See Alike in...

Alike App

Browser

ghoulpod

825d

I'm wondering if anyone else is struggling with the neuropsychiatric symptoms of lupus that I am? I've always struggled with depression but it's only since I've gotten sick that I've had these bipolar type symptoms (hypomania, deep depressions) and the information given to me by my medical team said lupus can cause it. That and the memory loss and tics.

Top reply
    • Annye

      476d

      I struggle a lot with memory loss/brain fog. I have dealt with depression for almost 20 years and has recently gotten worse. I started experiencing mood swings recently as well. I’m on Duloxetine for both depression and fibromyalgia and it’s helping but I still don’t know how to deal with my mood swings and not sure if it’s related to lupus, depression or the medication making me moody.

    • Annye

      476d

      I struggle a lot with memory loss/brain fog. I have dealt with depression for almost 20 years and has recently gotten worse. I started experiencing mood swings recently as well. I’m on Duloxetine for both depression and fibromyalgia and it’s helping but I still don’t know how to deal with my mood swings and not sure if it’s related to lupus, depression or the medication making me moody.

    • Monique12

      771d

      Not exactly what you described, but yes my mental health and cognitive ability have suffered since diagnosis. I actually found a neuropsychologist who specializes in how the brain copes with chronic pain and it’s amazing! I highly recommend finding one if you can. However, because this is an emerging field, it’s not always easy to find these therapists, so the most important thing is just finding a good mental health practitioner who can guide you.

      • Chesbro99

        478d

        @Monique12 how did you find them?

    • karinad

      772d

      Hi! I made a discord channel for those specifically with autoimmune conditions to help each other out. you can join here: https://discord.gg/3hZt9vCwR5

    • Ilovedoodles

      819d

      My lupus symptoms started with these types of symptoms. I experienced being in a manic state that turned into a deep depression. I also had memory loss, migraines and light sensitivity. In general my whole mood became off as well. I felt like a high dose of steroids was the only thing that brought me out of this fog. I tried other routes of treatment but didn’t have much luck.

    • Misotherat

      821d

      I’ve dealt with depression for years but it’s definitely gotten worse since I was diagnosed with SLE. My mood swings were off the charts as well.

    • Aes

      821d

      I struggle with all of that and have CNS lupus. Waiting to see how it will be treated

    • Linia

      825d

      I experience memory loss and seizures, random bouts of depression. Still waiting to see a neurologist again

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion