Has anyone ever wrongfully treated you as if your condition is contagious?
Diabetes Type 2 (T2D)
Psychogenic non epileptic seizure
Anxiety (Including GAD)
Irritability and Anger
Chronic Generalized pain
Nausea and Vomiting
So far no, but when I have a flare I do find it easier to tell people "I'm sick today" than to try to explain.
Yeah I've lost friends because they're afraid to "catch" my mental illnesses. Like they're contagious which is ridiculous but I'm glad those people are out of my life! I've found people now who don't treat me like I'm contagious or broken. They just accept me for who I am and understand when I have issues.
wowww that's absurd
I feel like that's how majority of ppl my age treat chronic illness and mental illness it's ridiculous and a little self centered in my opinion
yeah, right, like they're all that sane their own selves.
I understand that!
they weren't friends to begin with if they walked away when the going got tough
Yes they have, especially if you mention being immunocompromised, they immediately think you have HIV or something smh. It makes it hard to spread awareness that there are other conditions that cause weak immune systems.
I get this a lot which usually keep me from socializing. It's also difficult to try and explain ur immunocompromised situation. Cause all they hear danger.
Not that I could remember!
Yes! Especially with Covid. I cough a lot (due to respiratory inflammation) so I get a lot of looks even though they can't catch it.
I have the same problem. Sorry you have to go through that
Yes, I have a movement disorder and people around me and close to me at different times would be afraid of me thinking I was contagious. Even my fiance at the time thought I was when he began having seizures. Turns out he had brain damage.
I've never been treated badly. But several years ago, as I was dealing with the effects of childhood sexual abuse, people seemed mystified that I hadn't "gotten over it." I had taken literally years to even recover memories of what had happened. Without meaning harm, people, including my sister, could not understand why I hadn't "put it behind me!" I found it to be extremely cruel. But today, I have dealt with a lot of it. I don't feel so much pain as I did. But, rest assured, I'm still not over it!
That's awful. I hear people saying "get over it" when it happened years ago. How can you? I wasn't a child when I was raped and it still comes up sometimes and I cry. I was 23, pulled in a car and raped. He held me for 4 hours. For years I felt the knife he held in my side. I went to a psychiatrist and to be honest it didn't help. I got closer to God and prayer and a friend that went through the same thing helped me. So if you need to talk, please reach out.
I’m 52 I have childhood sexual abuse in past from my father and a family member. I was also raped @ 15. I’m sorry but it still haunts me. Do I think about it everyday No but if something is mentioned on TV etc yeah unfortunately there’s still memories/flashbacks. I thinks nobody would want more to get over it or put it behind us more than us.
I’m currently going through the same thing. It was hard for me to even label it as what it was. I wouldn’t admit it to myself. Until, all the pieces starting piecing together. I feel guilty for “letting it happen” or for protecting the person for so long. I’ve been beating myself up, and that only allows that person to win.
My sisters are afraid to become me or develop the disorder. they make it very well know too.
Have had problems keeping relationships
Yes! I had this friend who i would reach out to when i was feeling down because of my depression and they would try to make it look like they had it worst than me
yes a lot my friends do this to me when I'm trying to express Grief or just missing someone or have thoughts from ptsd they'll tell me a story that is way worse so I can't talk about it anymore and help them more it drives me nuts
sounds like my friends
I can't talk to my mother half the time because she aaaaaallways has it worse than me. Whether it be pain or mood. Even when I'm hospitalized due to mood, she claims she's worse and can't go to the hospital for it
I hated when kids did that sh*t
Yeah, a lot of people treat acne as something “dirty and gross” and assume you have have hygiene, when (in my case) it’s just hormonal and genetic for me. People have been scared to touch me because they might “contract it.”
have you tried panoxyl products? It helped me so much. I have PCOS so I still have acne at 32 years old and it will probably never go away
Yes, never forget the time when a father of a little boy noticed my bald head from cancer and screamed to get myself and my gross disease away from his son - I was only 15 lolll
wow I'm so sorry, people suck, but to treat a child or anyone for that matter like that is so disgusting to me it hurts. I'm sorry 😞
Definitely. Was bullied heavily in middle school for my Tourette’s. A classmate rolled up to me with her clique demanding I stay away from her in class because she “didn’t want to catch whatever it was I had.” (Which was out of my control because assigned seating and, well, neurological conditions aren’t contagious lol.)
Once I got diagnosed with my (potentially fatal) heart condition, my mom started worrying about if she had it (granted she was the genetic carrier). It was kind of ridiculous though because the condition I have would have presented through her ECGs. She even got a cardiac monitor implanted and has a cardiologist she sees. And she used to compare our “conditions” as though they were the same. I understand her anxiety about it but at the same time it felt minimizing to mine, especially because I nearly died and was only 15.
