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904d

Do you feel that your friends and family have a good idea of what is means to live with your conditions?

Top reply
    • mizzcali19

      2d

      @DancingDragonflies same here too sadly

    • mizzcali19

      2d

      Nope it's sad that family thinks we can just ignore it and push through it. I feel nobody will get it, or understand what we go through unless they go through it, but dealing with this mess I don't wish this on nobody. Anxiety, dizziness, panic, headache. Scared to move etc....

    • DancingDragonflies

      3d

      No. I also don't often share what I'm truly going through. The 24 hours a day of pain, fatigue, and feeling sick... I keep a lot of it to myself.

      • mizzcali19

        2d

        @DancingDragonflies same here too sadly

    • Jay13

      4d

      My mum does because she has the same stuff. It's all hereditary 😂 My dad and friends not so much. My friends have just one of my many conditions and they think that they are in so much more pain than me but I can't do most of the stuff they can. I brung up my pain once and they ignored me. They talk about their pain all the time and I can't

    • Tony51

      4d

      I don't think anyone understands how it feels to suffer from depression apart from people that also have depression

    • missey217

      5d

      No. Nobody in my immediate circle knows. I've had to explain why I'm on my diet and why I take so many medication/keep getting switched to different meds so many times. The most that happens is people will say I'm being a drama queen. No, I'm not. I'm in constant pain for various reasons.

    • TheDragonSystem

      6d

      No. I only have 4-5 family members who are willing to help me/us.

    • luke95

      13d

      😥

    • luke95

      13d

      ✋✋❤️❤️

    • gbowie981x

      16d

      Hell no....if anything all they do is judge me tell me its not real I'm attention seeking....!!!!

    • idk83

      16d

      Fuck no and they have no empathy for me they all hate me and it shows.

    • Overcomer

      16d

      I hope so

    • wheely_kismet

      62d

      No I'm constantly having to explain

    • destinni

      132d

      My mother does because she suffers from the same issues but at the same time I feel that makes her slightly unsympathetic to mine because if she can cope then surely I must be able to. My friends don't really know, but I feel like they would understand more than I think they would.

    • ikigali

      132d

      nope

    • Zebrapotato37659

      138d

      People tell me I just need to exercise or rest and I’ll feel better. But it’s chronic 😂 as we all know it doesn’t just go away by resting or exercise which can flare up your conditions. Some ppl are in denial

    • ProudDuck

      144d

      Most definitely not. I have autism and many allergies but I don't feel like I'm understood.

    • HiddenGem

      145d

      Definitely not. I try to hide my feelings but I can only do so much. I think that people know I’m struggling but don’t understand how seriously.

    • hydroepilepic21

      156d

      No, they say they do but I don't think they do

    • HighlyMagnified

      156d

      My family sure didn't. I have the highest degree of anyone in my family (master's), and I became homeless because I am not able to stand all day and couldn't get responses to my applications for desk jobs. My mom's attitude was that I should have majored in STEM even though the teachers discovered that math was a struggle for me as far back as second grade. I excelled in other things and was in the gifted program, so it wasn't treated as as big a deal as it should have been given the state of the economy this century.

    • GraveKeeper

      158d

      Not even a little

    • Dusty7850

      162d

      Absolutely not.

    • LeonardMartin

      164d

      Absolutely not. Most of my family is convinced that my genetic conditions(one of which my mother has) can be cured if I stop using my phone and exercise more. All of my diagnosed conditions are incurable and degenerative.

    • Overcomer

      205d

      It can be a cold experience

    • Overcomer

      205d

      No most don't but I can say only two does because they both has their own conditions. We talk about it how if one is not going through one will not understand

    • SueLaBear

      355d

      I think on a certain level, yes. But in other levels? No.

    • LofiBeanie

      370d

      Friends who gave similar conditions understand a lot more than my family does. I wish it was easier to help them understand and accept that I struggle with things rather than making me feel like a failure for having trouble with things.

    • phaed

      381d

      no.

    • Liffy43

      390d

      I try to hide it when I am in a lot of pain with my back. I think everyone would get sick of hearing me, and about how tired I am x

    • elvendork

      393d

      I don't tell my parents about most of my symptoms

    • lonelypotato13

      393d

      Partly, but my exs parents never did and thought i was useless and lazy

    • Rustyrobot

      398d

      Some of my family, mostly my mum and dad, have chronic illnesses, and some of my friends do to, but no one gets it, no one has my exact combo of needs and symptoms, and it doesn't feel like anyone really tries because they have chronic illnesses so they feel like they do get it when they dont

    • florals.and.fatigue

      400d

      My dad is starting to get it. I think he's surprised that I can be bedbound on occasion. The rest of my family are used to me complaining about my conditions though lol

    • MangoPoptart

      400d

      I got everything FROM my parents. My little sibling is also on the spectrum and my older sibling is autoimmune. 😄

    • thrillsnchills

      401d

      They have no idea and think I'm making it up.

    • DrakellaEuphrates

      401d

      No, but then agian... Somedays I can't believe I am living.

    • Thymee

      401d

      My best friend yeah since we're both autistic, depressed, anxious, etc. I mean obviously it affects us some kind of different ways, but my family definitely doesn't understand at all

    • pandamoose

      401d

      No not at all

    • 100p

      402d

      Yes my mom has a veryyy good idea of my conditions because she loves me a lot and always analyses my lows and downs, my medication regimen etc… i am grateful. Honestly it helps when it truly loves you and wants you to be better

    • Pastel_Elf

      402d

      Family, yes and no, certain things they understand, others, they don't. Friends don't understand the full extent of it, either

    • MetalheadRobb

      402d

      Honest answer my parents nope never really have and my partner actually uses it against me and makes me worse 🙃

    • TattsCatsNaps

      402d

      Sometimes - now they’re diagnosed they “have to” accept it if you will. Defiantly now it’s official. My friends are more understanding than my family. Many of my friends are also neurodiverse and we understand each other really well. I think my family dont like that many of my mental health concerns are caused by historical trauma - many of which they contributed too. They understand the physical health - but don’t take responsibility or like to recognise mental health struggles (e.g. PTSD).

    • mummyof2

      403d

      No! Not at all I'm just lazy and need to grow up, I no longer talk about it because of the criticism and negative remarks people make.😥

    • LexaPeach91

      403d

      My friends do their best, and some of my family sort of get it? But typically no, most people have no idea what my individual experience is like.

    • QueenBee90

      429d

      Literally NO ONE understands and I've died trying to explain over and over, I cry everyday about this. the thing is they need to understand so they can support me but its gotten so bad I've just given up and isolated myself and suffer in silence and sometimes they make symptoms worse and don't even notice or realise . My kids don't understand at all my son is starting to help me a little more as all he sees is me stressed out or upset but thats a start, my daughter is special needs so she may never understand bless her. ive literally spent a whole 6 years of my diagnosis telling everyone,l close to me trying to explain what its like and how it affects me, screaming out for help & having breakdowns. Its changed my life i had to leave a job i loved, and completely change my life around due to fibromyalgia, im literally telling them everyday what it feels like so much that's all I talk about and it's making me feel even more depressed 😔 ugh... that's only scraping the barell right now

    • Karrieanne73

      430d

      Nope not at all. My kids like to pretend nothings wrong with me. And my boyfriend likes to pretend he understands but he really doesnt

    • Babegirl2012

      431d

      My family accepts it because my sister is a Nurse RN

    • Marmie

      431d

      They don’t care !

    • Chrissyposi

      431d

      Not one bit

    • doremy

      431d

      nowadays, they’re learning. it took a long time for them to realise the severity of what i deal with - even now i’m sometimes labelled as “lazy” and such. it helps that my mother has chronic illness too, and whilst we don’t share the same symptoms necessarily it does allow us to empathise with each other more.

