as I too understand how difficult comprehensive health problems are.

    • Bre19

      29d

      yes

  • amedhat

    270d

    That it’s not all in my head.

  • Ink789

    270d

    how much i put an effort into socializing and daily chores

  • YourDailyFurry

    270d

    Everything. That I need a therapist, assessment, mental help, possible suicide help, everything

  • Foof

    270d

    That trying to fit into an able body world os not something I can do.

  • DeafBatman

    270d

    I hate that my parents don’t understand mental health problems when they clearly have some themselves. They don’t get that I’ve been given everything they have to deal with and more. They think I’ve done well in the past coping with everything but the fact is that I’ve always felt like this, I’ve just been better at hiding how hard it is so that they don’t have to be in pain for me. So now that I am lacking the will to hide it they think I just need to get up and do more in order to ā€œfeel normalā€ again. Unfortunately I don’t think there’s such thing as normal. Maybe we weren’t meant to be normal. But then how do we live?

    • HanStruggles

      80d

      I can relate 100%, I lost my mother to cancer when I was 12 turning 13 and my dad was physically and verbally abusive even when she was alive. Living with him without her as my protector was the worst part of my life so far.... Luckily I have moved out of his house but I still don't think he knows how much he has damaged me. When my mum died I felt like I had to be the strong one and comfort him even though I was still pretty afraid of him. Our relationship now is still very confusing but better. I understand that he is just a person and he isn't perfect but I could never imagine treating my child like he has treated me... (I don't have children yet but I'm planning on having some in the future :))

      • Madpanther

        74d

        1. Love the name. 2. Yeah I was raised by my mum and she was physically and mentally abusive. I'm now married a biological and step-mum to 4 kids.

  • kandi63

    270d

    😄

  • Wesj75

    269d

    What I have to go through mentally to handle a day

  • shinchan

    269d

    how hard it is to keep a smile on my face and make everyone laugh when all I want to do is lay in bed forever and disappear for who knows how long

    • Honeyluv1

      267d

      😄

    • Songbird24

      196d

      I really really deeply felt this… god, this is me on the daily… you’re not alone, I’m here with you in this exhausting, endlessly depressing boat

  • Ojos

    269d

    Is so dificult to deal with pain and stilll go to work and deal with co workers and lisent to the stupet coment and have no hard filings for oders god help me

  • RavenJord

    269d

    Dealing with daily pain, muscle spasms, numbness, tingling, etc, stuff that would make others not even be able to move. But dealing with it without medication and not letting on that I'm even in pain.

  • ErickDaniel

    269d

    Hi

  • Liminal

    269d

    How the things they say hurt me

  • MatchaBunn

    269d

    That I’m trying my hardest with the tools that I have, but I need more support and tailored care.

  • Alecia23

    269d

    When I look at my phone it’s not being rude I am escaping a situation the way I know how too

  • katmweaver

    269d

    How hard it is for me to be understanding when no one tries to understand me

  • ChokoBunny

    269d

    That my panic attacks and anxious intrusive thoughts aren’t a choice

  • kingseijuro

    269d

    even my eyelids hurt.

    • MeeB333

      240d

      - I have had a few different doctors laugh/scoff at me when I was asked ā€œWhere are you in pain?ā€ & I answered that it’s literally everywhere, & that ā€œIt would be easier to tell you where I’m NOT in pain,ā€ but then I couldn’t identify anywhere! Ummm, so I guess my hair & fingernails don’t hurt…?!? Ugh!! So frustrating. šŸ˜‘

  • Yarden

    268d

    How jealous I am of healthy people 😄

  • Alex_Rose

    268d

    How hard it is to get through the day pretending to be normal.

  • LoverHeart

    268d

    That I'm trying as much as I can and even when I say I'm fine I'm not really fine right now. I'm trying my hardest but whenever I try and talk to someone it's almost as if they are trying to compare theirs to mine and they have to have it worse. I don't even think my stepmom or dad have even realized I haven't eaten since Monday..

  • hurt_copain

    268d

    Lights r loud

    • Sincerely

      209d

      and high-pitched.

  • Nat_Roze

    268d

    How hard it is to make myself breath again everyday

  • Magpie42

    268d

    How I can be "normal" or "productive" one day, or for a week, and then bedridden the next. That I don't have a choice in how my body feels any given day. That I don't want to have enough co-morbities stemming from a/a few genes that went wrong to take down someone less determined. That I didn't ask for any of this.

  • JoshAG

    267d

    That the things that make me ā€œweirdā€ are just a product of my disorders

  • Jewels18

    267d

    How bad all of it has contributed to my PTSD

    • Madpanther

      74d

      Same herd šŸ˜„šŸ’•

  • bluecashew97

    267d

    How politics is a sham show and were worse off than medieval Peasants

  • Boo2004

    267d

    How hard it is to get out of bed and find the energy to keep fighting because sometimes all hope seems lost.

  • Mafuyu

    267d

    That I want to live alone but actually hate being alone. :,D I want to have a huge house to myself and be on my own with independence, but I hate being alone or doing anything alone. It’s a super weird feeling, it’s hard to really put into words.

    • Memaa

      209d

      I am so afraid to be alone. Funny, because in the past I have lived alone for years without problems…..