When I was diagnosed I stopped going to school because I was going to dialysis 3 times a week when I went one day to get my work from my teachers she said it might help my classmates cope better if I answered questions so I did and a girl raised her hand and asked what the thing on my chest was it was my dialysis catheter well she heard catheter laughed at me and asked if I peed out of my heart still is the stupidest thing I've ever heard we was all 13-14 so she was old enough to know that isn't what it's used for
I’m bipolar ADHD and ADD
Generalized anxiety disorder
And I don’t like food that has texture
Not me specifically, but my younger brother (he has autism and adhd). He has a hard time making friends and socializing. And it's a shame, because once you find a topic he can relate to, you can't get him to shut up 😂
Yeah, where to even start! I’ve had people look at me like I was a freak, like it was because I wasn’t doing something right in my life, guys completely stop talking to me once I really explained my condition. I’ve had people weirded out, tell me to just get surgery to remove it, to just eat better. Name it I’ve heard it 😂 but it’s ok I’m confident in who I am and I’m becoming more confident!! God is good all the time.
YES! I’ve struggled with depression for years and didn’t get diagnosed till I was 13. I lost a whole group of friends because they though since I wasn’t feeling the best at the time that I would pass it onto them. I would’ve rather preferred a ear or some help, but they just straight up left. Only advice, remember that you are worth time and love.
Yes, and my old friends would copy my coping mechanisms obnoxiously. I stopped doing what makes me comfortable to be in public because of them, but now that I'm older, I just do what I have to do to be happy
Nobody thinks they can catch my migraines lol
People are a little more sympathetic when you have brain cancer
yes i wasnt always allowed to hangout with my cousin when we were close because her parents thought id give her depression and other stuff ):
That first post was very funny but so true. It’s like people are scared of me if I talk about a personal issue.
I told someone in my class I was absent for personal medical reasons because I don’t like disclosing my health issues to everyone. Instead of asking if I was okay, the first thing she asked me was “are you contagious?”
I’m sorry but who thinks someone is contagious when they say they’re having health issues? (I 100% believe you, I’m struggling to understand how dumb this person is.) very, very few chronic health issues are contagious and if they are, you have to do something like make out with them or have sex in order to contract it.
my ex after I told him what was triggering me asked if I was trying to give him my depression 😒
Yes actually just the other day it happened. I have anxiety and depression and people always call me "emo" for wearing dark clothes (I don't wear them to look depressed or anything I wear them because it matches with everything and like everything I own that's actually comfy is black so -_-) but this girl in my Spanish class didn't want to sit by my friend and I (she also has depression) because she "didn't want to get depression" so I just flipped her off then she hissed at me... What does hissing do because I mean she is a snake but what does it mean? Do people actually hiss at other people like man oh man am I confused 😭
Yes almost everyone in my family
Yes all the time
People are actually afraid of me bc of my mental health..i understand
"Yea i have ____ it's not contagious tho" "omg are you saying it's contagious!?!?!1!!!"
People b acting like frank reynolds in it's always sunny after he hugged Bruce
Ohhh yea. All the time. Ever since I was kid, I was bullied for my weight. As soon as I got diagnosed with all of the things I have, they all acted as if it was contagious to the point where I had no friends.
Yes. There are people who used to say that they didn't want to be around me because my sadness was contagious. There was also someone who after leading me on and making me think we were going to be in a relationship, told me that he was scared I would hurt or kill myself and it would make him sad.
No not that i am contagious .. out of a good heart people try an tell me its demons bothering me ... more on that later maybe .. those comments alone have caused myself an alters both a huge amount of pain over the course of five years ... especially what i have walked out of 7 years ago ..
Yeah, I wasn't accepted at times. Guys rejected me too
It’s been difficult to find true friends that support and understand my condition,especially when it comes to dating.