    • Harley100719

      431d

      Not even to the slightest bit

    • thepatrynreader

      431d

      Absolutely not

    • Scarletteve

      431d

      To an extent they do but sometimes they forget. Sometimes I wish they could spend a day in my shoes

    • SuccubusOnWheels

      434d

      Luckily I feel that my mum understands really well, as she has fibro herself now too... it took her a long time to realise how much pain I was actually in, and that I wasn't just "putting it on", but once she realised, she was a lot more understanding and caring about it, and made a lot of effort to learn about my conditions and how they affect me. My partners are also absolutely wonderful at this, and they listen to me so well they know when somethings wrong before I do most of the time! - they can see just from how I move whether I'm in a lot of pain or not, and they do their best to take care of me, even when all they can do is be with me through the pain xx💕 It is possible for people to understand or at least try to understand what you're going through. And if they don't want to learn, they aren't worth your time and effort to teach them - your energy is much more worthwhile elsewhere xxx

    • FaeFlower

      434d

      Not at all and I don't really understand them either. I think its more frustrating with my mom since my adhd is a recent diagnosis that i am learning about as well

    • Len

      434d

      I don't think so. It's hard to grasp the condition capgras syndrome alone, even more so in someone so young. Most people just try to avoid talking about it because it's kinda crazy honestly.

    • AngieBear1025

      434d

      No I don't think they can even imagine what I go through. I was born with birth defects of the kidney from my birth mom using drugs while pregnant with me. I get infections constantly and the bacteria gets resistant to the drugs so I have to wait it out and suffer. They will never understand 😥

    • DogWhisperer

      434d

      My parents don't understand or care at all. With the pain I'm in on a daily basis, some being worse than others, I dont want to be out of bed. Standing doing dishes or making dinner kills me. Sweeping the floor kills me. Other days I'm ok for just enough time to do one of those without it completely wearing me out. My anxiety and depression and all my mood disorders make it hard to want to get out of bed at times too. One day I want to stay in bed, the next day I'm eager to help. I don't pick and choose which days I want to feel good. When I try to explain it, all I get is oh come on, give me a break. Or I hurt too you know. I've seen them in pain. Never knocked to the floor from sudden shots of sharp pain, or flung to wall because your back spazzed so bad it jerked you. Or your hip/groin area give out and you barely catch yourself on the counter. All of this and more and I can't get disability. I was also told by a damn Dr before that this is normal for a person my age!! Im only 43! I have also lost strength in my right side, which I lean on more than my right. Told that by a dr as well. With my physical and mental issues, I can't work. But it's normal. FML

    • PhoenixValkyrie

      435d

      Some. But certain ones don't understand how treating mental health with therapy and meds is just like treating any other medical issue. Which I think is why some of them struggle themselves.

    • BbyBunnny

      435d

      My family tries but I don't think they have any clue, whenever I speak about any of it they respond in a way that shows that they think its not even close to how bad it actually it. They mean well and they do try to understand, but they don't fully. My friends happen to be chronically ill or deal with chronic pain as well. So I can tell they understand to some extent, but only with some of my symptoms. But they try and understand the parts that they don't experience as well too

    • Hotwheels

      436d

      Not even close. They think they understand because of their own conditions, but they do not understand.

    • Sissy2

      436d

      My family understands my issues they all have their own medical problems

    • LaurenRomero

      436d

      No I’m the only one in my family with all these problems and no one knows how I feel.

      • Marmie

        431d

        @LaurenRomero same here my family isn’t supportive at all makes me worse xx

    • PickleNew

      439d

      Not at all they just scold me and tell me that I need to change. It makes me mad.

      • PickleNew

        439d

        @PickleNew Or they try to "fix it".

    • kateafranklin

      439d

      My boyfriend is so accommodating and understanding. He doesn’t understand my situation but wants to help in any way he can and I love him for it. He’s truly a blessing. It’s hard because we are long distance and I wish we were closer!

    • FreyaB

      439d

      No no I don't think they do or will until they experience it for themselves. 😥

    • Rizbit

      440d

      One does, but the rest don't. 😥

    • UnknownGalaxySystem

      445d

      My friends do, and so does my partner. My family I don't think should know.

    • MashedPotatoBrain

      445d

      My partner is very supportive, however, she sometimes struggles with my mood swings, but that's understandable. My daughters help me when I have a seizure, even though it can be very scary for them seeing such a thing, my eldest has done some research into different seizure disorders in school (she's only 12), in an attempt to help me through it all, my (autistic) 8 year old though, she gets me a drink when I come around, she helps in her own way and it is really good for the after seizure dry mouth. All in all, I'm in a really good place for support, even though these days it feels like my girls are caring for me when I should be the one caring for them.

    • Q31525

      445d

      no, but they’re trying their best to understand me. so A for effort.

    • ZebracornV

      445d

      My family is pretty agreeable, which sounds nice but also means I don’t know how much they understand or believe my symptoms vs just being nice. I tend not to talk about it much outside of my nuclear family and am constantly notice when their minds start wandering to other things. I get it though. I’m certain I have responded the same way to others before I understood the struggle. It’s really hard to understand when you have no comparable experiences.

    • Annye

      446d

      No. My husband says he understands but yet gets annoyed when I need to rest, or I am feeling more sleepy than usual. Doesn’t understand I need extra rest in order to feel better. My mom and sister think I’m just over dramatic and don’t believe in my conditions. They all think I’m just taking my meds for “fun”. This is why I joined this group. Because I know no matter what I post I won’t be judged and I can vent on here if I want to. I Can talk to people who actually understand and are going through similar things.

    • sarrosieposie

      446d

      I believe my partner and aunt and uncle do. My dad spent 4 months with me in a different state to under go treatment and I believe he gets it now. My mom is starting to get it more as she's seeing how fast I get a rash or hives to the smallest things. I've also been showing her subluxations and asking her if things look even. It's made a big difference

    • Scoutie

      446d

      Not sure

    • Newton_Kingsley_035

      446d

      I do but I dont.. I'm not 100% sure they /understand/ me. But I know they love me, and even though sometimes it's harder than others. I know they'll support me, even if they don't understand.

    • ClaireAngel

      447d

      Hubby yes, everyone else...no 😢

    • Pinkdreamer

      447d

      Not at all.

    • SuccinctAbilities

      447d

      My literal physician parent doesn’t believe any of my symptoms, even after being hospitalised. There’s some folks you just can win over, and that’s not on us. Still sucks, but I’ve found it better to put effort into relationships with folks who are willing to understand and care about my well-being 😌💕

    • thestinkmaster

      448d

      nope ❤️

    • LilyUnicorn

      448d

      My husband never understood my migraines until a few years. They had that commercial on that said if your migraines are like this.... It really scared my husband then shortly after that we were at the dr office and we were looking at the mri of spine which is sitting 2/3 out of a lineament. Nobody understands my nerve damaged spine and organs. Or the severe daily migraines

    • RedMeerkat

      448d

      Absolutely not

    • MarVell84

      448d

      Hell no ❤️

    • purpleSheep

      448d

      no & they don’t make an effort to either

    • HocusFocus

      448d

      Hahahaha that's funny. HELL NO.

    • Larry_Larrison

      448d

      No

    • Nicole_J

      448d

      Kinda

    • JustJessNess

      448d

      I try but they will never fully understand. No one can unless they have experienced it.

    • reallyrocks

      448d

      No. Was disowned.

      • HocusFocus

        448d

        @reallyrocks I'm so so sorry. I'm here.

    • ImTlc

      449d

      Fibromyalgia is hereditary in my family and affects my mom, brother, sister, and son. But the rest of them either don't try to understand or care, they just think it's my excuse to be lazy and get attention!