  • Alexquinn

    266d

    That I've been through crap that they might never go through

  • Wheezerr

    266d

    Its hard for me to process things sometimes. I feel a wall between me and the physical world at times. Its like someone throwing a ball at you and you catch it for a second but it slips out of your hand and bounces further away

  • kk062001

    266d

    i’m appearing happy, but truthfully, my brain is telling me i’m not worth sh** every second of the day. that i’m fake. that i’m not really who I say I am. that this front is what makes people walk away. that everything is wrong w me. i’m drowning, but sure, i’ll give you a boost out the water.

    • Songbird24

      196d

      Wow, I deeply related to this… I’m so so sorry you’re in this much pain, and I’m sorry you have to go through this because I wouldn’t wish this pain on anyone… I want you to know you aren’t alone, I’m right there with you

  • IsabellaJ

    265d

    That were not looking for attention, seeing isn't always believing and I don't have to prove anything to you for you to be able to believe me

  • Vannah349

    265d

    How my pain is CONSTANT. I’m always hurting to some extent.

  • PlaslyMeds

    265d

    How tired I am of being alive. To the point where I feel like my good days are a lie and I simply do not want to do this anymore 95% of the time, but I act like I do so they don’t have to feel bad

  • Fairwind

    265d

    That we don’t want to be like this.

  • Modragon

    265d

    That dropping the friendship hurts a lot

  • AuntBeeDoesGames

    264d

    How hurtful it is when the doctors tell me that my condition doesn't usually cause the level of pain I describe I'm in and that they see no reason I should be in a wheelchair. That fibromyalgia amplifies my pain levels and is the only reason I think I'm in as much pain as I say I'm in. Thank goodness my pain isn't supposed to be as high as it feels, I was starting to think maybe just maybe an MRI with contrast shot into my hip joint would reveal enough evidence as to why I'm in this much pain but I guess not...second opinion here I come, third opinion...hmm who knows 9th opinion maybe it will take to convince these power tripping doctors that get it finally that maybe she is actually in this much pain for an actual reason and is not an addict so not a drug and alcohol problem no it's a PAIN problem! My saying I want to die etc is because of the pain and you putting me in the psych unit where they cannot treat said pain of course I'm never getting out of there because my pain levels are so far past capable tolerance it's unreal. I don't want to die...but I also don't want to be in pain...and since y'all think I'm an addict...what other options do I have out here? Pot works wonders if the right strand is obtained...sorry not sorry. Over a month to get out of my system and y'all want me off, ok so 12 hrs after quitting I'm ready to die cuz it's just THAT uncomfortable level of pain...so I guess I'm stuck. Guess I leave my family and move states maybe the doctors there will look past my only vise and help me

    • darkstarrynight

      182d

      hey I don't have much advice, (I have chronic pain, but not fibromylgia), but I do know Lady Gaga has fibromylgia. Try to look into what she does to help with her pain, and see if it provides any relief.

  • AuntBeeDoesGames

    264d

    They don't get that we didn't decide one day to try out our mental disorders from a menu on a board and keep them. Just choose happiness? Why on earth didn't I think of that?! I choose to be defeated by major depression with psychosis, anxiety/panic disorder, PTSD, ADHD, borderline personality disorder with fibromyalgia as the cherry on top šŸ’ I choose not to do anything it's not lack of motivation at all, no, I'm lazy yep.

  • Cocosir

    264d

    Sensory overload

  • rorose

    264d

    how hopeless it sounds when they tell me i cant heal from my disorder. i refuse to believe that. i believe i can find the path to the life that heals me and improves my health. i dont want to believe that i cannot get better. i wont.

  • IAmZeMedic

    264d

    How hard it is to not go to my mom with my racing heart. To try and not to tell her "I have to go to he hospital tonight. I feel like I'm dying".

  • srea

    264d

    That my pain is not ā€œnormalā€ That I have value which is not attached to my ability to do things That I’ve ALWAYS shown the executive dysfunction of someone who’s ā€œgetting oldā€ That my immense talent does not correlate to the ability to keep a job 🫠

  • Leviross

    264d

    I have reasons not just excuses.

    • Bre19

      25d

      so true it is so unfortunate

  • ricecake

    264d

    how hard I’m trying

  • keekso234

    264d

    How I want to go off my meds and be happy about it.

  • mobychick

    262d

    How to love unconditionally

  • blood_rose

    262d

    How hard I have to fight my own brane and body to do anything and how tring emotional and physical it is

  • Iron

    262d

    That my base level is not the same as theirs and I already push through almost everything

  • dih

    262d

    šŸ™

  • brutal_brown

    262d

    That there is an answer it's just there's lots of people who have made the Answer look horrible when in reality the Answer is amazing, my life is proof of it. There is a light at the end of the tunnel and it's not will I make it it's when.

  • musiclover98

    261d

    Having to come to the realization I will never be able to be independent. I will always have to rely on someone to help me and help take care of me. PCOS has been such a burden. People don't understand wanting so badly to work a full time job and have an income for myself and when I can't, how much that takes away from who I think I should be. It affects myself image WAY more than my weight or anything else honestly. I've kind of put my identity in being able to be MYSELF (being totally independent) and I just feel at a loss. People don't understand the want to be able to just get out of bed in the morning without feeling like you've been on a 6 month binger.. the pain is real and all I want is for it to go away!