I dignosed with depression really young age gone with so many therapists counselors for so long but for the majority they don't help me at all. As soon they see my medical history they don't really want help me no more I was diagnosed also with Neurofibromatosis 1 which generics that causes different types pain in the nerve they painful some are just brown spots others tumors under the nerve that developed in between the nerve that causes pain . A neurologist can have them removed but it's not easy cause depending where is it . I been dealing with since I was 5 many surgeries tumors removed people in public look at me ugly . I have tumors all over my body arms legs back chest stomach face tumors have cause a lot health problem hearing lost blury vision stiffness both hands difficult walking lifting sitting speach problems memory lost much more I lost friends n family ..a lot health care clinic have turn me away . It's not contagious at all . I was just different . Those they have same as I can be much worse than more cause some tumor can grow huge it rare if turn cancerous ..My 3 children have it but not as me . They just learning disability .. I have no friends so I feel depress
Had odd Dr once. He wouldn't touch my leg to check my swelling in feet. Was routine since have venous insufficient. Was HMO Dr, gad to get to next$$$$$
Personally since my condition is very stigmatized through TikTok, everyone thinks that I’m either 1. Faking it for attention or 2. They wouldn’t want to touch me if I have a seizure because they think that they’ll get possessed because of all the exorcist movies
Storytime: when I was younger, I was diagnosed with chiari but before that I was going to many hospitals and doctors but none would listen... the doctors refused to give me MRI, and one said I was "faking it". Some doctors shouldn't be doctors. One day I went to a doctor and she really listened and got me an MRI, and 2 weeks later I was diagnosed. If you ever feel like there is something wrong, keep trying until a doctor listens.
Story time ok so I was 3 and I was sexually abuse and my mom kept telling everyone so we move when I was 5-6 to her friend house her friend had 3 kid 2 girls Thay were 17-18 and one boy he was 14-15 my mom told her friend that I was raped in front of me and her friend children keep in mind a 5-6-year-old hearing that I was traumatize so her friend son decided to add another traumatizing think to my life he raped me for 3 years he said he would hurt me if I tell so I keep quiet and her friend other friend son 1-2 year older he decided to add his trauma to my life he raped me one time one of my mom's friend daughter walked in but instead of helping me she said I like being a "whore" and threaten to tell my mom that I was the one that came on the guy and so she used me the guy when back to his mom house and I was alone with her brother she didn't knew about the one about her brother and she constantly kept making me go to the guy's mom house where he lives to see him I was in Africa I recently told one of my friends about this and I was planning to commit suicide but she stop me before she said that I was putting too much pressure on her because she already had her problem we talked it out I decided to give her a break and I kind of picked up the attitude that my mom had were I interrupts people talking and if you don't talk to me I won't understand she decided to tell her sister and we got in an argument but I decided I was wrong so I apologize and I give her break we're doing okay for a couple of months before suddenly at after school she said that she wanted an a apology and I say for what she said for given her mental trauma and I said let's talk we talked and we both ended up crying I decided to give her another break after she said I think that my emotional trama was cool and me not caring about what she was and I decided not to talk when she was talking and when I'm not talking I'm not doing anything my face looks blank I had a best friend and she was dating her and I was dating her best friend they broke up with us after we left the group we talked to only one person in the group we were a group of six and she said I'm acting like the victim when she's the victim because I told her about my trama I didn't get along with the boys and the other girls in my class were way too loud so I only have my best friend and myself and I decided not to tell anyone else about my life except well you guys this is a life of a 12 years old I'm crying while typing this
I grew up from age 4 or 5 to age 14 being malested by an uncle and to this day my mother still protects him and lives with him. I believe I have cousins who were as well by him. My now niece who is 11 lives with my mom and the uncle who malested me. I am 40 yrs old and still to this day can't seem to tell people no and the abuse has continued all thru my life. Being in abusive relationships one after another, I've been beaten by a person who smashed my head on a sidewalk repeatedly, was married to a man who only allowed me to work and go to college. Please find urself help and get away from your situation.
I’m very sorry love :( my heart goes out to you <3
I don’t have this issue exactly, but they’ve certainly distanced themselves because it’s depressing or they don’t believe me or they just don’t care and weren’t really my friends to begin with.
😥Sadly people always assume that I have some contagious skin problem even tho its just Eczema
same! Everybody gets grossed out by it and tell me not to touch them :(
Honestly as I Child I felt like it was.
My dad was a type 2 diabetic and I didn’t really understand it.
Yes, during the process of being diagnosed with non hodkins lymphoma, an oncologist asked me of I was sure that I didn't get the rash it was causing from being a vet assistant. Even though the biopsies showed lymphoma like properties.
yes. when i was in the army i had eczema all around my eyes and most of my face. i walked into a room full of my superiors and they all looked at me said i looked like i was on drugs. not one was concerned for my health. just assumed i was on some bad stuff.
I’ve had parents of my friends not wanting to have sleepovers with me because they think it’s contagious
Yes sadly, my guttate psoriasis flares up on and off during the summer and there is times where people including their kids will approach me and ask me as they say “the red dots on your body contagious?” And it use to hurt when they asked and I would tell them it’s not contagious I have guttate psoriasis and I would explain to them what it is but they would still believe it is, but instead of being hurt from it I have made stories about it telling them if they touch me they’ll turn into a zombie etc.