      • HocusFocus

        448d

        @ImTlc I hear that. My family told similar stuff for years and dismissed me. Said it was my fault my stomach constantly hurt or something. Now that it's been diagnosed they're sorta trying

    • Boos_mum

      449d

      My adult children do but my mother doesn't.

    • zozo131

      449d

      My mum understands quite well as she has the same symptoms but my stepdad thinks I’m lazy/cba but is completely the opposite with his daughter, who has similar problems to me. It’s like he tries to d***-measure between me and her. My two friends understand pretty well but I try and push through it when I’m with them because I don’t want to be a burden on anyone, especially them!!

    • 011_Eleven

      449d

      No. Not at all. And no amount of explaining will ever make them understand.

    • Kelso9344

      449d

      My best friend? Yes. My family? Absolutely not

    • Redvelninja

      449d

      Not really no

    • Ashcookie

      449d

      My grandma no but my mom and dad yes.

    • MarVell84

      449d

      My ex couldn't understand my conditions or how they affected me

    • CraftyMama

      449d

      Considering I have so many of them.... Not at all. It has an impact on socialization, relationships, mental health. I've taken an interest in the medical field and have been mistaken for a nurse only because I could articulate what I had going on with me. I can't use that knowledge in the industry though... because of my conditions.

    • Coraciidae

      450d

      I think the people I'm truly close to do the best they can to understand, but most people that are really close to me don't have chronic conditions.

    • SizzleNickel

      450d

      Not My Biological Family

    • Demon

      452d

      Most of my immediate family is disabled but so far no one truly understands even if we have the same conditions. I have far more than anyone I know and they impact eachother. I don't think anybody really knows how hard it is for me to get up every day or meet deadlines. Some of them try...but most just don't care because "I have the same thing and I'm fine" but it's not the same...because it's not just 1 thing its every condition all day everyday...

    • WitchyWoman89

      452d

      My friends try, my family though not even close. I have a small circle of friends and my bestie understands what I go through better than any mostly healthy person really can.

    • teiovex

      452d

      nobody will every truly understand, they can’t, but I know how much they understand because they see all amd go through it with me. these conditions we have… they can and do affect others in our lives (not implying a responsibility/ETC) and it’s crazy to be connected like that.

    • TheNewNormal

      454d

      I wouldn't say they understand but for the most part they are respectful, work colleagues/managers on the other hand 🙄 Everytime I'm told 'oh I've had a bad back before, just grab an ice pack out of the fridge' or 'ohh I have to go to the toilet alot, it's only about 20 steps from ___ you' ll be fine'... I could scream...

    • Pinkdreamer

      455d

      No. They tolerate me but do not have a clue what I live with every day. Sometimes they just get irritated with me.

    • IndigoBro

      456d

      I come from a family who is very ignorant about mental health and it is very stigmatized. No wonder everyone is suffering in their own cycles. We have very limited vocabulary for describing emotional experiences, which are mostly invalidated. If you asked them “how do you feel” they would get confused and not know how to answer most of the time. I know I still start describing events when people ask me 😅. Depression, Anxiety, PTSD, OCD = “It’s all in your head, get over it”. Signs of weakness. Gender = what’s in your pants. Trans people are crazy. “Stop pretending, be honest with me” “you’re not being honest with yourself” So no, my family has no idea what I experience, and if/when I tell them they don’t believe it. I feel sorry that they fear emotions so much. I try to educate myself and then slowly educate them.

    • BeeMarrie

      458d

      Partly , my dad tries to be supportive and understanding same with mum but my sister has no idea

      • BeeMarrie

        458d

        @BeeMarrie Its like she judges me constantly

    • Memeoid

      458d

      No, unfortunately they really don’t. 😞

    • Birdies

      458d

      Not at all, I stopped talking about my health to mostly everyone

    • Flowertulip2340

      458d

      Nope not a clue not even my partner understands fully. I think your best judge is always yourself.

    • avocadocherry

      458d

      yes. i think my parents understand because i’m 18 and living at home and they see it and experience it with me too be honest.

      • avocadocherry

        458d

        @avocadocherry but of course i think its very difficult for anyone to understand it fully unless they have experienced it themselves

    • BlondeGirl1216

      458d

      No. They can try and sympathise but they never truly know what it is like. Sometimes people with the exact same conditions struggle with understanding how you maybe feeling. No one person experiences things the same way as another. It takes time for everyone to adjust after a diagnosis. The biggest thing to remember is: Be Kind, to yourself and those around you. Its not always easy but just as you are grieving losing your old self and accepting the new 'normal' they are adjusting too. Sometimes I want to scream at my family/friends, comments like "Just keep your head" or "Oh aren't you looking well" drive me mad when its taken me everything to get up and dressed. But they are trying to be supportive and trying find something anything to say to make me feel better. Their intentions are to support me and comfort me and I know when I need them they will be by my side. Its just hard on everyone but without their support it would be a hell of a lot harder.

    • Mommaspoondani

      458d

      Absolutely not! I think they try their best though. I spent years trying to get my family to truly know what I’m going through- but it’s impossible. They never can truly understand chronic illness or pain being able-bodied. They can sympathize but not empathize. But Ive discovered that their validation isn’t necessary for me to feel confident in my skin and conditions. I took the time to grieve my old life and the desire for pure understanding. It’s very lonely at times but family can support you in so many wonderful ways without understanding the pain you experience or what you go through.

    • Knees

      458d

      No, I have Ehlers Danlos Syndrome, and one of the main things I struggle with is my joints dislocating. I don’t think my family began to see these symptoms of my illness until I got a concussion from my knee coming out and falling in the shower. More recently, my family has seen my Eds get more progressive and have better learned what it is like. I think some of them understand but definitely not all.

    • Pain_Warrior89

      460d

      I can be screaming on floor in pain and my dad's lines is 'do more exercise'

    • Pain_Warrior89

      460d

      Not in the slightest 2 out of 3 don't believe it

    • Ealex44

      460d

      No... even my boyfriend sometimes will surprise me with his ignorance, and he's the most accepting person in my life.

    • thestinkmaster

      460d

      not really. my mom has been recently feeling bouts of anxiety so she kind of gets it now, but im still misunderstood for the most part even with my paper diagnoses.

    • Nina716

      460d

      Some do, some try to and a few don't even try and think I'm lying about how I'm feeling.

    • Fawwn

      460d

      No

    • Skippyskep

      460d

      Just my oldest sister

    • ThymeTea

      460d

      Somewhat but not really

    • jh51racer

      461d

      Not the slightest bit , it’s a battle just to get out of bed.

    • MerryHell93

      461d

      Some do some don't and I think it's really difficult when my family continuously forgets I need help or adjustments I feel like they don't care even though I know they love me 🙃

    • AmethystRain

      461d

      Not at all

    • SecondChance

      461d

      Have I said no to this.....well it's a no from me Simon

    • Trudie_tootie

      461d

      The ones that would have all passed away. . The rest make me feel like I'm a burden even when I don't ask for anything.

      • Pain_Warrior89

        460d

        @Trudie_tootie yea I get that

    • KittyGreen

      462d

      Hahaha no hell no I hear a lot of "oh sometimes my muscles hurts to" and "I have sad memories to"

    • SEVIN

      462d

      NOPE

    • betsybetsybetsy2021

      463d

      No, the people I live with tend to make up their own stories and add stuff to mine that isn't relevant. My search history isn't usually about me. Sometimes it is for a friend. Sometimes it is for a freaking crossword clue. I belonged to a group for older adults and I looked up a picture of Hitler to reference the atrocities... I am perfectly capable of speaking for myself but few let me or give me space to speak.

    • LynnKenzie

      463d

      Nope, not a clue. I try to explain it to them but they don't think it's that bad.

