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Lucia_Marie

784d

Just curious what others r doing for their complex regional pain syndrome aka… RSD. What treatment u r getting if anything is new that I don’t know about.

Top reply
    • trademarkspoonie

      728d

      @Lucia_Marie Where do you get your infusions? I used to get them for years and my pain dr retired. The one who took his place does them insanely differently and the one time I got it with her I actually flared.

    • Elizalo

      770d

      My body is SUPER sensitive to most pharmaceuticals. I had severe depression on Lyrica. Given Cymbalta on top of Lyrica and that turned it into anxiety. Finally a pain specialist gave me a medical marijuana prescription and I haven’t looked back. I combine it with a topical cream with gaba, voltaren, and lidocaine. Mine is isolated to my right upper extremity from an electrical accident. So thankfully it isn’t expected to spread. The gaba, neurontin, and Lyrica sadly turned my memory recall to mush. It doesn’t seem like something I’ll recover either. 🤨

      • Rebeccaaa

        753d

        @Elizalo Whenever I was on lyrica I had a bad reaction to it

        • Elizalo

          751d

          @Rebeccaaa yeah… Lyrica was the worst of them for me too. It really messed with my brain and some of it hasn’t been the same since. Even 4 years after stopping Lyrica. 😥

    • Honesty

      779d

      That was really sweet. Thank you... Ditto for you, too.

    • Lucia_Marie

      779d

      Just wanted to say good morning & wishing u all have low pain day sending prayers and gentle hugs 🤗 ❤️ 🤗 ❤️ 🙏

    • Lucia_Marie

      783d

      Thank u very much for ur response’s ❤️ I have been getting ketamine infusions I get them for 3 consecutive days then I go back after 3 months and get another 3 days. If need be in that 3 month off period I could go & get more infusions if needed. I have had so many operations resulting in 4 back fusions & cervical fusions I got CRPS from a collapsed fusion that crushed the nerve to my right leg & foot. It has also spread to my stomach and up to my hips & have drop foot. I would never get a SCS ever it’s been clinically proven it doesn’t really help CRPS pain. All they do is cause a multitude of major problems for people. Hope we can keep in touch with each other god bless wishing u all low pain days .💕

      • trademarkspoonie

        728d

        @Lucia_Marie Where do you get your infusions? I used to get them for years and my pain dr retired. The one who took his place does them insanely differently and the one time I got it with her I actually flared.

      • Honesty

        783d

        @Lucia_Marie Ditto

    • Honesty

      784d

      Those are all good things, When my RSD had spread throughout My entire body that's when Spinal Cord Stimulators... We're the next step for me. Please, everyone... read my profile, etc. Then you can ask me questions after that, ok? (( )) gently hugs to all of you. I've had RSD since 1994.

    • Tamster

      784d

      Check out YouTube video..Dr Pradeep Chopra on rsd.org. he offers advice for all stages of crps/rsd. I found Lyrica very helpful in the beginning but it has progressed on me quickly, I am going for first Ketamine Infusion this month.

    • Contenta

      784d

      Gabapentin helpful for years, ck Spero clinic in AK just starting myself,

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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