  • blue_boy03

    261d

    How difficult it is when a Dr doesn't take you seriously. Like I've been having heart problems for months and it got so bad today i had to go to the er i was sent by my Dr and when i got there they just gave me anxiety meds and refused to do the blood work my Dr requested because it needs done.

  • Mazzyllene

    261d

    What I mean when I say I'm tired.

  • Lydia8271

    261d

    I cant be better

  • Strawberryhk

    260d

    I’m going through addiction

  • Strawberryhk

    260d

    I want hello for my illness but we probably don’t have money to cover the surgery and I’m way too nervous to go to the doctor. It’s gettting totes idk what to do I’ve been dealing with this for years and it’s ruining my life

  • mnmerritt02

    259d

    The fact that I've had many life and death situations during the times I had four heart surgeries as a kid. I basically went through hell and back.

  • laceyandme

    259d

    How hard it is to fight voices in your head

  • PriscillaAdams

    259d

    I feel like people don't really understand how much pain I'm in, and my house is suffering, but no one wants to help me.

  • str8outtacollagen

    259d

    Missing important events isn’t something I want to do - I would be there if I could.

  • HoosierMama92

    258d

    How hard it is to get out of bed some days... My pain is constant, so it's a struggle.

  • Morticia013

    253d

    That my kidney disease and dialysis aren't just a vacation and me being lazy.

  • dayzed

    253d

    That some people just *CAN'T* do things like everyone else. Albeit mental or physical, either just at that point in their lives or always. Just because you can do something or know someone who eventually could, don't press that on everyone you meet. Support and encourage but don't pressure and force.

  • Octavius

    253d

    That it's not about "eating less"

  • ChloeMae

    253d

    How energy consuming being depressed and having social anxiety/anxiety is but also being high functioning with it. Like people don’t understand that everytime I leave my house I have to put on a happy persona how much energy that takes from you. Like I’m working two jobs and in grad school full time, I did this last semester and was burnt out by the end of the semester to the extent I literally couldn’t do anything by the time I was done. I took a month off from work and it took around 3 more months to heal from that. Now I’m only 3 weeks into this school semester and working two jobs and I already feel myself burning out. & my dad just thinks I’m just being lazy by wanting to quit my job and focus on school. and I understand why they see it that way because it’s so hard to even understand myself why it happens. Like I need time, EVEN A DAY, to breathe because it is so overwhelming.

  • TrebleNurturer

    253d

    That my bad moods are almost always due to my health symptoms 😄

  • BritBrat92

    252d

    How everyday is a struggle

  • CookieRae

    252d

    That Hypermobility has been with me the whole time, and that i won't be fine

  • imbatman

    252d

    Life shouldn’t be as hard as it is.

  • PeppermintAnn

    250d

    that some days, i am one motion away from giving up. that the past looks so inviting. that i don't try to upset you, i actually try to do the opposite.

  • lokk

    250d

    šŸ‘

  • kelianne

    250d

    They dont get that what they do effects me in so many ways. They're causing so much pain unintentionally but they dont understand why i care

  • Redvelninja

    248d

    Why I get mad when all I ask out of others is to be in the know about things.

  • thatweirdspice

    244d

    That I'm not lazy, but just trying to survive takes so much energy that it's nearly impossible to do daily tasks like clean and cook.

  • Mika15

    244d

    That I can't explain what's wrong because even I don't know what's wrong. Just that something is wrong.

  • archerinnit

    244d

    That im sorry and im changing

  • Phoenix.Afrodita

    244d

    That Impact is bigger than Intention, and matters more.

  • EliteLexy

    244d

    How much their words hurt and just how much I love all of them.

  • Squishlover

    244d

    that I'm exhausted no matter what and it's a struggle to just wake up and sit

  • pandasss

    243d

    That even though I can have good days doesn't mean it's always good or that I actually experienced trauma and that I'm not just "making it up" or "it's not that bad"

  • rorose

    243d

    how quick and how much my feelings change. how i need to change with my feelings. i cant always be flexible and i try to be but sometimes i feel like they move abnormally slow and linger at places just for no reason but to feel like they spent enough time somewhere to make their trip worth it

  • Kade229

    243d

    Everything, I don't want to do anything ever and it's really hard for me to actually do things and if I don't do it to their 'standards' then I get yelled at so

  • VioletRaine

    241d

    That I'm not being rude when I don't respond but my brain is running through every possible outcome of how I word what I say and if it will come out offensive or hurtful or selfish and I'm trying to get it right... And by the time I do the conversation had moved on.

  • Dwarfpandabear

    241d

    The fact that I cannot control or even comprehend my emotions. Everything is such extremes all the times for the smallest of reasons. I do not want to be an angry person but I cannot help it because everything is so overwhelming that it's the only way it comes out.

  • prettypixie

    240d

    Im too self aware for counseling to help me. It always ends up the same, all they do is just agree with me but it still doesnt fix the problem. Like i know what and how but i just cant fix it its so hard to explain

    • MeeB333

      240d

      - I’ve literally had over a dozen different doctors, therapists, psychiatrists & other practitioners over the years tell me that I was as smart/smarter than them & that I’m the most self-aware (4 whatever condition or illness sufferer) & intelligent person that they have ever met…! And, these were just those who were willing to admit it, & didn’t allow their ego to get offended that I know so very much about my own issues!! Some docs will actually get offended, & have dismissed me as a patient!! So, I understand your problem. It sucks to be so smart that no one (is either willing to &/or) knows how to help you…! :-/

  • Noella

    240d

    How living with extreme anxiety is a constant battle. 😫

  • ASAP_Panic

    240d

    That I can’t please him how he wants and how often he wants. It kills me inside and makes me feel broken. Chromic pain is one of the invisible illnesses that people don’t talk about enough.