Yeah. When I was a kid, my best friend's dad didn't like her being around me because he thought my mental illnesses would be 'contagious' in a sense. It made me feel like I was dirty or bad. Granted I was a kid, but it was strange to me.
Once I got diagnosed they did
Well I have herpes lol so I don’t tell anyone I don’t very much trust (I’m not intimate), but nearly everyday there’s a joke made about the condition(either on tv or in person), making the stigma even worse, making me feel worse, etc. The stigma/mental toll of this illness is the worst part, I’ve attempted taking my life a few times since my diagnosis, and it’s really upsetting and triggering to constantly be reminded that it’s always some gross joke.
How are oriole so uneducated that they think it's contagious?!?! Good prone are dumb these days
Yes, I have an autoimmune thyroid condition which affects my energy and that I now treat with a gluten-free/ dairy-free diet and meds. I had a close friend that became a barely fair-weather friend after my diagnosis. She finally admitted to me that she didn't know how to be my friend anymore with my illness.
I had all the same symptoms before my diagnosis so the only thing that really changed at that point was my diet and having an answer for fatigue and joint pain.
No one deserves to be made to feel like a burden to a friend for an illness they have. For someone else to treat it as an imposed burden on themselves is not ok. I allowed myself to let go of that friendship.
Now, I know that she's an antivaxer and has many troublesome and dangerous views for the health of those around her. ✨ There's a reason for everything ✨
I lost a relationship because they said I was "too much" and didn't want to deal with my "issues" around their family. She said I needed professional help everytime I asked her for her support and help through rough times. We had just moved all the way across the country so I didn't have insurance or a job yet. I continued to tell her I just wanted her support until I could find a doctor that helped low income people or until my new insurance kicked in. It was never enough and she constantly talked about me behind my back and told me how much her family doesn't like me. I moved all the way across the country, leaving my friends and family behind, only so she could be closer to hers. This experience has definitely helped me understand what kind of people I want in my life versus what I had. If people treat you like shit or if you're contagious, drop them asap. They will not help you grow.
The second someone knows you’re on antipsychotic meds even though they are for seizures people lose themselves. Like they don’t understand what the word ANTI means. I’d be much more scary without them lol.
Yes, I was denied a rental home because the realtor assumed she would need to sanitize the home when myself and my family moved out because she assumed Multiple Sclerosis was contagious.
Yes. I’ve had psoriasis since I was little. It was much worse when I was younger and some thought I was contagious and wouldn’t come near me. I used to teach kids martial arts and kids are very curious and can be ruthless about “flaws” so I also got more comments then as well. I did my best to not take it personally and try to educate them. It’s better now but I still have people point it out and freak out they think it’s ringworm or than I’m “unclean” especially in a gym environment. At least as an adult I can better explain that it’s not contagious and how it works. One of those things that I try not to take personal and if educating people and talking about it doesn’t help I don’t want to be around people like that.
My dad doesn’t know me. It seems that everyone in the world have gotten the chance to get to know me except him. My step mom uses my diagnoses to pull my dad from my reach. She makes me feel alienated and has called me a “monster.” My dad listens to her and all I really need is someone who sees through my all the diagnoses and loves me for me. But anything I do both negative and positive are seen through a lens of my disorder. It feels like they define me by the label. I am a human who needs help. I am not damned by my conditions… people just assume they can’t help but the help I am asking for doesn’t seem unreasonable to me.
I need unconditional love.
I've lost some friends, and it of course hurt at first, but I'm seeing that as the most positive thing. I am glad I'm not spending time with misinformed and rude people who misunderstand me - and I don't even have to tell them I don't wanna hang out! I'm glad I watched them grow from far away because now they seem like they are surrounded with more kind people. I don't need more people in my life for me to feel like I need to socialize with them.
Yes for sure! And not all chronic too. Relationships (sexual or friends) have been ruined and I would unintentionally push them away and rarely anyone stayed through it. My current boyfriend absolutely hates my mood swings but stays😊.
I've had people push their kids away from me and just generally avoid me because of my arms. I pick at my arms and so it looks like I do an insane amount of heroine or crack or something when the only other "drug" I do is smoke. It feels lonely at times but I've learned to brush it off my shoulders because no stranger knows the whole story
All the time
Yes, every time that I clear my throat because my thyroid is swollen or when I scratch an itch due to sun sensitivity, a side effect of meditation taken for various things, or saying to someone that I have ...and watching them back up a few feet like I might give it to them. I work at a hospital and get this from my co-workers...rns and lpns who should know better.
