Help for Pain with CRPS and Allodynia

has anyone got any recommendations of how to help pain with CRPS or Allodynia. I’m under the pain clinic but i mean like at home methods. heat is the only thing i’ve found so far that takes the edge off

Surviving Winter with CRPS: Any Tips?

Being in the Midwest in the Fall and winter months is terrible for CRPS and I am assuming anyone with neuropathic pain. Does anyone have any advice on how to survive during the Winter months?

CRPS and Digestive Issues: Seeking Advice

So I have crps along with a bunch of digestive issues well the digestive issue are a mystery n wondering does anyone have crps that causes digestive issuws

Pushing Myself Too Hard: Dealing with the Consequences

Welp, my physical activity attempts resulted in a pretty sharp flare up today. I pushed myself a little too hard and I’m handling the consequences. Anyone else have a hard time not ruminating on your frustrations when having a forced recovery day? I’m proud of myself for pushing myself to work out, but learning where my limits are is a painful experience!! Just needed to unload this somewhere I’d be understood and validated.

In Need of Medical Assistance for Full Body RSD

I've got several medical issues including full body RSD. My symptoms are getting harder and harder to deal with. I have a husband and 4 kids (2 still at home)they are in high school and super busy, but they are still super helpful when they're home. I am in need of help even with basic needs but can't afford full time care. Are any of you aware of any options available? I live in FL if that helps.

Newly Diagnosed with CRSP: Seeking Advice and Support

I was newly diagnosed with CRSP. As hard of a diagnosis this is to receive I was actually relieved to know that there was a medical diagnosis for what I was going threw and I was not going crazy. I have tried to find others with to discuss treatment options and see how to live with this long term and still be able to have the best quality if life.

Managing CRPS: Tips and Tricks

How do you handle your CRPS ? Do you notice anything that causes you to flare ?

New CRPS patient seeking understanding and support

Hello, my name is Kendra and I’m a relatively new CRPS patient. I do not know anyone that suffers from this and I’m interested in talking with people that truly understand.

Dealing with RSD/CRPS and Memory Loss

Hi Everyone Dealing with RSD/CRPS. A long time ago I had found a book that I had each of my family members read. I cannot remember the name. But I do remember the THE AUTHOR... LISA COPEN or LISA COPENHAGEN My memory is worse when I'm in a flare up. I also loose things in my 🏡. My short term memory really SUCKS. My long term... well that's actually okay... I can remember where all my furniture was in my 🏠 before I left CA and eventually divorced my Xhusband.

Treatment for Complex Regional Pain Syndrome (CRPS)

Just curious what others r doing for their complex regional pain syndrome aka… RSD. What treatment u r getting if anything is new that I don’t know about.

Spinal Cord Stimulator - Recovery and Restrictions

what are your thoughts and/or experiences with a Spinal Cord Stimulator? My trial was great and the surgery is getting scheduled. what should I expect as far as recovery/ pain and what restrictions did you have, and ?? Any other help would be appreciated! have!

Getting a Tattoo with RSD/CRPS: Is it Safe?

Is it safe to get a tattoo with RSD/CRPS

Need advice for CRPS pain relief in my face

My crps has traveled into my face . Any advice on how I can get some relief . I have a stimulater but unfortunately it only reaches my right side of my face (which I’m greatfull for ) but I also need relief on my left . Dr has me on Topiramate 50 mg twice a day I imagine that will be upped again my next appointment . This is the first this in the 20 years that I have had crps that I have been on a long term medication. I am allergic to all most all pain meds and have very bad reactions to all of the other meds they have tried. Only 1 of my drs offered ketamine and she no longer practices in my state . Any suggestions would be greatly appreciated

Ketamine Infusions and Spinal Cord Stimulators for Pain Management

has anyone tried ketamine infusions and/or a spinal cord stimulator? my pain management doc has suggested both and I wonder if anyone has had success with either

Looking for new treatments for RSDS/CRPS

Looking for any new treatments for RSDS/CRPS. I’ve had RSDS since I was 15. At 19 I had my first Medtronic pain pump implanted. I’m about to be 43 and have decided to have it removed. I know there could be treatments I haven’t tried. I’m open to ALL suggestions. Thank you

CRPS Recurrence: Anyone Else Experience This?

I was wondering if anyone else has their CRPS occur several times and then go away. Since I was about 10 I've had it after injuries about once every two years ranging from lasting two months, to around two years. I was also recently diagnosed with an underactive parasympathetic nerves system, which affects my ADHD, Anxiety, and explains some of the CPRS pain. I feel like if I were less clumsy my CPRS wouldn't be as bad, but I also don't want to live my life wrapped in bubble wrap just to avoid a flare up.

Alternative Treatments for Mental Health?

Other than meds, are there treatments that will help me

Living with RSD: Can I Still Exercise?

I’m very new to living with RSD - I used to be a Master Swimmer and of everything from my “before” life, I miss swimming the most. I’ve only been dealing with this for about three months now… has anyone else been able to return to at least modified exercise?

Misdiagnosed with BPD? Looking for Advice

I️ was diagnosed with BPD when I️ was 18, but at the time I️ was still on narcotics (and abusing them) for my RSD, and that’s where my outbursts were coming from. I️’m really starting to think that I️ was misdiagnosed, as I️ find that I️ fit Bipolar II MUCH more, I’ve never related to people in BPD Facebook groups I’m in, and even when I️ joined this app, I️ didn’t relate to any of the BPD posts, however when I️ changed it to Bipolar II out of curiosity, it was like looking in a mirror. The issue is that the current person doing my psych med management is utterly incompetent, to the point that I️ genuinely don’t trust her, and she’s an NP anyway. she isn’t a psychiatrist or even an APRN. I️ haven’t been able to find ANYONE in my area accepting new patients that have medical marijuana cards. They’ll either only write medical cards, or won’t do med management if you have one. I️ was just wondering if anyone had experience with realizing you may have been misdiagnosed for years with no idea, and how did you go about bringing it up with your doctor?

Looking for Ketamine Infusion Therapy Advice in PA

Has anyone had experience with ketamine infusions therapy? I was told I’d be a good candidate but UPMC isn’t able to get me Into their program.. in addition if you’re from either pa or anywhere neighboring philly or pittsburgh where did you go for yours?