  • camel

    240d

    That it is hard for me to not cry after being yelled at once or multiple times. Mainly my dad.

  • Space_Case92

    240d

    That I can never forget all the hateful stuff they say to me because instead of trying to be kind and empathic, it's easier to be hateful

  • ATrainwreck

    240d

    The hallucinations and delusions. That I have no control over episodes. That it is an every second of every day thing. That I don't tell them everything because I don't want to worry them.

  • dizzydarling

    240d

    why i’m so afraid and why i let it bother and hinder me as much as it does. i don’t mean to, it feels as compulsory as breathing

  • Elliott_Velvett

    239d

    That what I'm experiencing is very real and they need to take it seriously before I die from their neglect

    • NiiTA

      239d

      I feel exactly the same 😄

  • Magpie42

    239d

    That I work 10x harder just to appear okay.

  • NiiTA

    239d

    I just can't magically get over my anxiety. If I could, don't they think I would?

  • Thumpz

    239d

    Without coffee I would just sleep the day away.

  • rorose

    239d

    its not normal to be this speechless towards them. i wish my mother wasnt so lonely so she wouldn’t project her feelings onto me. i dont like it.

  • healthissues

    238d

    That I know myself better than they do

  • ShadowheartMC

    238d

    That I’m not trying to be lazy. Activity is just such a mountain climb for me šŸ˜”

  • living411

    235d

    They don't get how much of a battle I have to face every day. That I have to make a conscious decision to continue to work on myself despite how much I want to lay in bed and fade away.

  • blokeo

    235d

    how difficult it is to function with anxiety: my head starts pounding, i cant think, my entire body goes numb, my chest and heart start hurting immensely. It wont be fixed by telling me to ā€œcalm downā€

  • EliteLexy

    235d

    How much I don't want to be here because of the pain

  • Ellie11

    234d

    That you’re not a friend if you’re only there for the good days.

  • mik.chick

    234d

    How hard I’m trying even when it looks like I’m giving in

  • Bre19

    228d

    Why I ever feel so low like especially when I was in a very dark place

  • AlucardHellsing

    227d

    How much it hurts to try so hard to motivate yourself and improve although you are more than capable and have done it before but your subconscious prevents you from doing so due to fear of being judged abd being told you did nothing when in reality you did grow but others don't care or don't see it or they do but they put you down anyways

  • Soskae

    227d

    Adhd makes me do things I don’t want to do. Not only do I not have total control over my thoughts but I don’t have total control over my actions.

  • ZappyRacc

    227d

    That I don't just hate working. That I'm not just lazy and not trying hard enough. That the reason I'm not throwing applications everywhere is because I could generate good work for maybe a week before a symptom flare sent me to the hospital and lost me the job, and I can't handle that happening AGAIN.

  • Gaz

    227d

    CW: weight loss/dieting mention What my parents don't get is that YES, my disorder CAN go away with weight loss but weight loss is INSANELY HARD and we are faced with LATE STAGE CAPITALISM and DOOM and I'd rather die having eaten sugary things than been a doggone ascetic my whole life for a SHOT at getting rid of my IIH

  • Ms.Ruckman32

    227d

    How much physical pain is causing me to become severely depressed and hopeless. It's the your lazy or you know u can do this to lose weight...it makes me cringe and wince.

  • CinderLorel

    227d

    I wake up every day wishing I didn’t. My first thought is a flash of emotions that I even opened my eyes. I go to sleep hoping I won’t. I don’t actively try to die but I’m sad everytime I realize I’m still here. It takes so much just to fake being a person let alone appear normal and functioning.

  • shimshim

    217d

    Everyday isn't the same Just because a healthy person can get their to do list done everyday dosnt mean a person in pain with daily body issues can follow suit It's literally exhausting

  • cbear22

    217d

    My mental health problems

  • a45_evan

    217d

    That anxiety is a natural disorder and that’s it’s okay to have

  • Raquel226

    216d

    It's so true, it's hard to just exist for a lot of us. My boyfriend is very generous, and he makes plans for us every weekend. We're either going to a concert, a comedy show, a play, or another form of entertainment 2-4 times a weekend. I'm very lucky and I'm not complaining, but sometimes it's hard to physically keep up. And since event tickets are non-refundable I feel compelled to go and pay later (physically).

  • Phoinyxisnotonfire

    216d

    How hard I try to fit in only to fail miserably

  • MareBare

    216d

    How much harder it is to do things other people do with ease

  • Wednesday_7

    216d

    Not all disabilities are the same. Even the same disabilities present differently in everyone.

  • Kaitikins

    216d

    How EXHAUSTING it is.

  • EternalEyes

    216d

    How much pain I'm in... On the outside they see the smiles but the inside they can't see the catastrophes. On the outside I look all right on the inside I'm feeling drained exhausted

  • SA65

    216d

    The pain

  • XJ

    215d

    I understand that what I’m thinking isn’t real or actually happening, but it feels real and I’m going to react to it as though it is real on the small chance that it might be.

