Struggling to Work: Need Advice

Yes I work as a teacher. I have had to miss school once because of a bad flare up but it was completely fine

Yes!

Unfortunately I had to quit a year ago and get on disability. In addition to the Dysautonomia, MCAS, etc I have CVID, thus no immune system. Aside from being a receptionist in my husband's tax office from January - May, I am at home, working on healing.

The guilt is real! 🙌 I try to continue to work full time so that I can support myself financially and pay off my medical bills. At the same time I know the stress of my job is a huge contributing factor of my flare ups. Never ending cycle!

No, I’m only just in college and I don’t know what to do about it all yet. I live on my own and I only recently stopped working. I’m trying to get disability but I’m so young I don’t know!

You are all awesome! Thanks

My husband is very supportive of me too, it helps with the guilt. It still bothers me but I agree that it is important to focus on my health.

I fight the guilty feeling every day especially seeing how stressful it is for my husband to be the only income. I just have to remind myself that right now me not working be focusing on my health is what’s best for me. Thankfully I have a supportive husband who has my best interest and health in mind while 100% backing my decision to to working!!!!!

I have several chronic illnesses some of which are genetic. I personally killed my self working 12-16 hour shifts with very few days off. Like 80 hours a week most of the time. I work in nursing in a very busy hospital ER, I did this for almost a decade. Unfortunately that wore down my body a lot faster than I should have. I made the decision 2.5 years ago to stop working and pursue disability! It became painfully obvious when I went to insert an IV on a patient and my wrist visibly dislocated in front of my patient. I also was dizzy while transporting a elderly patient up to the the floor late at night and ended up fainting while pushing the stretcher… I realized in these moments that I wasn’t just a liability to myself but more so to the patients who were in trusting me with there care! Idk if this helps but I’m very open to sharing my personal story to help others!

There's no shame in accepting help when you need it! 🤗💕

I was actually fired from my last job for missing so much time. With so many chronic illnesses (over 20) I decided disability was the best option for me. I can't commit to doing anything because I never know what the day is going to bring.

Nolin - I agree about all of the doctor appointments and I’ve had ER visits as well. I have been a teacher for 27 years, so it’s a little late in my career to make huge changes. I also agree with the guilt.

I'm able to work with accommodations. It's kind of a matter of finding the right job and the right tools to make it work with your body, I think.

I feel guilty about it though... Like ALL the time!!!

No... I had to stop working when I had too many Dr appointments to keep up.