    • MerlinTheWizard

      463d

      No. I got my mom saying. "Oh, people just get sad sometimes." When I have suicidal thoughts. And I don’t know what my parents were thinking but takeing me out of school and just putting me in a playroom by myself while they worked did....sometimes to my psychology and self image as a person...... I like to think they at least thought they were doing the right thing. But if "school is a prison" then that playroom was solitary confinement.

      • betsybetsybetsy2021

        463d

        @MerlinTheWizard I relate strongly. So glad I had school. Later in adults I had people who thought I needed more solitary time. I am great at self-reflection. I need a peer group of others with the same goals and similar experiences. I hope you can find the same.

    • motor

      463d

      No

    • Zebragirl

      464d

      No, they don't like me to talk about it. They don't understand and don't seem to want to. They want me with abelists on MY health and care. My mom has her own set of physical issues and is the kind of person that says "just be positive" when I talk about my symptoms meanwhile she's always talking about hers

    • avian

      464d

      no. my mom has always been severely chronically ill, but even she never believed me about my symptoms growing up.

    • Misanthropic

      467d

      No. They basically tell me to get over it and life goes on🥲

    • SuicideShrimp

      467d

      Nope my dad once told me if I wanna die so bad I should just do it

      • betsybetsybetsy2021

        463d

        @SuicideShrimp I am so sorry. That must have hurt. Glad you didn't. 🫂

    • justdoingmybest

      467d

      My health problems stem from my family history, so I guess they understand, I just have the ultimate mashup of their issues. The problem is that they don’t seek out help for themselves, so it’s hard for me to do it for myself. My family sees chronic pain as normal, and I’m still learning that so many of the things I experience are abnormal and resulting from my health conditions.

    • Shebear13

      467d

      No idea

    • Jaejae

      467d

      No

    • Jennifer81

      467d

      Nope 😥

    • Keisha

      468d

      depending on the condition, yes. i share a handful with both my family and friends.

    • JessJesse

      468d

      Nope

    • Angelbabz

      468d

      Hell No! 😥

    • dinky23

      468d

      Not at all. I think some of them try, and maybe understand parts of it. But one person in particular doesn’t even try, and honestly tries to downplay my conditions any chance he gets. It is extremely frustrating and hurtful.

    • Fernoooo

      468d

      No, I find some family deliberately try to ignore my chronic health problems because it’s uncomfortable to think/talk about. It does really annoy me though

    • Arianwen

      469d

      Absolutely not!

    • Littlemisssickness

      469d

      Not really everyone still expects me to do everything a well person would do x

    • Fiddlesticks

      469d

      No. I’m expected to be perfect and do everything as the oldest child still living at home. My brother can do anything or act however he wants and it doesn’t matter. Even though I struggle with so much and he doesn’t

    • immanentlight

      469d

      No

    • Squire

      469d

      Most of the time

    • Ziggy_B

      469d

      Absolutely not. I think they think they do when they get the slightest taste of anxiety or depression but they don't. They don't deal with the tons of stuff that comes with it.

    • bubs34

      469d

      Eh, some of them share my mental conditions. But others just say "it's a hoax" or things like that

    • ickyichthyosaur

      469d

      People act sympathetic and all but I still can't talk about anything. Even my purely medical conditions, hypothyroidism ties into lithium as a possible cause which I'm on for chronic suicidal ideation. When I say I'm autistic people picture the polished and selectively shared version they see on TikTok then get all [surprised Pikachu meme] when I can't always talk or keep up with hygiene or I have meltdowns or get stranded downtown or get stuck on basic social things or have incontinence problems from low interoception, etc. Also my dad's side can be rather transphobic.

    • Josephine2356

      469d

      No, but on some level they do. They don't understand chronic illnesses but they definitely try to be helpful

    • AnnikaS

      469d

      My mum surely tries, but especially the fact that I still need to be careful with Covid makes it hard. My family lives in a different country so I’m visiting very rarely and need them to be careful as well while I visit, but mask slip a lot, are just „being forgotten at home“ or I get constantly asked „can I take it off now“? It‘s just frustrating and it’s making me really anxious during visits. My boyfriend however really gets it.

    • moonlitforest

      470d

      My fiance and I are constantly battling against my family. Hers has become more understanding but I think there are still things they don't believe. My family on the other hand calls us lazy, that we mooch of others and that our pain isn't real because we to young to understand it. And that if it's not medically diagnosed we don't have it. My fiance and I both deal with invisible disabilities and it hurts a lot knowing those Im supposed to love, don't care.

    • EllySmelly

      470d

      Absolutely not. My mother routinely tells me to just get my license even tho I'm legally blind... She has also expressed that she believes suicide is selfish. My brother is Bipolar like me and he doesn't get it either. The only people I can actually talk to about medical stuff is my fiancée and my friend who also struggles with the same/similar conditions as me. It's hard being a spoonie and having invisible illnesses tbh.

    • Sarahaap602

      470d

      They try but I think it’s hard to try and think about how it is to live in my shoes as they can’t imagine the pain and stress and I out of a brave face constantly so sometimes they can’t even see anything is wrong

    • Redvelninja

      470d

      No don't think in the slightest they have any actual idea. They think they do, but they don't. When I ask to try to meet me in the middle, it's like they can't because apparently to them I have to meet them in the middle but they don't have to. So frustrating. So I just don't even bother them.

    • Tips

      470d

      No remotely

    • FS_cookielove

      470d

      Absolutely not

    • AriaS

      470d

      nope

    • Dominemors

      470d

      Nope

    • theresa24

      471d

      No 😥

    • Geegee9

      471d

      Never ever 😥

    • AnxietyGirl79

      471d

      Not at all, especially my family because they are emotionally abusive towards me every day, I'm trapped with these people and have no way out

      • Sarahaap602

        470d

        @AnxietyGirl79 I used to be like this I recently got my own place and it has helped so much it’s so hard when ur there and everyone says it will get better and it will but Ik how hard it is to keeping going until it does I’m always here if u need a chat 💕

      • FS_cookielove

        470d

        @AnxietyGirl79 I felt the same way, tried calling the cops and my mom told them I was crazy and needed to be locked up in a mental health facility

    • Rueuwu

      471d

      Yeah they definitely do they’re so understanding :)

    • KayNF

      471d

      Yes and no. Sometimes they understand stand and others they don't understand what it is like.

    • aminapp

      471d

      I don't think anyone can fully understand what you're experiencing. With my family, I avoid speaking to my parents about my mental health because I know I will get responses that are misunderstanding and/or negative. I have learnt not to dislike them because of this, because I know they come from backgrounds and life experiences where they were raised with different teachings and thoughts of mental health. Yes, sometimes I do wish they would put in the effort to understand, but that is a losing battle. With my siblings I find it easier to discuss and through the years I have seen their response to certain circumstances be a lot more comforting and understanding. With some people it requires patience and the understanding that it takes time for some to learn and understand how to provide you the best support. I have friends who are empathetic towards my circumstances, learn to understand my mental health and are always prepared to listen to me when I am struggling. They also have their individual mental health circumstances they are dealing with, which allows the whole relationship to be more understanding and empathetic. And because I have that support I am so grateful and content that. Through the years I've also had professional help, which has guided me to deal with certain situations better and understand & deal with my behaviours and thoughts better. Sometimes it's not your family who can be the ones to support you. I know that may be upsetting to think like that, but it is sometimes looking at who else is there. Sometimes it's family, sometimes it's friends, sometimes it's a stranger or someone on an app like this and sometimes it's professional help (and sometimes it's the latter) 💕

    • J.ess

      471d

      Not in the slightest

    • Abigailborja

      471d

      Not really 😕

    • Melancholyghosts

      472d

      My dad does but I don’t think my partner fully understands that it’s a life long condition and they will have to be my carer if we move in together

    • moonlit_shiv

      472d

      I don’t think they do fully understand, and I think it’s better this way. They know enough to understand how best to support me, but not more than that where it becomes an unnecessary burden in their well-being.