  • NiiTA

    215d

    I just can't stop being anxious 😄

  • canadaisntreal

    215d

    how hard i work to exist. how my brain works. how drastically my mood can switch within a minute. me, i guess.

  • Sincerely

    209d

    I wish people understood that they're not perfect either. That quite possibly their problem in which we can't see, might just be worse than the problems of someone whose you can.

  • couragousepilepic21

    209d

    How hard it is for me to talk to people or express my emotions.

  • SymptomOfNostalgia02

    209d

    The fact that I never have the energy or the motivation to do anything. I just do it because I feel obligated to.

  • CatCollector

    209d

    The effort to leave my bed, the effort to do simple everyday things, the effort to be present with others, it's just completely exhausting and gets harder everyday.

  • JJ_W

    209d

    My illness isn't something I use for my convenience/as an excuse. It's real life.

    • DarkWhispers07

      168d

      I absolutely hate those people who don't believe mental illnesses exist. Especially when they ridicule you for "how you should be more productive" and "your just using it as an excuse to be lazy all the time

  • WilburEffingSoot

    209d

    How hard it is for me to "get over it" or "ask for help". Or, better yet, when they tell me that "Oh I don't see what the problem is" I'm trying, I swear, but- I can't do this everyday-

  • GhostieShark

    209d

    How exhausting it is to be a human… I have to be okay and act like I’m okay when really all I want to do is scream and hide away. It’s so tiring to keep it together.

  • pink_milk

    204d

    That I’m not actually lazy

    • Ella101

      200d

      thank you! They just don’t get it

  • couragousepilepic21

    204d

    Everything

  • Animalnerd

    204d

    How hard it is to function or even get out of bed some days

  • KTTabbs

    204d

    That just because something is easy for them doesn't mean it is easy for me.

  • Nightreader

    204d

    How I don't know how to express how I feel cause I don't know most of the time 😳

  • Karrieanne73

    204d

    Exactly how it hurts all the time and what’s going on in my head but I have become such a good actor . That I don’t let many people see that part of me . I don’t let them know the constant pain I’m in or the racing thoughts in my head or the anxiety and panic in my head.

  • Lucaaaaaaa

    204d

    My pain and sadness

    • Lunako

      202d

      😢 same for me as well. So overbearing at times. I hate it.

  • GravesWarrior

    202d

    How much it affects me and how hard I’m trying to get better

  • agentleanbean

    201d

    How difficult it is to keep myself from being an angry person :/.

  • mermaidap

    201d

    why i dropped out

  • lowempathyhighenergy

    201d

    How much energy being alive takes sometimes. Im in so much pain so often it's hard

  • BeanBetter

    200d

    Poor city planning affects your health.

  • LaurElizabeth

    200d

    Everyday hurts to some extent wether it be manageable or unmanageable. The guilt that goes along with not feeling like a normal person is so deep. That you want to do so much more than you body is capable of but due to chronic Illness you can’t… the list goes on and on

  • Ella101

    200d

    I can’t just turn a switch and be healed and happy. I’m trying. I can’t just make depression and anxiety go away with the snap of my fingers.

  • 555angel

    200d

    that i cant control the way my brain works. its exhausting for me too. i dont mean to be a burden, i cant help it

  • squibibi

    199d

    that intrusive thoughts arent the quirky, trivial thing that tiktok makes them seem to be

  • 1mp

    199d

    That I'm just trying to talk. I'm not being rude, I just want to understand

  • Jazzmin87

    199d

    sadly I can understand this. On a good day I seem normal and perky. I like that me and wish I could be her all the time. On bad days I'm moving around like an old woman wishing for a break in pain and just trying to figure out the basics. With fall and winter weather the bad outweigh the good, joy. Which is sad but at least I know what to expect if other people don't. But I know just gotta keep chugging away like the little engine that could.

  • Boo2004

    197d

    They don't get how exhausting it is to get through the day. To fight and see barely any results. To see friends and family disappear because your to much to handle.

  • IceGoddess

    196d

    Who I am

  • Ziggy_B

    196d

    That I'm still young and figuring stuff out. Getting good grades in school doesn't guarantee my success and doesn't mean I have everything figured out. I'm just trying to enjoy my life while I can and when I can. Tommorow isn't promised and I'm taking it slow but I'm determined to have a good time.

  • DrakellaEuphrates

    196d

    That just breathing is exhausting.

  • StrawberryMilk

    196d

    I am more uncapable than I make it to be. Its a mask. It’s exhausting.

  • Lilginger

    196d

    Same here. 11 years and I can't do it anymore. Im Tired

  • tea444

    196d

    that what they're doing is not helping me it's making me worse

  • Kittypop

    196d

    I'm going to the doctor bc I don't feel normal or "ok" so testing me & telling me that everything is "fine" doesn't help. I came to the doctor for help...

  • Something_Strange

    192d

    That it's not funny to laugh at tourettes. If I'm laughing you can laugh. But if I look like I'm in pain maybe shut up.

  • Masscrystal

    192d

    That I’m not lying they are

  • IceGoddess

    192d

    My struggles

  • Jewelicorn

    192d

    How I see and understand the world. It seems like I live in a very different world than almost everyone I've ever talked to. I feel so alienated. I don't understand the world that everyone I talk to describes. And it is so freaking hard and hurts

  • Harley100719

    192d

    How certain things (words, actions) affect me and my mental and physical health

  • Rayningtigress

    190d

    That i have symptoms i don't understand.

