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DottieDoe

698d

How do you handle your CRPS ? Do you notice anything that causes you to flare ?

Top reply
    • ITOLISMAP

      626d

      Weather changes...when weather is rainy, hot, cold up & down I am worse. When I have done to much... Spent all my spoons plus, and not enough down time.

    • ITOLISMAP

      626d

      Weather changes...when weather is rainy, hot, cold up & down I am worse. When I have done to much... Spent all my spoons plus, and not enough down time.

    • DottieDoe

      697d

      Of to have it in your arms & hands would be just as bad as having it in the legs ! I know that CRPS has slowly taken away so much from me. I have gone through so many things to try to control this debilitating disease ! Mine all started with a major lumbar back surgery gone wrong ! How about yours !

      • Jazziejazz

        696d

        @DottieDoe I bet I have cerebral palsy on my left side so a lot of body pain as I have gotten older hurts more then ever then getting diagnosed with RSD on the right side just sucks because now it travels and can get so tight!! But honestly mine started by baking a cake with my mom the vibration from the hand held blender I think cause something in my body and my hand wouldn’t come off the blender my mom had to pull each finger off one by one ☝🏾!!!

        • Darren

          652d

          @Jazziejazz I have CRPS in both knees and bottoms of both feet. Have had multiple surgeries on both knees finally had both replaced and the CRPS got worse. Never had a foot injury it just started one day out of the blue and I was on the floor in pain. Lack of sleep, doing too much, humidity, stress, depression, anxiety, all make it flare both knees same place same time same pain every time. Has cost me a lot, not being able to do so many things, have to take pain meds just to shoot hoops or play catch with my kids. Years of pain management doctors who don’t understand and having to explain every time tell the same story and basically beg for medication.

    • DottieDoe

      697d

      mine too ! Is there anything you can do to relieve your pain even some what ? My legs stay so red & swollen, it makes it hard for me to walk some days.

      • Jazziejazz

        697d

        @DottieDoe wow I’ve never had it in my legs honestly! I deal with swelling in my feet and legs but I’m not sure if it’s caused of RSD!! I haven’t really found something to heal my pain 😥 I use to happen only in my right hand but. NOw both of my hands have started to swell which can hurt really bad! The worst flare up I had was in my hand lasted for almost a month 🥺

    • Jazziejazz

      697d

      I’ve notice that mines flare up when I have overworked myself! It could be to much writing, or picking up heavy things, over working my body, or cleaning a whole bathroom!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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