Absolutely. Any visible skin condition will have you treated as an outcast, despite 99% of visible skin conditions not being contagious, or even infectious. I have eosinophilic eczema and the occasional bout of hives and boy oh boy you'd think I had the black plague! don't worry, touching my skin won't give you my autoimmune disease, it'll just be VERY itchy for me
when i was in school, this one girl hated that i wouldnt smile and at the time i didnt feel like smiling, i was in a bad spot and she one day sat next time me, told me to smile and that my negative energy is going to spread. when i didnt say anything she got up and said now my negativity spread to her and did a gross snerk, sat somewhere else. made me feel bad for a long time
Yes I get treated differently as soon as they find out I have a hand full of mental illnesses they fear me and see me as dangerous like a ticking time bomb even tho I'm not. I get talked to like a child and people over explain things to me now because they found out abiut my mental illnesses I get offended everytime
That's so horrible
When I was a kid, no one would share a drink with me because they thought diabetes was contagious. 😥 and then when i was In 7th grade my first boyfriend ever found out and dumped me because of it.
Those people were not your friends, plus that's common sense (HELLO) good riddance to those people.
I tell friends that I have alopecia and they look at me like I have lost my mind because I still have hair. Then I explain to them that there are two types.
Yes all the time. My family and so called friends do it all the time
No, but they tell me I don't "look" like someone who would have anxiety. Wth does anxiety look like?
Not to my face but I am sure behind my back.
Not me but my mom is blind and people have treated her that way
I was having a flare up and one of my (fake) friends was on the phone with me and said, "good thing I'm not there or else I would have had it too," and I'm like, that's not how it works....
Nah lol only when I was a kid and had head lice at school- but they really could catch that haha
Yeah by strangers who don't know my story, it's just sucks
ppl used to avoid me because they thought my eczema was a transmittable disease. i wasn’t allowed near their little siblings or around small children when it was bad because they doubted me when i said they can’t catch eczema
No. But I expect it constantly tbh.
Well kinda, I know someone whom I was acquainted with and I told them that I have ADHD and they said oh cool me to and at first I thought that I had someone to relate to but after awhile I realized that they did not seem to actually have ADHD they would look away and they when I would say there name they would snap there head back at me and say something like sorry the ADHD and then laugh or like copy what I was doing
Yes people treat me that way as well. Also like I'm behaving in odd ways and lying and like I'm doing something wrong. I get ghosted, gas lighted, abused often and is very difficult to deal with.
People also treat me as if I'm copying them, which I may do, but I don't understand why as it is unintentional and I often get accused of making fun of ppl by doing so, of which I do not. I just don't comprehend I guess.
Absolutely. It's bogus but I try and spin it to just show that I've made it through and am a fighter and survivor and they can suck it. Makes me feel better about it.
With tic disorder people always go away or ask me if it contagious, it's stupid.
My partner thinks our children will inherit my illnesses…. He’s always been sweet and accommodating towards me. He’s only mentioned this once, kind of as a joke too. I hope but don’t think that he is really that worried about it
I have lost most of my friends if not all. Some family members have become very distant. It is so difficult and hurts more than I can say.
Yes, those friends in my life are gone and the ones I actually need and truly care about me are there for me now.
Good riddance to the others.
Yes, unfortunately. I had a good friend in high school and we were very close. We talked every day, it was the best. Nothing was kept from either of us. All of a sudden she stopped reaching out and we became distanced. Including my friendship with her brother. Years later the brother reached back out to me and I found out they were told to stay away from me by their mother because they didn't want my depression and anxiety to "wear off on them." Some people are cruel.
Funny enough I did. I thought talking about my depression might just make my friends be more depressed or relapse an old depressive episode. Turns out I was wrong.
Not myself but my husband has cystic fibrosis and when his mom would tell his friends in school that he was sick they'd stop hanging around him because they didn't understand what his disease meant they just assumed it was contagious by the way his mom would tell them he's terminally ill... knowing this makes me ill about how she's done my husband and also my husband is really healthy for him having delta-508 which is the worst type of CF and he don't like talking about it and don't like people to know he's sick he says out of sight out of mind if he don't think about it its not as bad for him which has proved effective....
My 8 year old niece was afraid to hug me when she first found out I got cancer because she thought she would catch it lol.
I'm 1 of 3 daughters and my older sister was diagnosed as bipolar too. So far, she's the only one of us that has received that diagnosis, and since we're in our 30's & 40's I don't think it'll change. Maybe this will bring her or you some comfort.
I've had people back away from me because I would tell them of my eczema, they thought it was as contagious as getting the chicken pox.