  • Captain_Honey

    189d

    They don't understand that due to years of not being diagnosed and helped I now can't tell if I am trying my hardest or not. So now I feel like a failure unless I'm basically committing self harm by working too hard

  • Sapphire34

    189d

    How, high my anxiety gets when I'm around a bunch of people and all.I want to do is disappear

  • Moomoo72

    187d

    How tired I am all the time. That often times it really is impossible for me to do what people think I should do because I do not have enough energy.

  • WWJD

    187d

    That I'm doing everything I can. Some times a lot, sometimes a little, but its all I have.

  • OurLadyOfChaos

    187d

    How much I just want to be "normal" (functional, not in pain, mentally and emotionally stable, productive, have normal executive function, not be sick or in pain)

  • SunInAugust

    187d

    I'm not trying to be difficult, I'm having a difficult time. I wasn't able to read between the lines and took you seriously, i wasn't trying to stir up drama. I'm not being dramatic and exaggerating my experiences, i have heightened emotions. I'm not trying to be so heavy, my life has been heavy for me. I'm not trying to be annoying or disrespect boundaries when I ask for clarity when someone needs space, I just need detailed and consistent communication.

  • MultiMato

    185d

    How much it costs me just to act fine through the work day. I rarely have energy for myself afterwards.

  • Sweetpea94

    185d

    How much strength it takes to walk out and be able to do basic things.

  • FlyingLizards

    185d

    "Can't you just choose to be happy/ more productive/take care of yourself more?"

  • Skittles22

    185d

    Definitely how much pain I go through every day. I want them to understand but at the same time, I'm glad that they don't.

  • Nalabird

    185d

    How being fatigued isn't being tired, it's like you've been unplugged & you physically cannot do things. It's not a few hours missed sleep!!!

  • colourfulburrito

    183d

    They don't get that they say things that trigger me. Like "oh you're eating so and so, I thought you were trying to lose weight"

  • Deep_Feelings

    182d

    That they continue to and choose to misunderstand me. They won’t listen or they don’t care.

  • Coke

    182d

    How difficult it is to not isolate myself to make their lives easier

  • Locien

    182d

    I'm trying to do what I think is best for me.

  • FiberArtist

    182d

    What is behind my smile. I live with chronic pain and I won't let it stop me from living. But it hurts. I just get so tired of hurting.

  • Noah_Arrington

    182d

    That I really am trying but it's just difficult

  • Madi143

    182d

    My bf constantly asks me if I'm tired of being how I am and why I don't change. He doesn't understand the struggle just to function enough everyday.

  • indie9367

    182d

    That even though it's not much I give them the best I can šŸ˜„šŸ’•

  • Honeyluv1

    182d

    How mentally it’s hard for me to do this ! Get up and have strength when all I want to do is cry and stay in bed

  • emotionallygray

    182d

    That sometimes I don’t have the energy to even exist.

  • Trudie_tootie

    182d

    That I can't just ignore my mental and physical pain and get any job. I've tried to just push through and have ended in the mental hospital and ER so many times.

    • RenaissanceGirl

      182d

      I feel that. My dad tried to tell me to ā€œpower throughā€ a migraine and keep working. I got sick all over my computer and wound up in the ER.

  • RenaissanceGirl

    182d

    That good days are almost scarier than bad ones.

    • Songbird24

      182d

      Absolutely relate to this - at least with the bad ones there’s nowhere to fall, no shoe to drop

  • Lil_rain_cloud

    182d

    That everything is 10x harder, even if its a simple task

  • EDS4Life

    182d

    That I'm exhausted. ALL. THE. TIME.

    • AlikeYou33

      172d

      this can’t be real, right? Other people can’t feel this exhausted all the time and still do ALL THE THINGS. How are they doing it and we aren’t? I don’t know what it feels like to have energy anymore.

  • Songbird24

    182d

    That none of it is for attention, all of it is real, and when I attribute thoughts, feelings, or actions to past trauma, I’m not playing the victim, it’s just my reality

    • AlikeYou33

      172d

      I hear you. I feel that. šŸ™Œ

  • cheleb77

    182d

    That they were my whole world and how much it truly hurts me the way they're treating me now.

  • walkerstalker

    181d

    everything

  • MariWolf

    181d

    That I can't live if no one taught me how to live as an adult, just complain what is wrong with me. No one wants to be with a low vib they say.. like this they killing ppl.. They don't get how it is to be sucidal.. To be all alone ALL ur life, just being used. Trying hold on to ppl just to feel horrible pain physically and emotionally.. I could ramble forever..

  • Faith._Regina

    181d

    That I don't hate them and that I'm not mean. I just have so much bottled up feelings and go through really bad depression episodes

  • Tracks

    181d

    That I breathe, but that’s about it sometimes I feel

  • Faith._Regina

    181d

    That I don't hate them and I'm not actually a b!”ch

  • Marcaroni22

    180d

    That I just want someone to check in on me more than once a month or to give me a good genuine reason not to go through with my plan.

  • EliteLexy

    180d

    How lonely this entire life has been.