    • upsidedownsmile

      475d

      I feel like no one can understand and no one really knows how bad its been but when it's really bad I'm in denial and when my depression isn't as bad I'm scared to tell them about how bad it can get. They know I'm depressed but not the extent of it all. It's lonely and scary

    • blue_hearted_rose

      476d

      They're trying. But they really dont get it, mostly because they don't have the same cocktail. I think my mom is the absolute closest, but we still differ within our conditions so she's never gonna get it 100% right.

    • Bombus_Flavifrons

      476d

      Really only my stepmom and even then I feel like she's mostly projecting her own experiences with chronic pain. I asked her for knee braces because I think they're pretty bad but she says they aren't bad enough for that and got me a cane instead. Most every is respectful but I get so many questions about my cane and why I'm rarely in class and it's infuriating.

    • lune_mermxid

      476d

      I feel like they don't really understand until they see first-hand what I'm actually going through. For instance, I can't tell my mum I'm feeling depressed; I have to experience the depressive episodes for her to finally get that maybe. JUST MAYBE. I'm not actually doing okay.

    • Kupkake96

      476d

      Not at all…

    • darklover

      477d

      No my cousin's and aunts and uncles try to fix me and say that I am overdramatic but my parents and sister always understand 💕💕

    • Saviiii

      477d

      I feel like my mom understands my feelings and conditions the most. I know my dad tries but sometimes he just doesn't understand.

    • lucyj90

      478d

      Not at all. They say they do. But I've overheard them talking about me saying I'm lazy and I don't try. But no e of them realise how hard having Fibromyalgia is just to do daily things add depression and anxiety into the mix and it can immobilise you entirely. They have no clue how hard it is just to get out of bed somedays and because of this I push my self to my limits to try and be normal which takes its toll 😥

      • Pain_Warrior89

        460d

        @lucyj90 it's horrible when u hear thing. My dad didn't but the phone down properly n him n my siis were talking about being lazy waste of space etc... after 10min I hung up cus I cudnt hear anymore.anyone would think I like and asked for my chronic pain an other things. To my dad ill never live up to my sister he even treats our dogs differently that it makes me not want kids (found out I cnt have them now anyway

    • Joany

      479d

      It's been 20 since my mother brought me to this world, and no other family member has known me better than she has. She knows me better than I know myself! ❤️ But sometimes, It's not a matter of who knows you, it's a matter of knowing someone else who's been through the same things you're currently going through, or have personally been through. There's a difference in receiving support from many of your loved ones, and finding just one person who, not only gives you support, but becomes your motivation to keep pushing forward in this world, knowing that you aren't physically or mentally dealing with your condition alone anymore 😅❤️

    • StarrKeats

      480d

      definitely not

    • Gaz

      481d

      Depends on the disorder. Autism - no one in my family is diagnosed but me, but a lot of my family members are... what's "fruity" but for autism instead of being gay? That. My partner is almost definitely autistic and is working on nailing down a diagnosis. ADHD - Two of my siblings have it, so they get the basic gist, executive dysfunction, hyperfixation, the absolute drain on spoons it can be sometimes, but other times they're less undderstanding. I also have friends with ADHD I can speak with who will get me. IIH - NO ONE. My parents use my disorder as an excuse to try and guilt trip me into losing weight. Dieting made me miserable. It made me want to [redacted]. I would LOVE to meet other people with IIH. PLEASE.

    • sageblanl

      481d

      Nope. I explain to them that social interaction stresses me out and that's why I become violent and agitated, their solution? Send me to group therapy.

    • TraumaHarley

      481d

      I feel like they don't. My uncle is on meds and sees a psych and all that but I feel what he forgets is not everyone's trauma or life is the same an not everyone handles theirs the same... So I feel like even tho he should understand, he really doesn't. Which sucks cus it's like being hypocritical of someone with like issues as yourself, and he feels like he helps when in reality his steps are his and mine are mine and they are not the same, just simply alike. Bitter sweet cus I wish I did have him to lean on.

    • Semiz

      481d

      Mine do. My wonderful support system is what keeps me going, my boyfriend especially. Everyone who I'm close to is very understanding of my mental illness and tries to help whenever they can. I'm very lucky to have them

    • ceruleanstar

      481d

      Ha! Absolutely not!

    • kk062001

      482d

      definitely not. my family has no clue. they think i’m being dramatic or I have a low pain tolerance.

    • Kaislyn

      482d

      I feel like some try more than others, but no one really understands. I don’t think anyone ever will though because it’s always so complex and difficult for them to understand sometimes. What I go through I don’t think people fathom is possible sometimes for someone to go through.

    • Denotchka

      482d

      No apparently not.

    • Wheezy_Painful

      482d

      I know they’re trying their best to understand, and with my chronic pain they’re very helpful and do anything they can to make me comfortable and relaxed, but with my autism they do very little to help me out in moments of meltdown or sensory overload and even sometimes tell me to ‘get over it’

    • mthebrave

      482d

      Parents have the most understanding, then friends then some other family but even I feel they understand and then suddenly, they don't. I've had friends say my illness reminds them of trauma with their parents, get angry and guilt me when I can't physically help them, doctors gaslit me for 7 years and my sister said I was wasting my life and I'm pathetic when I was bed bound before I was diagnosed, exes have split up with me when I haven't been able to be present due to being in hospital. They just don't understand it because it's hidden but even wheelchair users are misunderstood at times, people really just don't understand till they've walked in your shoes and that's why meeting others like on this app is helpful :) PS. I have ankylosing spondylitis it's a form of arthritis

    • Harli

      483d

      I feel that the friends in my inner circle do, but I don't feel like my family understands at all.

    • JJ_Likes_Bees

      483d

      My friends understand all of them and accept me, i only need to explain the DID to them

    • sarcasmic1der

      483d

      I have some friends who don't get it but totally empathize... I know my kids don't understand but they see the pain so they try and help. My parents absolutely do not get it. My husband tries but still is pretty clueless. I feel very alone feeling all of my feelings

    • Nicoratboy

      483d

      My friends do my family doesn’t

    • Cookielady

      484d

      No they don't get it at all 😥

    • anniev

      484d

      Nope. They say it's all in my head

    • illdothislater

      484d

      I was raised with enough toxic positivity that i know if i share anything like that with my mom she'll just say something like "you can't let this stuff get to you!" or "you can do anything you set your mind to!"

      • anniev

        484d

        @illdothislater absolutely the same for me

    • SecondChance

      484d

      No I am in so much pain. I would never wish this upon anyone😥

    • Athena80

      484d

      No. My cousin has depression but she always ignores what I say and tries to act like she's the only person who can be mentally ill in our family. No one understands me.

    • Gnomia

      484d

      Only my best friend because she is going through it too. Everyone else… “you look healthy, I’m sure you’re fine.. it’s probably just mental” 🤮

    • SuicideShrimp

      485d

      Not even a little bit

    • Boat

      485d

      Kind of

    • beccabeme

      485d

      Family yes .. husband no😥

    • Peechii

      486d

      My mother is starting to try and understand and i havr one friend who is very considerate and understands as much as she can without experiencing what i do but everyone else in my family and friend group think im lazy and annoying and looking for attention and milking it or being stupid. Its not a nice place to be in but its lovely to have at least 2 people willing to understand and its such a relief and so overwhelming (in a good way) when they actually do seem to understand or accept you cant do certain things (even if you can at other times)

    • lazydaisy

      487d

      Not really, but at this point anyone who tries to understand is enough for me ❤️

    • mjn13

      487d

      no, it’s difficult for them to understand especially when they say i’m just being lazy but actually it’s because of my adhd

    • allymwa

      487d

      definitely not. i think they so so greatly underestimate how hard it is every day and because i have mostly mental health issues, it’s even harder for them to grasp bc its not like a universal experience such as physical pain

    • Rory_

      487d

      Sadly, no. Amongst my family, I am one of the only ones with such a complex medical background at such a young age. The only other person in my life whom I know has just as many ‘issues’ as me, is my grandmother, which is expected with age. I truly do not think my family + partner understand or could ever comprehend the daily struggles I encounter, nor the overbearing sense of shame that being labelled as disabled at age 18 (that was when I was first written off as disabled by a GP, I am now 21) can bring me on the days I feel severely low. My family are also fairly emotionally closed off, more so there for practical/physical help opposed to emotional support. Which doesn’t help, but I take each day as it comes and have understood I need to be my own support network.