When I first got diagnosed with PTSD (not war related) I had a best friend who became extremely distant and blocked me for no reason. I also got yelled at by my then husband saying "you dont have ptsd, you have schizophrenia, I dont believe you." Jokes on him! Now I have both but he has a**holeism😂
Not exactly, but I have lost friends that have told me that I'm just "too much" and that im causing drama when in reality, I was speaking to them privately about something I was really struggling with.
I've never been treated like I was contagious but I've had people use my mental illness to get away with verbally abusing me. Because this is hard to explain I'll just give an example of what I mean instead. Say a man/woman does something legitimately messed up or exhibits cruel and insensitive behavior. If I reacted to the outright disregard of my personal boundaries and self-respect they would immediately turn my mental illness into a weapon to cut me down with. They did this by instantly discrediting anything I had to say and dismissing it as me "acting crazy" or "tripping" when in fact the reaction was legitimate. I won't even give you a specific reference because it's happened to me all my life. There is nothing more cruel than using someone's illness against them as a defense.
Sort of. I have oral herpes which technically is contagious, but people think its so much more contagious than it really is. It's also far more common than most people seem to think.
Ohhhh boy. I have a chronic cough and will get random coughing attacks that sound Very Bad. You can imagine with Covid that whenever this would happen in public people in the area would look at me like 👀😨😬 Whenever it would happen at work I'd have to be like "I promise I'm not contagious it's okay--"
All of my friends are scared of me because of my condition and they all almost gave up on me 😥
Idk, my father thinks that being trans is contagious and a disease 💀
I can't stand him.
My friends are sick and tired of me splitting on them and self destructing I think. Pretty sure they're giving up on me too lol
Yes. It happens all the time at work with coworkers and customers. To the point I had to get a pin saying "my skin condition is NOT contagious". It's so annoying with people treating me as if I'm a disease
I have psoriasis, btw
Yes. They aren't like that until I tell them that I'm autistic.
I have a skin disorder and if people see my lesions, they thinks it's like herpes or something when it is not contagious at all, it's just in some uncomfortable places.
Woow some ppl are small minded..its not contagious ...
Yes, when I was diagnosed with Trichotillamania, I lost several friends, and eventually had to tell people I had lice when my head was shaved since lice was going around really bad back then.
When I was first diagnosed with T1D, my siblings would 'jokingly' say that they don't want to catch "the diabetes"... one of them is now borderline T2D
My aunt and her children would also 'joke' about how I went and caught the "betes." My aunt was the main one who did...she was diagnosed with T2D before I left the state
When people learn you’re on antipsychotics they think you’re dangerous and I’m like “bro I’m on ANTI like that means not psychotic.” I’m dangerous because of my ADHD anger not my fear of cars lol.
Yes. Especially my acne.
I've learned to handle explaining my health problems. It helps that my bf is always by my side. Elementary school was difficult and very lonely. I was home schooled in middle school and then reintroduce to school system by highschool. But it never got better explaining my health problems. And my family did the same except when other family got ill some of them realized I was nothing to be afraid of. Although this also meant being compared with family members with similar illnesses and wondering why I can't be like them.
My partner and I have fibromyalgia and regularly experience discrimination, and just plain incredible rudeness from more able bodied people. I think some people just think they’re better bc their body still works, and they believe the lie that disabled people are a waste of space and should be hidden behind closed doors. People regularly ask us if we’re “racing” in our electric carts at the grocery store, and don’t apologize when we tell them no, just doing some shopping. They cut in front of us, sometimes multiple times in the same visit. They’ll sigh, roll their eyes and walk faster to get ahead of us. We’ve even had one man yell at us for being in the way. Late night Employees will race to get ahead of us to lock the exit doors to side of the store closest to our car and refuse to make a reasonable accommodation. People look at us with disbelief just because they can’t see what’s wrong.
i feel ya,i use a wheelchair at the mthadone clinic i go to,there tends to be a line and ppl try to skip me quite regularly when my turn comes up cause i usually wait off to the side,they clearly saw me come in right before them but they do it anyway,but luckily ive become assertive enough to roll up and say something,most of the time they roll theyre eyes and let me go and ive had ppl literally run in front of me,i geuss they think im weak and irrelevant but i usually stand up for myself but sometimes i just let em go and shake my head i really got nowhere to be lol
i made my friends drained from talking about my mental illnesses so often with them and they left me. so i think my being mentally ill hurts them mentally too
I was falsely diagnosed with focal seizures... I'm seizure free with the correct prognosis from the Cleveland Clinic.
Yea. In third or fourth grade, someone from my class acted as though my DiGeorge Syndrome would affect him. He started being mean to me, but I had my other classmates who stood up to me.
im so sick of ignorance being more common than love and understanding and god forbid someone might learn something...damn why do ppl gotta suck so bad?!