  • Wednesday_7

    180d

    That just because I chose to use a mobility aid I didn’t choose to need it.

  • Country_FLMama

    179d

    How much I want/need support even when I push them away.

  • WhiteFlamingo

    179d

    How easily I can find myself on the edge just because of obsessive thoughts.

  • Moravid

    179d

    šŸ™ šŸ™

  • Songbird24

    178d

    How deeply and genuinely I hate myself

  • RosiePosie21

    178d

    Im allowed to feel emotions without people automatically assuming it’s my bipolar disorder acting up again. It’s like I can’t feel anything anymore without my mom automatically assuming the worst

  • Something_Strange

    178d

    That trying to find any way to diswade me from being trans is still transphobic and makes me want to jump

  • Amanda1993

    178d

    How exhausting it really is on a daily basis to deal with this crap!

  • Lexusherr

    175d

    How much hip dysplasia hurts and they don't get that I physically can't do certain thing bc of it

  • Teagle

    175d

    That is me too

  • KabaneDaTo

    174d

    That waking up in the night sometimes is just a part of my life now and doesn't need to be regulated with extra stronger drugs

  • Madi143

    174d

    Unfortunate pretty much everything

  • Mr._Dank

    174d

    How I really am alive because I don’t want to hurt anyone. I’m always very close to not being here anymore, and the hardest thing is to keep going. It’s so painful to be here. I have things that make me happy, yes, but my depression and anxiety get in the way so much. My PTSD and childhood trauma effect my life too much too. I get paralyzed by all of this and it makes me feel like a failure a lot of the time. I still work full time, but barely feel like i can get through it most of the time if I don’t have a constant distraction for my brain to shut up. I am constantly fighting with myself and my demons. It’s all just a constant war Inside of me. I have family that see me as less than because of my gender identity and sexuality.. and that just makes living even harder.

  • dan91

    174d

    How hard life is with it and how painful it is, calling me lazy

  • Country_FLMama

    174d

    That I'm not lazy... I'm not "tired" I'm emotionally, mentally, and physically exhausted from doing the things you take for granted every day.

  • Alexquinn

    174d

    How much I struggle to keep my mask so they don't freak out

  • Lkbmotion

    172d

    That sometimes I can't just push through it

  • AlikeYou33

    172d

    That their words destroy me.

  • italianxpeaches

    172d

    Just how painful it is to eat and why I only eat one meal a day. My mom finds every chance she can go criticize me, ridicule me and say how unhealthy I'am for *starving* myself. But it is an excruciating process for me to eat food and deal with the aftermath. I only want to deal with it once, not three times a day. Plus the 1 meal versus 3 has actually worked out great for me health wise in other aspects. 3 meals just aren't for everyone. Still though, she tries to force and push food on me like I can't think for myself. No I don't have an E.D. but I would if I listened to her as she'd be shoving copious amounts of food down my throat just so she didn't have to eat the over indulgence she wants to cook.

  • Miky

    171d

    That there’s actually something I’m struggling with and I’m not just making it up

  • MarshallTheGayest

    171d

    How hard it is for me to get up in the morning

  • StarrKeats

    171d

    I'm not lazy I'm exhausted and the pain scale is not accurate. my 5 could be someone's 9

  • BumbleBea

    168d

    That my fatigue is all consuming. I'm not lazy - I'm completely done in. Also that a suicidal person can still appear happy on the outside.

  • MalTheBabyDragon

    168d

    That I hate myself for not being able to do what they do all the time.

  • DarkWhispers07

    168d

    How difficult it is to be a 3 sport athlete with depression. Like, everyone thinks I'm doing ok simply because I'm fit and I smile a lot but under it all I'm just trying to be able to wake up every morning and get through the day so I can come home and sleep more

  • Dr.Justin.Time

    168d

    How much it hurts. How real this is. How unavoidable and damaging this is.

  • Stephanya

    168d

    how much of a chore it is to get out of bed every day. I'm not lazy, sometimes I just can't face it

  • SecondChance

    167d

    It's more about what I don't understand and the fact I need to be honest with myself. The truth hurts a lot and it is scary.

  • kindkoala

    167d

    That it isn't a phase

  • RainbowzebraJules

    167d

    I have an assistance dog and the amount of time and energy it takes to rely on another being. Wouldn’t have it any other way

  • RainbowKai

    167d

    That I am indeed trying as hard as I can

  • enjoyskyblue

    167d

    That I know I "could" do so much better, if I wasn't sick. But I am, and I can't *stop* being sick. It's not my fault it takes me longer to do things, I cannot help it. I wish I could.

  • SlothMomma94

    167d

    Just how much energy it takes to exist or how much it takes keep going when you've been suffering your entire life especially if you've got multiple illnesses

  • Moonlight.Moth

    167d

    I'm not being lazy, I'm just tired and in pain

  • pinky3

    167d

    How this anxiety actually makes me feel, what the symptoms actually feel like. The struggle of dealing with it and trying not to give up.

  • Estarfyre

    167d

    That I get told I couldn't have gone through or can't be going through everything I've told them or that they see. I can't just be normal, my chronic pain, migraines and mental issues and past abuse make it so difficult.

  • Frances92

    167d

    When I turn down invites to hang out with coworkers. It's not personal! I genuinely have trouble socializing, and it's a boundary to not hang out with coworkers outside of the office. I already spend 40hrs a week with them!

