See Alike in...

Alike App

Browser

Jennigurl

749d

I was newly diagnosed with CRSP. As hard of a diagnosis this is to receive I was actually relieved to know that there was a medical diagnosis for what I was going threw and I was not going crazy. I have tried to find others with to discuss treatment options and see how to live with this long term and still be able to have the best quality if life.

Top reply
    • Ninjalover204

      691d

      @MaggieQuinn would like to hear about this treatment as well. I was sort of thrown this diagnosis since I "grew out" of my other one.

    • Darren

      711d

      I’ve studied neridronate infusions as well, there are a few stories on YouTube but you need to compare your situation to theirs it doesn’t work for everyone.

    • Elizalo

      738d

      I’ve had it for 8 years. I’ll DM you. I’ve heard good things about neridronate infusions, but you’d have to leave the country for a few weeks. There’s a facility in Italy near Florence. I was supposed to go in 2020.

      • trademarkspoonie

        730d

        @Elizalo I’m going on 16 years of having it and have been very interested in these infusions!

        • Elizalo

          727d

          @trademarkspoonie yeah. It sounds so promising. I unfortunately have run into some other health issues that have to be addressed before I can move forward. I will definitely update if I’m able to move forward.

    • EverleighKate

      743d

      I've had it 11 years and would love to hear about this treatment as well

    • MaggieQuinn

      744d

      I’m going to message you, I’ve had CRPS for 17 years and recently found the ONLY treatment that’s worked other than medications, PT, OT, and acupuncture.

      • Ninjalover204

        691d

        @MaggieQuinn would like to hear about this treatment as well. I was sort of thrown this diagnosis since I "grew out" of my other one.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion