Feeling Alone After Diagnosis

I was diagnosed with lupus SLE 2 years ago. I also have Fibromyalgia. People don't understand the every day struggle. I also have endometriosis since I'm a teenager. It's hard to be around people when you aren't feeling well let alone feeling like yourself. Just keep being positive and pray on it! One day at time is all we can do, right... good luck to you!

Don’t give up… sometimes circumstances are hard!! But God is bigger than anything!! I understand your thoughts and feeling. I was diagnosed three years ago and I was driving myself crazy!! It takes time and patience. You’re brave!! You can do it!!

Yes I can understand all of these feelings. I have also been annoyed by ‘healthy’ friends who didn’t understand why I was being so cautious about Covid. I already have a chronic illness- I don’t need another one! They don’t understand why I make plans and then need to cancel them because of a flare. When I meet people who also have SLE, it definitely helps with understanding each other, but if we’re not feeling good at different times it can be weeks between seeing each other. I get depressed thinking about how active I used to be… before constant joint pain, inflammation, GI issues, etc.

😥

Yeah it sucks, I know the feeling and fibromyalgia and lupus are things people don't understand if you don't look sick. Things will get better. I was diagnosed in December of 2013 and I have my good and bad days.