  • Xinderella

    167d

    How much they hurt me

  • ringostarr

    166d

    how I don’t want to get better, I just want to rest. ā€œit gets betterā€ means nothing

  • Shoyo1hinata

    166d

    Everything that is important and how horribly they treat people.

  • BfbTeddyBear

    166d

    That sleep is like liquid gold

  • bellacourse

    166d

    That ignoring me is super destructive to my mental health

  • purplecow

    166d

    I'm not "just lazy"

  • Gaz

    164d

    that DIETING IS AGONY AND I KNOW WHY YOURE REALLY TELLING ME TO DIET MOM

  • AVW

    164d

    That even something as little as just existing is completely and utterly exhausting.

  • Soskae

    163d

    How much of a toll feeling like a burden can take on your mental and physical health.

  • Joany

    162d

    I can't force myself to do the seemingly "normal physical activities" everyone else can, because it can put my health at a high risk.

  • AutisticMama

    162d

    My head is constantly on overload. There's a million thoughts going at once and it makes everything else really overwhelming.

  • Seae

    162d

    They’ve been living, I’ve been surviving.

  • Denotchka

    161d

    That I need to discuss this situation and not feel like I am driving people nuts.

  • sarcasmic1der

    161d

    That good days don't necessarily mean a pain free day... or an issue free day.

  • darklover

    160d

    That I am not overdramatic or lazy or a weirdo I am just a little depressed

  • sorenachy

    160d

    That age has absolutely nothing to do with how you feel inside.

  • FS_cookielove

    160d

    Why she's hurtful and then neglectful to situations she's caused

  • Kupkake96

    159d

    How confused and alone I feel…

  • Ryou

    159d

    How we fight our own body and mind every day.

  • cartoonbean

    159d

    That the physical pain is debilitating but some days I struggle more with my mental pain than physical.

  • lune_mermxid

    159d

    Just because I'm aware of the symptoms, doesn't mean I can suddenly 'turn it off.'

  • couragousepilepic21

    159d

    I'm an adult and sometimes I would like to make a decision for myself.

  • Zuma

    158d

    I feel like people around me don’t get me. I’ve lived without them for 21 years, and I feel like absolutely no one gets me. I find it extremely difficult to find a friend that completely understands the situations that I go through. Once I find that friend, I would eventually want it to turn into a relationship, if that ever happens.

  • Vivelerock88

    158d

    How much time energy and money is spent on things to deal with our conditions like medical bills prescriptions navigating the healthcare system scheduling appointments seeking out pain relief etc. I could probably buy a house if I didn’t have so many medical bills

    • Meeeeeeeeeeeeeee

      83d

      nothing has made me value the NHS as much as this comment.

  • BuddyandSimba

    158d

    Same

  • Feral

    156d

    That im anxious to eat and leave my house and that i cant just power through it sometimes. Arfid and agarophobia seriously harm my everyday life. I cant even go to school anymore without panicking and im told to suck it up. And that im being overdramatic. I need to calm the fuck down..

  • Gaia_karma

    156d

    I feel this so hard

  • unicorn

    156d

    That I’m not just lazy or trying to ā€œwork the systemā€ and how much depression and anxiety affect my ability to function. Also that small things can trigger me and I’m not just overreacting and it’s not something I can control yet.

  • drinkingsomewater

    156d

    That healing takes a really long time and deep wounds leave really bad scars - metaphor for PTSD.

  • Kozlov

    156d

    What it feels like to me, or how I feel about things

  • betsybetsybetsy2021

    155d

    Living as they do dors NOT cure my depression or ease it in any way. The only way to happiness is to have a safe place to authentically be myself. I don't need to show all of me to everyone but home HAS to be a safe place to be myself. I can coexist with almost anyone who isn't telling me to me different but I really need friends. Isolating me puts this shy extrovert into a deficiency state that is literally painful and causes me to br reactive, desperately trying to find a group of people to chill with. Brooklyn can confirm that I am not noise sensitive.

  • moonlit_shiv

    155d

    It’s not nice to deny or invalidate someone when they express they are struggling.

  • J.ess

    154d

    It's not a choice

  • florals.and.fatigue

    83d

    How much time outside of uni I spend in bed

  • FreyaB

    83d

    How if a "normal" person had my symptoms for a week, they'd probably do the bare minimum and rest, yet because I have them all the time for the rest of my life, I have to act like normal and as if nothing's wrong. I find this so unfair.

  • Meeeeeeeeeeeeeee

    83d

    How much I struggle to do what they do as a norm, and how much I miss the connection to the Otherworlds which I have never got with the conventional realities.

  • kirstyelly

    83d

    How hard it is for me to do chores or remember important things

  • KitsuNari

    82d

    That sometimes, I don't know why I am upset.

  • MerlinTheWizard

    82d

    Alot of people don't get why I'm upset

  • Igglepiggle

    82d

    They don’t understand what it’s like living with an autoimmune disease at all they don’t get it when I say I’m fatigued they can’t understand and they never will unless they go through it too

    • MerlinTheWizard

      82d

      I was once called "the queen of sheba" by my mom when I was fatigued during a flare up.

      • Igglepiggle

        82d

        I’ve been in hospital 3 times because of my flare ups and still people in my personal life make comments that show they don’t understand and can’t