    • stayfrosty

      488d

      my girlfriend and my close friends definitely do, not so much my family except my mam. the rest of them just cannot grasp the fact that i'm 21 and can barely walk, let alone the mental health stuff

    • StarrKeats

      488d

      no they just call me lazy but I have a chronic disease

    • ashbear2022

      489d

      No. Even though my spouse and kids do attempt to understand (or at least they say they do), they don't seem to get that it is causing more emotional trauma to me that they are suddenly extremely unforgiving of my actions despite me not having much control ATM of them. Sommething occurred within me over the summer and long story short I had a 2ish month long blackout. I don't remember anything but a few monents here and there but still no sense of a timeline. Point being they blame me and won't let me forget that I wronged them/hurt them (emotionally) and they had to take care of me. Its like I'm living with semi- strangers and I am some sort of monster.

    • HiddenGem

      489d

      No. I think my friends just feel bad for me and my family thinks I’m being too dramatic. It feels like no one is listening to what I’m saying and just hopes it’ll go away so they don’t have to say anything to me

    • VaehVaeh

      489d

      Yes bcz we all have something in common lol

    • Locien

      489d

      I think only a few friends have a good idea, but it's always been their decision to learn more and try to understand to the best of their abilities

    • Scampilou

      489d

      NO!!!!!!!!

    • hydroepilepic21

      489d

      No, they just dis me all the time more my fam than my friends

    • Ankysaurus

      490d

      No not at all they have no idea they try in their own way to be supportive but end up making me feel worse, I literally have no close friends to talk to at all so end up feeling quite alone

    • Njade

      490d

      Absolutely not. My friends and family are supportive and would understand but i just feel unable to express and talk about my emotions and struggles. I am very private especially with my family for no reason. It just feels safer that way. Even though there probably is no danger in sharing. I just hate feeling vulnerable about sharing things, even though i know theres no shame and nothing wrong with being vulnerable.

    • Melissa28

      491d

      Yes, 100%. I have dyspraxia and autism and no one understands how hard it is for me to do simple things like tie my shoes or walk. It sucks. I try to explain it to people but a lot of them say that I'm either making it up or that I'm using it as an excuse. There are people however that do show empathy and take the time to listen and try to understand my struggles on a daily basis and I'm greatly for that but I feel like unless you have what I have you'll never properly understand it.

    • Levi_

      492d

      Nope

    • MaryLemon

      492d

      Nope. Even some family members with the same condition will tell me to talk it off, or it's not that bad, mind over matter... Bs like that 🙄😒

      • MaryLemon

        492d

        @MaryLemon *walk it off

    • faerywyrm

      492d

      My family finally realizes how bad off I am, after 20 years. Now I am a burden. At least they'll pick me up for Christmas.

    • OceanH2O

      492d

      No, definitely not.. they always tell me to "get over it" and tell me it's not bad like I say.. sometimes I just think about how they'd feel if they were me.. nobody has the right to judge. You're all amazing and beautiful the way you are!😥❤️

    • Leopuppy

      493d

      Never my own mom has bipolar like I do and she doesn't know how I feel at all

    • Tracks

      493d

      My mom does, she has a version of spina bifida also like me. I don’t think my other family members understand.

    • Mara.Vaughn

      493d

      I don't feel that my family understands well. I have been self-employed because my conditions limit my ability to work at a business. However, my family does not want to understand that. I am told often about how I would earn more at a business compared to being self-employed. I am aware of this, I am not able to do much about that so I wish I wasn't constantly reminded. I have already tried to work at a business multiple times. I am doing fine on my own, so I don't know why family are refusing to listen to me about my health

    • Wednesday_7

      493d

      No, they are so annoying and speak over me in 504 and doctors meetings as if I don’t know my own symptoms.

    • LaEly

      493d

      No, my family tells me to suck it up and be happy. If only it were that easy😭

    • hurt_copain

      493d

      Not at all, except 2. Depression and anxiety are common

    • Soft_Boy

      493d

      yes and no 😥

    • Bellea606

      493d

      Absolutely not. I feel so alone

    • Lkbmotion

      493d

      Not at all

    • Nimah

      494d

      No they don't - maybe my sister.

    • KayTBB

      494d

      It depends on the person(s), what mood they are in, etc. I feel like mood disorders run in my family, my ex- husband's and my husbands

    • SpaceCase92

      494d

      I believe my husband refuses to understand 😥

    • LorrainK

      494d

      I believe some of my family understands some of my issues

    • AlikeYou33

      494d

      Not even a little.

    • KabaneDaTo

      495d

      No but the fact that they listen nowadays to even half my words means that they understand enough to not make me mad or disappointed.

    • KittyGreen

      495d

      I wish they cared enough to try most of the time I have to get throught stuff my own

    • yumzy199725

      495d

      They try so hard to understand and they support and cheer me up when I'm upset but no I don't think they can fully grasp the consempt of having a chronic illness and that you will have good days and bad days 💔

    • hydroepilepic21

      497d

      Nope, but they are super opinionated about my life though.

    • MLee

      497d

      they don't even try, and even if they did they'd never really be able to empathize with what I go through daily

    • Cara55

      497d

      They try to understand what's going on in my head but it's hard when I barely understand what going on in my head.

    • Love._.kookie

      497d

      No not at all my friends all ways think I’m joking and my mom just doesn’t understand

    • woodlandfolk

      498d

      No especially not with the comments they make about things like my room

    • MixedBag0fMess

      498d

      No I know my parents think I’m just lazy, or at least somewhat lazy My dad is particularly confused as to why I can’t just get a therapist if I know I need one, he knows that I’d have to go through my insurance and then call a bunch of people, he just doesn’t understand how demotivated I am

      • MixedBag0fMess

        498d

        @MixedBag0fMess My friends are amazing, and I do not deserve them and their support

    • ATG

      498d

      what is this friends and family thing you speak of? Sounds unsupportive and stressful.

    • Serena040893

      498d

      I find that some family and friends prefer to call me attention seeking rather than actually trying to understand from my perspective. Some don't understand but sit with me and just let me be me. Either way, no they don't understand.

    • diddle

      498d

      Nope.

    • FiberArtist

      498d

      My husband and mom get it because they both have fibromyalgia too. They understand the pain. Others don't. I have had partners in the past who didn't understand and that was so hard to deal with.

    • KratomEater

      498d

      No one ever has unless they’ve had it. Only then did they relate. I was diagnosed as kid, but that was back when it was a lot less common. I’m 35 now. So I was only on the medication when I was a kid until a few months ago. I tried it a few years back again but it was Adderall . One day I had a massive panic attack. not knowing what it was I thought I was dying. I was on that and caffein so I don’t know if it was the combination or what but I had them everyday all day for two years. They eventually went away but I had to get off any kind of stimulant entirely. Anyway now that I’ve com full circle ⭕️ I still don’t think my family quite understands. But I’m very lucky they are supportive. A lot of people have been pushed away by family because of their conditions.