People for some reason when around me seem to be afraid that they'll catch my deafness if they attempt to talk to me or something. Most people run away and don't even attempt to talk to me.
Oh for sure yeah, I have chronic hives that know one knows the reason for but they will come and go my entire life and for a really long period of time I had them and people would look at me so weird and try and get away from me as fast as possible. This one girl I'm friends with asked me if it was contagious and luckily treated me alright after I said no but I was worried for a bit.
Yes and I had to explain that PolycysticcKidney Disease is only contagipus if I was pregnant and I passed it on to my child.
Everytime I'm anywhere in public and people know about them, sadly yeah.
Sadly yes. I told someone, who asked what was wrong, that I was having an anxiety attack and they backed up as though I told them I was about to puke.
Another time I was limping and I was asked why and I said it was because the bursitis in my knee was acting up again. The person actually said "ew, is that contagious?" She was a coworker who irritated me and quite often made me mad at her so I said "yes and it is spread by anger so don't press your luck today." She told the manager I hand a terrible disease in my knee. I told the manager what I had going on and that I was just messing with her. I told the manager what was asked to me than said "ask a stupid question, get a stupid answer" and went back to work.
Yes I’ve been treated like that before.
Yep!!!! I call it ignorance (mean unlearned), as I've told "them", if you loved me as you said, you would of (by choice) took the time to search, research and ask me about my illnesses oppose to acting, which showed me their true heart.
More like family history. Prospective partners are afraid of my genetics. I think it’s better to know what someone is predisposed to. Because you’ll find someone that has a clean bill of health and their family does too- then they are probably lying, or are not aware YET and will only know once a condition expresses itself unless they test for it. EVERYONE has something. I am so tired of the stigma around physical and mental health conditions.
Yeah, my family didn't touch me at all to comfort me in all my pain when I used to have migraines all the time as a teenager.
My friends support me on this I got kicked out of my sister's because it made her feel like I was making hers act up
Yes!!!! I was in the hospital. I was swollen all over. Then, I was diagnosed with RA in all joints. I had pain all over. I couldn’t ever move not even enough to push the call button for help. When the nurse did her rounds I asked her to help me out of the bed. I was still prideful and didn’t really want help. I felt so embarrassed just to ask for that. She acted as if I had a highly contagious disease on my very swollen legs. They had no open wounds no bruises, not even a scratch. She gloved up. (That didn’t bother me). The way she touched my legs you would have thought I had sh*t on them. She didn’t lower the bed and after moving my legs to the floor I almost fell because she failed to support me. She did not assist me to the bathroom or anything. I could barely walk. I nearly had an accident. She walked away from me as if I was not a fall risk. Then she had on a mask. This was in 2012. She made me feel like scum. She was like that for the whole 12 hours. I required blood pressure checks, temperature checks, frequent adjustments in the bed, warm blanket switches due to my low body temperature. The other nurses Never treated me that way. I urinated all over the floor and myself and two nurses cleaned me and the floor. One was a male nurse at that. It’s horrible to get treated that way. I had nothing she could catch. I ended up with tachycardia, fibromyalgia, lupus and other arthritis related illnesses.
No one ever said it’s contagious… but apparently as a woman who constantly vomits, my DOCTORS told me for TWO YEARS I was bulimic or anorexic!!! I was 36 when I started getting sick with my hEDS. Two years of them thinking I was not happy with my body. Two years I had to fight to get diagnosed. Two years and 35 pounds later they finally believed me. 😕
Yes I know what that's like
My “friends” decided to go against me and bully and harass me because they thought I was a terrible person. Turns out I was suffering and just wanted helped and people thought I was crazy :( I never felt so alone. PMDD sucks
I had multiple friends who didn't know they had DID who accused me of giving them DID as if contagious
Yeah since my surgery I make a lot of noises I guess just moving around I've put weight on and my body is so torqued it strains me I'm still somewhat still active as much as I can thank God my closer friends know me and suppose ignore the sounds but then there's those other ones
I used to get bullied for being in special education and having ADHD they told me to get away that they didn't want to catch my stupid and or ADHD
yeah, sometimes when i get a fatigue flare up people treat me like i'm sick and don't want me anywhere near them. i can always tell if i'm actually sick or not cause i never have a fever with fatigue, but people don't believe that
Yeah... but I have a rare autoimmune dysfunction so I get a "fever" frequently and in this world of covid fear I kinda get why people avoid me when I do have one. I mean, I have tried to explain why I have frequent fevers but really it's gets me nowhere with most people because they're so sure I have to be contagious.
Yeah its annoying af
Yeah, was diagnosed incorrectly age 6 to 18 with ADHD until they realized I actually had PTSD the whole time because my parents used to both beat the crap out of me at home until I had enough.
