See Alike in...

Alike App

Browser

Feeling Alone with SLE Symptoms

lunar__dude

543d

I wish I knew more people with SLE who experience neurological and gastrointestinal symptoms. I feel like the only one.

2

13

13

Chronic Migraine

Systemic Lupus Erythematosus (SLE)

Esophagitis-Gastroesophageal Reflux Disease (GERD)

Tics

View all
Top reply
    • JoJo88

      104d

      Myself have digestive issues and migraine headaches lots and lots of times I feel best thing you can do is keep mind active …. Work out. Stretches. Drink plenty water stay hydrated and use peppermint essential oils roll onto forhead and temples and back of neck can help as well.

      0

      Reply
      Chat
    • JoJo88

      104d

      Myself have digestive issues and migraine headaches lots and lots of times I feel best thing you can do is keep mind active …. Work out. Stretches. Drink plenty water stay hydrated and use peppermint essential oils roll onto forhead and temples and back of neck can help as well.

      0

      Reply
    • Igglepiggle

      492d

      I’m suspected lupus and get digestive problems, I also have adhd so my brain isn’t right lol but I don’t know if lupus effects my brain much, though I do think it effects my hormones and that messes with my thoughts and feelings

      0

      Reply
    • Whitney118

      537d

      I know how that is! My mom would be like "I get it Whit. I'm not stupid. I understood you the first time..." Or she would finish the sentence, making it a point that I had already said it once... And my dad would cut me off if I was repeating a story or something that had happened to me, telling me he had already heard it a thousand times.

      1

      Reply
      • lunar__dude

        537d

        @Whitney118 that always hurts so bad. My parents do the same crap

        0

        Reply
    • Annye

      540d

      Definitely not alone!! I suffer from GI problems on a daily basis and I never knew it could be due to lupus until not long ago. A lot of neuro problems too.

      1

      Reply
      • lunar__dude

        539d

        @Annye yeah, I didn’t know all my stuff could be related until after I was diagnosed with lupus, which was 3 or 4 years after some of my other diagnoses

        0

        Reply
    • Whitney118

      543d

      I also understand the neurological aspect of it. I get days where I feel trapped in a thick fog, I'm always forgetting things to the point that I will forget what I'm saying mid sentence and have to start over or repeat the first half again. People think that I'm being rude, like I think they are stupid because I will make my point three or four times but it's actually the fact that I can't remember if I've finished my sentence or not.

      2

      Reply
      • lunar__dude

        539d

        @Whitney118 oh damn dude, I feel that. My parents used to fuss at me all the time when I lived with them for doing that. Words are hard

        0

        Reply
    • Whitney118

      543d

      You're not alone!! I totally get it! I have major GI problems to the point they had to remove most of my intestines and part of my stomach. I have permanent staples.

      1

      Reply
      • lunar__dude

        539d

        @Whitney118 oh wow. I hope your symptoms are less now! My GI symptoms vary in intensity, and at their worse I lost about a third of my body weight in 6 months because I could barely eat. Right now I’m waiting for a gastroenterology referral, and my primary care and I suspect crohns

        0

        Reply
    • TeaJay

      543d

      You are for sure not alone though

      1

      Reply
      • lunar__dude

        543d

        @TeaJay thank you 💛 My rheumatologist told me they’re probably connected in my case. She said my POTS was probably caused by nerve damage from my lupus, as were my GI issues. We also suspect I may have crohns I’m just scared because I feel alone. I appreciate the kind words. If you ever wanna talk, I welcome DMs 💛

        0

        Reply
    • TeaJay

      543d

      I was just diagnosed with SLE. I have issues with my stomach and brain for sure, but not sure if it's connected with the lupus or not

      1

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion