“Let’s just get you on a normal sleep schedule. That will help!”

when people find out I’m disabled and listen to me explain how awful it is only to forget everything I’ve said the SECOND I mention I have a handicapped parking placard- and then say things like “oh you’re so lucky!” Or “I wish I could park closer to a building, I’m just so lazy!” Like girl. Where did you get lucky from me being in constant pain. Stop trying to act cute it’s not.

Being called lazy, being not invited places anymore, being shamed for not being able to shower every day, and people asking how you are but only to give unsolicited advice

i don't even have to socialize to get these comments because my brain supplies a constant stream of them regardless of what i do ::') but ones i've gotten from others include "do you just think someone's going to take care of you your whole life?" and (behind my back) "they just think they don't have to do any work" like... that was 5 months into my disability application, we're now at 21 months and i still feel guilty several days a week if not more that i'm not financially independent other favs: "why do you need a mobility aid. anxiety?" from a doctor in inpatient, "if you keep avoiding it it'll just get worse" about my phobia, as if exposure therapy isn't just retraumatizing in absence of a sense of control, "that's for people who are really sick, you're not there yet" from my primary doctor when i was admitted to the hospital later that day and of course, people forcing their "helpfulness" on me, even when i don't want it... i know people are just trying to be kind, but when i'm not given a choice in whether i want help it sucks ass more than anything, i think the looks i get every time i go out are the worst, people make all kinds of assumptions about me based on looks and tend to stare with a sneer on their face. like disabled people can't look pretty or punk or cute. like we can't wear whatever we want, do fun things in life. like we have to just be miserable and suffering all the time instead of finding ways to participate despite our limitations

oh gosh,, anything about sleep hygiene. ive heard it since i was 5, i have already tried anything they would/will suggest many many times, its just... how i am. quite the fan of just shooting down every suggestion they have with a "ive done that." or a "tired that already." until they give up lol

"You just need to move around more." And, "You're going to be sore, it means you're doing yourself some good."

"You just need a good night's sleep" or "You should try drinking milk" lmfao most people have not a clue

My favorite is an action. They know i have issues standing for more than a minute. Yet, some people wait until i stand up to start a conversation. Answer, i have become much more blunt stopping that. The other thing is one person said how lucky i was to be retired. I've explained several times that i am not retired. I work a full 40 hour week, just i work from home. I have up responding; who know maybe that person would goof off instead of work. If so, i dont understand how he wouldnt be fired. Results/work-output is what keeps me employed.

"If I had that, I would just kill myself" thanks Karen, that's literally the most common cause of death for my disease 😅

"There's nothing wrong with you. It's just stress/anxiety." I am grateful to the medical professionals who have cared enough to take on my case, but this statement hurts so much! I still wonder sometimes if Im making things up. 😭 ...but I can't be.... right???

“You look young and healthy why are you here?” Like spending endless hours in doctors offices and getting treatments is my idea of a good time