I’ve had schools rescind their admission when I shared my condition with them. I was blamed for applying when I knew I had an issue. The school I’m at now was extremely supportive and I hate those other institutions. The craziest part it’s med school so you would think if anyone they would understand. 😟
while they didn't think i was contagious, they still treated me like i had the plague. just recently i quit my job because i felt like they were discriminating me for being easily distracted and i don't have the best of hearing, 'selective hearing' i call it. that and i just had so many things wrong with me and they won't put in the appropriate accommodations for it.
Yes, well with dermotillomania, which is skin picking, people have treated me like I’m “diseased” because of scars or open sores on my hands and arms
Yes my dad
Yes my old therapist Smh
I had a therapist years ago who used to say negative things as well...such as "although you aren't getting along with your family, you know they still love you."
On another topic, when I was going through an extremely depressive phase, one of my ex best friends decided to show up at my house and say "I had to delete you off all my social media because you're too negative and it's affecting me, so I need to get away from you." People are just ignorant.
yeah, there's a specific way people need to do that, and one of the best options is to block someone and not tell them, ya know, they shouldn't have come to your house like that. I had a friend I did that to a long time ago and I went back and apologized profusely to show them I had grown, and I was lucky enough they forgave me. Forgiveness isn't a right its a privilege.
But what I'm trying to say is: I get this
Yeahhh people have acted like my DID is contagious somehow??? Like... sorry babe just cause you were around us and we told you we have DID dosent mean that you have it too. What they typically describe is as if their feelings are different alters and then they often tell random stories of things they've done and then day "but that was angry Aaron, not me-Aaron." Buddy stop. First of all you remembered the event. So if you have a dissociative disorder, it's not DID. Maybe osdd. But no matter what, anyone with a system knows you CANNOT do that stuff. You HAVE to take system accountability.
My mother would always say that I'm only trans because I was 'influenced' by people around me :/
No but people have left me because of it
My ex bf left me bc I was too much to deal with…
I feel so alone and sad.. My family is with me but I don't think they understand how depression can be. Hugs to all.
No, but they sure like judging!
I have had loads of people treat my mental health issues as if it's easy to have. So frustrating!
Yes, I’ve had that a lot with people in medical field where they act like I’m crazy for having mental Illnesses and that if they are close to me they are at risk of danger or something happening. It’s ridiculous because I’m human too and no one deserves to be mistreated like that ever.
Yes and needless to say they are no longer in my circle. Don't need negative people like that around. Good riddance. ✋🙌
That’s very true people should accept you who you are I feel the same way God bless you that’s good you stick up for yourself
Yes. They think that of Thalassemia and skin conditions.
Yes!! Right now I'm having a flare that has has caused a horrible open wounds that are infected on my feet, legs, and arms. People in the grocery store have looked down and then backed away from my feet. Either they think that they can catch it, or that I am on drugs.
They haven't treated me like it's contagious but they definitely have made fun of how bad my panic attacks are and think that I have them for attention they have made fun of the fact that I have bad anxiety in general and treated me differently do to that even though I'm pretty smart and love talking when I feel welcomed
Not that I can remember but I do get a lot of strange looks when I'm out in public.
Yes. I wish ppl were more educated about genital herpes. Everyone acts like they can get it just by my breathing. It's a SEXUALLY TRANSMITTED disease. I wouldn't sleep with 90% of the ppl I meet so why they flatter themselves is questionable. I got it from my ex, not from whoring around, not from someone breathing near me.
Nope. They treat me like it’s in my head or not as bad as I say it is.
Luckily no but I do get told to just deal with it or to just stop being this way like I can turn my health anxiety off and on
Just with the depression. It’s actually really sad. People in the past acted like there is a cloud of miasma around me if they suspect I’m depressed.
Literally I told my friends I was taking antidepressants and suddenly there was such a subtle shift with how they treated. And people wonder why we don’t tell others how we feel 🙄
The only people that ever get it are people who have been down the same road. That’s why I’ve always ended up having friends who have their own problems. They’re the most understanding.
Well, someone though I'd turn them gay if I touched them-
Someone else thought they'd get depressed if I looked at them too long-
I’ve had this happen when I’d body double or have productive manias—people would be afraid to get too wrapped up in whatever I’m doing to do their own things! I’ve also had my hyperfixations of staying organized (I like those organization TikToks and cleaning TikToks a lot, I like organizing my fridge etcetera too. and bullet journals, itineraries, and more) be accused of being really quote, “OCD” and that said people would make fun of planning out when I’d even eat something for crying out loud! People are just harsh.
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