Struggling with the Emotional Weight of Living with Lupus

I know it's difficult to have a label to something because we all want to fit in, but you know what being unique and being different is ok to be too. Being sick is not great just take it a second at a time then a minute then an hr embrace your emotions and breathe them out

Yes, I got it at 16 diagnosed at 19 now I’m 20

Yes! It has made me even more depressed. I miss my old self. I wasn’t a very active person before, but there has definitely been a big change, not being able to walk a long distance, always having joint pain, the fatigue. I feel helpless, and alone. No one understands what I am going through. My family think I’m over reacting, making it all up, that it’s all in my head. That I complain too much. And it just sucks that you’re never gonna go back to who you were before. I’m tired of taking all these medications that only help a little. 🥺😢 it’s a very depressing and lonely disease.

I am young when I first got diagnosed I went to my therapist and talked to her about it because I alsp have adhd I thought it really helped because even though yes it's a chronic and gross disease we are young and we still got a life to live maybe talking to a therapist might help you as well