Newly Diagnosed with CRSP: Seeking Advice and Support

I was newly diagnosed with CRSP. As hard of a diagnosis this is to receive I was actually relieved to know that there was a medical diagnosis for what I was going threw and I was not going crazy. I have tried to find others with to discuss treatment options and see how to live with this long term and still be able to have the best quality if life.

Your answer

Darren

2y ago

I’ve studied neridronate infusions as well, there are a few stories on YouTube but you need to compare your situation to theirs it doesn’t work for everyone.

Elizalo

2y ago

I’ve had it for 8 years. I’ll DM you. I’ve heard good things about neridronate infusions, but you’d have to leave the country for a few weeks. There’s a facility in Italy near Florence. I was supposed to go in 2020.

trademarkspoonie

2y ago

I’m going on 16 years of having it and have been very interested in these infusions!

EverleighKate

2y ago

I've had it 11 years and would love to hear about this treatment as well

MaggieQuinn

2y ago

I’m going to message you, I’ve had CRPS for 17 years and recently found the ONLY treatment that’s worked other than medications, PT, OT, and acupuncture.

Ninjalover204

1y ago

would like to hear about this treatment as well. I was sort of thrown this diagnosis since I "grew out" of my other one.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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