    • walkerstalker

      498d

      I don't have friends, and my family doesn't understand at all and just makes my OCD worse, only my fiancée understands but obviously not fully but she does whatever she can to help me, we're long distance though and won't be able to see each other in person again for a while.

    • Mr._Dank

      498d

      Fuck no. They’ll never understand it. My friends care and try to. But they won’t ever fully get it. My family, most of them, don’t even care.

    • panubino

      498d

      heck no

    • SomeKindaKid

      498d

      My family shares a lot of the same issues but i only have them when it’s convenient for them

    • chronicallysteph

      499d

      I don't even really talk it about it with my family anymore because anytime that I dare to, they say that they're sick of hearing about it & that basically it's my fault because I'm fat even though there is no link. If I try to tell them that they say that I'm just making excuses. Even if my conditions were caused by being fat, that doesn't mean I should be treated horribly & not cared about. It's either, they don't believe there's anything wrong with me because one person can't possibly have so many health issues if they're not old (apparently chronic illness isn't something they believe in unless it's my mum because she's 70) & are sick of me talking about things that I'm making up, or, that if there is something "wrong" with me, it's my own fault so they don't need to accommodate me. It really just depends what they want to get out of the conversation. That's why I don't talk about it anymore (& probably why I haven't been to a doctor since 2018) because it always seems like the conversation ends up being about what other people think about it & how any accommodations I need don't need to be fulfilled because I'm not really ill I'm just fat (apparently to some people fatness equals illness but that isn't true. I'm fat & have chronic conditions that aren't related to that). I've internalised that to an extent so I just have to get by without support or feeling cared for. I need to go nack to the doctor at sone point soon & that's daunting due to weight stigma in healthcare & the dangerousness of how broken the NHS now is. It's scary being chronically ill whilst being fat.

      • jodie88

        499d

        @chronicallysteph I couldn't agree with you more I'm in a similar situation, chronic illness and fat and the amount of people that put the two together is mind boggling! I don't think many people can even begin to comprehend what we have to go through so they don't even try or assume we are "making it up" or "it can't be that bad" in.other words they can't believe it because they aren't in or experiencing it so it must be a lie. Being fat in a chronic pain world is not only dangerous and scary its very frustrating and will always lead to other issues ie, mental health problems etc because we aren't getting the help that we need x

    • Coke

      499d

      No I’ve sent articles about my condition and had someone tell me it was too much for them like imagine how we feel

    • Taser

      499d

      Sometimes, it feels like my mom knows, but sometimes she doesn't give me a break. 😔 😪 😕 💔 😞

    • phaed

      499d

      no not at all

    • colourfulburrito

      500d

      No. I mean, I think my mum tries to understand but she's not me and I guess will never truly understand. With pain, "oh you're young, you should be going on hikes like your brother" or with my eating disorder and I say like "can I get a takeaway" and she's like "I thought you were trying to lose weight" honey if I want to eat a takeaway and I feel mentally prepared enough to do so, don't go saying those things cuz you're just gonna make me regret it and cause myself to do things I shouldn't do.

    • RainbowKai

      502d

      No my grandpa keeps suggesting I wear better shoes, eat less, exercise, take ibeprofen, or go to physical therapy for my endometriosis and it is so frustrating

    • Something_Strange

      502d

      Absolutely not .. my family doesn't care to accept that I'm trans .. so why would I tell them about my struggles. My friends?? I don't know?.. they're supportive tho -

    • VeggieSandwichQueen

      504d

      My family and friends seem to, thankfully; I think because they’ve been with me on the diagnosis journey that took me almost 2 years and have witnessed my flares. Other people though, not so much. When people find out I have GI disorders they tend to think I mean IBS (which is super real and valid!!) and don’t understand that I mean chronic gastritis, nausea, and vomiting/dry heaving. Having professors understand and respect my accommodations has been really rough because of this. I feel like most people don’t understand how much chronic nausea takes over your whole life unless they’ve been through it themselves at some point.

    • The_Pained_Dinosaur

      504d

      My partners try, but for the most part my family doesn't. My dad in particular doesn't "believe" in depression and tells me that "things aren't that bad, I don't see what you have to be sad about". He also doesn't believe in taking medication and says that most things can be walked off or that they're made up (despite he himself taking pain medication when needed). :/

      • walkerstalker

        498d

        @The_Pained_Dinosaur partners?

    • Tigeress667

      504d

      No especially the father of my baby. A lot of times I try to explain to him that some of the things he expects are just not realistic because of the pain I live with and that sometimes I'm just not gonna be able to do things. That sometimes my ADHD will get in the way. But no matter how I explain it he doesn't seem to understand.

    • el6

      504d

      Absolutely not. I don't even understand it

    • IceGoddess

      505d

      No, if they understood, my life wouldn't be so stupid hard...,..

    • PrincessEmerald

      505d

      No, not at all not even a little. I work 60 hours a week, I’m the breadwinner, and raise our 2.5 year old with very little help from husband and I still get called lazy. It is so heartbreaking. I think I just prioritize things differently as far as what needs to be picked up/cleaned/ etc and when because I have to cater to my chronic fatigue.

    • Zenthepiglet

      505d

      No, I don't believe my family does, the fact that whenever my symptoms do show up they always forget that it exists and quite frankly I've given up on trying to get them to understand bc they feel like I'm just making up excuses while it takes so much courage and determination to do what needs to be done and they just don't understand the struggles I face but luckily I have people in my life that gives me encouragement so that I can do it

    • hydroepilepic21

      505d

      No, they say they do but they don't

    • sleepyhippo

      505d

      To a certain extent yes, but at times they forget or have no clue the extent of things...

    • LilacBell

      505d

      nope, they don’t understand

    • Satans_lil_devil

      505d

      Absolutely not. Not for lack of trying to explain and educate

    • BeanBetter

      505d

      No and thats okay

    • italianxpeaches

      505d

      No. Even my mom who has the same conditions doesn't even understand or believe me alot.

    • Tracks

      505d

      My able bodied dad and brother say they know how I feel, but I doubt that 150%. My mom who I has a less severe version of spina bifida than I do, think she has more of an idea.

    • ItsErin

      505d

      Nope

    • summershimmer

      505d

      No

    • Sapphire34

      506d

      Some of them do but most of them don't they are always you look fine to me well just because I look fine on the outside doesn't mean on the inside my body isn't screaming at me to run get away from people or to stay in bed people don't see that side of mental health

    • Captain_Honey

      506d

      They have little to no idea. They don't know how my symptoms work. And too often they try to force their solutions onto me

    • lostinbmore

      506d

      I grew up in a deeply Baptist Christian family, was sent to the deeply Baptist Christian School run by the deeply Baptist Church we all attended. I am... A master at faking it till you make it. They have no idea what I'm going through. Thankfully, for the most part, I have made a lot of good progress in my heart and mind so there's not as much a need to explain it to them. But, I seriously doubt they would understand if I were to try. Their world is ruled by the concept that negative things are either a test of faith from there spiritual figurehead or a direct result of some deficiency in there relationship with their spiritual figurehead. Besides, it's kind of fun being the uncle who is a little... Off.. ROFL

    • Rayningtigress

      506d

      No but then again i dont either. We work together to get through this

    • Kittypop

      513d

      100% no (except my husband)

    • Lilshrimpygirl

      515d

      No not at all

    • ForbiddenPretzel

      515d

      No. And no matter how many times I try to explain it, I am called crazy and told that not how it works. Like yes, I get no 'normal' person works that way. I'm not normal ma!

    • FTW

      516d

      Absolutely not. My family just dials 911 when I start having an episode

    • Soskae

      516d

      No. I honestly don’t think anyone will. Even people with almost the same conditions have a different mix of severities that drastically alters how it feels. I think people can grasp my condition individually but trying to put them all in one experience I think is like trying to comprehend how large our solar system is. We know it but we can’t actually take it all in. I don’t think it’s a bad thing, we all have a different life experience that we can’t fully grasp. Medically I think I’m too wild to relate too lol.

    • AudaCity

      516d

      Only my fiance really gets it, they also have some mental illness and they get to see me every day to see what's actually going on. The rest of my family has good intentions but they aren't as good at helping with everything

    • chaitea17

      517d

      Luckily, yes. All of my issues are genetic. Mom and dad have my adhd and anxiety, grandmother has my heart and spine, mom has my autism, my little sibling has all my mental stuff. We can all rely on eachother due to all having the same problems

    • Jo420

      517d

      Not at all. Especially my step mom. She’s very much so a pray and a get over it type of person. First of all I’m not even religious and second I don’t HAVE to just ‘get over it’. It hurts. I’m not going to push myself until I can’t move or stand to be around others. Everyone else acknowledges it but I’m young so I just have to be capable of rebounding quickly I guess.

    • katkall

      517d

      my dad texted me that he would help me with disability paperwork. A few days later I ask him in person when I’m getting the papers and he straight up says “you’re not disabled“ 🤨

    • Paisley85

      517d

      Not one bit.

    • lowempathyhighenergy

      517d

      Family; Not unless it immediately benefits them. Friends; Somewhat, they try but it's hard to connect with them sometimes

    • OurLadyOfChaos

      518d

      Ish. They try? But no.

    • mydragonmoon

      518d

      Some of them seem to understand. But the majority do not have a clue and don't seem to want to get one.

    • Deep_Feelings

      518d

      Some do, some don’t.

    • anxiouslywaiting

      518d

      No

    • Viynyl

      518d

      Absolutely not. My family has always minimized me and what its like to live with my conditions, its always "Your being dramatc/Sensitive" along with telling me to do things I physically can't do. Its always met with "It's not that hard/your just being lazy" when I barely have useable eyesight. They are also unrealistic when it comes to my tics and think their something I can "just quit"... My friends on the other hand are trying their best to learn and come up with solutions so I'm not mad at them.

    • Buffering

      518d

      Not at all. I’m “too sensitive” “too negative” “need to smile more” “need to just be happy” etc It’s almost as if they honestly want to feel the way I do 😥

    • Clockwise

      518d

      No not really the closest family member that can relate to my depression and anxiety is my mom but other than that they don’t know me as well as they think due to my depression making me keeps me from talking with them about it

    • mermaidap

      518d

      they didn’t realize until i went to intensive treatment and i think they still have trouble with some of my diagnosis’s

    • Olivebutter2236

      520d

      The only people who know what I go through mentally and physically are the people I have lived with with for long periods of time because unless you spend a ridiculous amount of time around me I'm so well medicated at this point you'd think I was totally normal but in my own home where I spend the most time I have a lot more moments of struggle. So that's pretty much only my mom and my siblings and my fiance. Everyone else has a hard time believing I actually struggle with the things that I do.

    • Eren2273

      521d

      Both yes and no. My mom understands the basics of my disorders but not enough about how they effect me specifically and what can be done about them

    • Scepterina

      521d

      No! I've spent years trying to explain but if anything, they seem to be trying to make them worse!!!

    • puzzle

      521d

      no. none of my family members that i have talked to about my disorders has understood me no matter how many times i tried to explain and they don’t even try to understand them, ask questions, or do any research. they either ignore the existence of my illnesses or once i remind them that my brain works differently than theirs, they pretend that they understand when it’s clear they don’t.

    • Nal

      522d

      Yah I got kinda lucky in a way,I mean one of the conditions I have I got from my dad so he knows what I go threw with that cus he has it too, he doesn’t have the other ones I have but he’s empathetic about it. I feel like he’s the only one that understands me even tho I don’t really talk to him abt it, I just recently told him I have major depressive disorder, nd he was understanding

    • dog6ude

      522d

      no, not at all

    • MorganVL

      522d

      No

    • Pooge2255

      522d

      My dad slightly understands. He told me growing up to suck it up thought instead of talking about it because it makes you a stronger person to be able to bottle it down. My mom doesn’t understand. She’s kinda in her own little world.

    • Nenna

      522d

      Not everyone. My parents definitely don’t but my mom is trying and I really appreciate that. My partner and his families really do tho. His step mom has a a slew of chronic illnesses that’s affect her everyday so they all have had exposure to another person they love living with chronic pain and poor health. His bio mom is also and emt so she has a lot of professional experience and really sympathizes. It’s really nice to be accepted and seen as I am and not feel pitied.

    • CozyVibez

      525d

      Of course not. I'm the first of my family and friends to battle fibromyalgia, chronic migraines, and IBS on top of anxiety, depression, and bipolar. They give me slack if I'm not up to some things, and I truly appreciate that!

    • jam064

      525d

      Some of my conditions yes, some no. My mom, sister, and pretty much all my aunts and cousins suffer from depression and/or anxiety, so they all understand what that's like. My dad has enough people around him that he mostly gets it even without experiencing it himself. But I'm also trans and epileptic. There aren't good words to explain dysphoria to cis people, because no words can truly encompass what that feels like. They're supportive but they don't get it. Then with my epilepsy, my mom is so worried that I'll forget my meds that she forgets that it isn't her life (I'm 29 and live alone). She can't seem to grasp that my entire life centers around making sure I don't have a seizure. There are so many things I can't do and no one seems to grasp that aspect of it. They see 'if he misses his meds, he has a seizure, he can't drive for six months.' They see and sympathize with how that affects me. But they don't seem to grasp how much it controls my life even when I'm not dependent on others just to get from place to place.

    • Kapyin

      525d

      friends? yes. im apparently a magnet for like disabled people lol. family? absolutely not. my mother always dowplays my pain, and it took me writing down a whole essay of symtoms for her to even acknowledge it could be worse than she thought. my sister understands... but only a bit more than my mother.

    • Foxlover

      525d

      In a way they know what I’ve been through, and what I’m going through now. I have a big family so only my parents know what’s going on, along with my boyfriend. He’s been there for me though, so it helps out.

    • WilburEffingSoot

      525d

      My mother has almost the exact same things as me, but she treats me like I'm a baby. I'm a teenager and can handle myself quite well, down to food and basic needs and all the way to working. Yet to her, I'm always going to be her baby. I understand she cares, but I hate being coddled when I can handle it by myself.

    • mx.mistoffolees

      541d

      A lot of my friends have similar issues! Even if we differ a little we still have a lot of common ground that can allow us to like, properly empathize. Even with my friends who aren't personally chronically ill or autistic, they have enough other people in their life that are that I don't have to explain too much (which is great!) I'd highly reccomend finding friends with similar conditions. Its helped me immensly in accepting my autism and illness and understanding myself. I dont really think my family gets it. I have a lot of trouble communicating with them and even more with getting them to listen. I just dont think they understand, but hopefully someday.

    • GN008

      541d

      Unfortunately no. Most of them try but nobody will ever truly know what it's like to live with migraines until they have them: the sensitivities and the triggers.

    • Nikki03

      541d

      No

    • vmartinez6

      541d

      No

    • HarryPotter

      542d

      No not at all 😥

    • blood_rose

      542d

      Yes lol but some times my way of expressing myself can be a bit much for them to handle

    • Nikki03

      542d

      Absolutely not but they try

    • housesucculent

      542d

      nope, it’s not their fault though

    • Bre19

      545d

      I think as much as they try to they won't ever get even close to fully understanding what it's like to be me

    • Mellow_love

      558d

      I think that they try to but that doesn't mean that they get it. To them I'm still just horm